Surgery Part 2 - Rectum removal and j pouch construction

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mikeman
Regular Member


Date Joined Jul 2009
Total Posts : 66
   Posted 8/20/2009 8:39 PM (GMT -6)   
Hi everyone, I got a call from surgeon today. They have a cancellation on Wed and wanted to know if I wanted to go ahead and complete the second surgery. I said yes because I want to get it over with. I'm not looking forward to the the fallout of 4 days in the hospital but it is something I need to get done. The anxiety is kicking in! shocked Words of encouragement and any advice is welcome!

Sue030509
Regular Member


Date Joined Jun 2009
Total Posts : 39
   Posted 8/20/2009 8:58 PM (GMT -6)   
Good luck with it, I just keep telling myself that the UC was the hardest part, the rest, well...Its all hard, but you have been through the worst.

Sue
UC 2003 Ileostomy 2009

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 8/21/2009 3:22 AM (GMT -6)   
Hi mikeman, wishing you all the best with your surgery, just focus on the outcome you will have a better quality of life! Let us know how your doing after when you feel up to it. Bev x

Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal sheduled for Nov09 Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid, Back on citalopram 40mg (for Anxiety.)


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 8/21/2009 6:00 AM (GMT -6)   
Hey Mike,
I had my second surgery (proctocolectomy) done on july 30th so Im still in the recovery process. I am still sore but getting there and glad its finally over with. You will be just fine. Take care and good luck with it all, let us know how u go.
will be thinking of u
andorable

geminisunset
Regular Member


Date Joined Sep 2008
Total Posts : 153
   Posted 8/21/2009 6:44 AM (GMT -6)   
Best of luck, Mike! I'm still waiting on stage 2 - probably won't be until December or January. So I'll be looking for your words of wisdom when that time comes :) Just remember that it's all worth it in the end, and nothing is worse than the UC pains we have all suffered.

Good luck!
GeminiSunset
Diagnosed w/IBS: Oct. 2006  Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
1st Surgery for J-Pouch: May 22, 2009 - need 2 more surgeries, dates TBD
Medications: Canasa Rowasa enemas; Lialda; Prednisone; Protonix; Remicade; Zyrtec-D; Toprolvarious pain meds post-surgery;
Supplements: Women's One-a-day multi-vitamin; Super B-complex
Current Status: Aug, 2009 - Recovering from the 1st stage of J-Pouch surgery; temp ileostomy; 2 more surgeries to go as there was too much damage to create a J-pouch


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 8/22/2009 9:04 PM (GMT -6)   
Woo hoo MIKE!
I hope all is goes well for you.
So exciting! I'm waiting a few years for mine, so I'll appreciate all of your advice.
And then, hopefully, you'll be done.
Here's to No Looking Back!
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


mikeman
Regular Member


Date Joined Jul 2009
Total Posts : 66
   Posted 9/10/2009 11:46 PM (GMT -6)   
sorry for not responding earlier...was in the hospital a few days longer than expected and I've been busy with church etc.
All is well and recovery is going good.
My bowel woke up 2 days after surgery. Day 3 I advanced to regular diet. Maybe it was too soon because I got really sick or maybe it was the disgusting hospital food that made me ill.
Long story short, l I ate the hospital food and it got me sick. They initially thought I had a partial blockage because I was throwing up for 2 days. I couldn't hold down anything. It was painful because I could not even take my pain medicine during this time. I would throw the pills up in a matter of seconds. The vomit was mostly green like stomach acid/bile with only a few food particles.
The other scary part of my ordeal was the odor from my output. It smelled really bad for a couple of days like dead tissue from surgery was passing through my system.

Finally, things started moving in the right direction on day 6 and the nasty crap that I ate passed. I slowly started feeling better. . Result: 7 days in hospital and it was hell trying to recover while throwing up with weak stomach muscles. For my next surgery, I'm going to stick with clear liquids for a day or 2 longer before eating regular food. I guess am satisfied with everything thus far and plan to go back to work next week! cool

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 9/11/2009 7:33 AM (GMT -6)   
Sounds like you had an ileus; pretty common with this surgery. Glad to hear you're on the mend and back living life!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/11/2009 8:08 AM (GMT -6)   
Yes, suebear's right...ileus! I don't think there is really anything you can do to prevent it, it just sneaks up on you! Just be happy they didn't give you an NG Tube skull
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