just want to know

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Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 8/22/2009 9:44 AM (GMT -6)   
Hi everyone.
 
I have UC and really dont want surgery, however I seem to think that if it comes to this it may be better then taking all the meds. I am wondering what your limits are, can you swim, what about having a bath. do you have complications, Im doing a raw foods diet and it is going ok but at the same time im not going to be stupid and say it will solve all my problems. Let me know thanks.
 
Are you happy you made the decison over meds?


Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/22/2009 11:20 AM (GMT -6)   
I was like you and did not want to have surgery either. I held out for 7 years, but the meds stopped working, so I had to have surgery. Much to my surprise, I really like having an ostomy. I am not sick anymore and have energy that I haven't felt in years. I can swim and bathe with no problems.

All in all, life is good, and I'm very happy that I had surgery.
Dx'd Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/22/2009 6:01 PM (GMT -6)   
surgery is a wonderful thing,lol.
And you can do everything, swimming, showering, pudding wrestling (lol) hot tub, getting in a creek or lake. Anything you can do now you can do after.

Im not sure about the raw food diets, i would think it would be ok, just be sure you drink lots and lots of water with it. So you wont get a blockage

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 8/22/2009 8:42 PM (GMT -6)   
HEY!

I have a season pass to the water park here in KC. I go swimming every week (well, it's been too cold this week :( )

Surgery is WAY better than taking all those meds and still suffering.
I was taking 20 pills a day with u/c. Now I take......wait for it......NOTHING!
Woo hoo.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/24/2009 7:38 PM (GMT -6)   
Have you tried any of the other meds? That may be something to try before surgery, but it's a personal thing.

I've had an ostomy for MANY years, but my diagnosis is Crohn's, and I wouldn't trade it for anything. I am more active and involved in life and wish I'd done my proctocolectomy much sooner. I did try many drugs but for one reason or another they stopped working or I was allergic.

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 8/25/2009 8:01 AM (GMT -6)   
Well... I've had to give up my reading time on the loo. Simply no time - two minutes and I've emptied and I'm out of there!

I also can't wear a bikini - but then this body was never meant for a bikini anyway - one piece bathing costumes are fine. I swim all summer long.

I haven't actually found anything that my stoma has stopped me from doing that I want to do. I've been rock climbing, canoeing, ridden elephants and camels, been on rollercoasters, travelled the world by myself (visiting internet friends), worked full time since finishing school (I've had my ileostomy since I was 10 years old), plus I eat anything I want (and it shows!). I even know ostomates who regularly crawl through caves, have parachuted (why jump out of a perfectly good plane?) and bungee jumped (I'm not that silly!).

Good luck with your decision.
Ileostomy for 33 years due to UC

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 8/25/2009 10:54 AM (GMT -6)   
If you try everything you want first, then when it happens at least you won't have any regrets. You will know it was the best you could do for yourself. I fought it for 5 hard years and still wish I could have come up with something else, but no, there was nothing else that worked, I have made my decision and will work with that now. I"m only 3 weeks post-op so, still working things out.

Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 8/26/2009 4:07 AM (GMT -6)   
Thanks- It seems the raw foods diet is holding me in remmision. i hardly take meds. Im not even taking the asacol at the moment as it seems to just feel like i put a match up my bum. any way thanks for your posts i feel alot less scard now of UC.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 

awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 8/27/2009 5:09 PM (GMT -6)   
I don't regret having it done. Gave me back my life! I can actually DO stuff now...no more lying around all day in pain, or long sessions on the toilet...wooo

Matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis

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