Showering...what I find that works...

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RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 8/25/2009 8:38 AM (GMT -6)   
I recently read about someone not liking the Dove moisturizing bodywash...and I found myself thinking that I'm glad I have had no issues with my Oil of Olay Quench bodywash, as I never considered it may be a bad thing.
 
So, I continued thinking about the struggles I had had with showering and how my skin barrier would always get wet no matter what I tried.  This is my new found success:
 
I use the Hollister 88300 one piece system (I love it!!!) and before showering I place two inch strips of the 3Ms transparent medical tape around my wafer...sometimes doubling up toward the top sections.  This works so well for me!  I had tried the Saran Press n Seal but it doesn't work nearly as well as the tape.
 
My plan is to use the Press n Seal in addition to the tape for swimming and long water day situations.  : )
 
Anyway, I hope you all have things that work for you too...but I just wanted to share what works for me, as since I've started doing it with the tape/Saran my accessory has been lasting up to 7 days or longer.  : )  I love it!!!!!
 
smurf  
: )  Robin
 
29 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 8/25/2009 10:49 AM (GMT -6)   
That is really useful information. Thanks for sharing. I can hardly wait to swim, but it will be 3-4 weeks before that happens.

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 8/25/2009 6:19 PM (GMT -6)   
I use the tape and saran b/c:
 
1. The seals cost a lot more than the tape.
 
2. I really am not motivated to have any more boxes of anything crammed into my bathroom.
 
3. I guess it's kind of a personal thing...the tape is a little normal...it's not specialized and that just makes me feel good.  blush
 
 
 
smurf  
: )  Robin
 
29 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


always29
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/30/2009 5:42 PM (GMT -6)   
Hi All,

I've found that a simple plastic shower cap (doubled over) and a rubber band at the base works for me. My bag is the Hollister 88400 with the sweat fabric on the skin side. I used to shower then use a hair dryer to dry the sweat fabric.

The adhesive barrier gets wet but does not harm the seal. I change my bag every 3-4 days. usually after the filter starts to get clogged and no longer functions.

Thanks for your idea Robin.

Ron

Liveandlearn
Regular Member


Date Joined Aug 2009
Total Posts : 27
   Posted 8/30/2009 6:11 PM (GMT -6)   

Thanks Robin, I'll try that.  Sorry for the dumb question but where does one buy 3M medical tape?  Will a normal pharmacy carry it or is it something I need to go to a hospital supply place for?   I bet the tape will give me an added level of security in general and not just in the shower.  I use the Hollister 2 piece and it's prone to seeping out as the adhesive weakens (usually after 3-4 days).  cheers !!!

Connie


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 8/31/2009 9:43 AM (GMT -6)   
You can get the tape at any pharmacy section.  I started using it b/c I had open wounds from staph infections caused by the immune suppressant medications I was on prior the surgery.  It took a good five minutes to prepare myself just for a shower!  I like the tape b/c it seals the edges of my wafer pretty good.  I'm learning that if I use my finger nail to press it down into the little ripples on my wafer (those develop just b/c of how it's formed to my body) the seal works even better.  Sometimes there is moisture but it's a heck of a lot better than showering with nothing at all!  I thought about it the other day and I've gone 6-8 days with my accessory for the past six weeks! 
 
I've never used the seals before...I saw them in one of my medical supply catalogs and I just cannot justify spending money on a box of seals that I could easily use up within a week or two's time.  Depending on my daily activities I shower up to twice a day and it's just so easy to slap on tape shower and be done with it.  : )
 
smurf  
: )  Robin
 
29 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/31/2009 11:51 AM (GMT -6)   
Oh, ya know what Robin...they are one per wafer...(you don't put them on and take them off) so it really isn't as expensive if you are thinking that you use one a day.

I put one on when I put my new wafer on and it stays on until I take the wafer off...its the perfect water barrier...it really isn't anything extra to do and I can shower without thinking about it, I just towel off and go. I also get about 5-6 days wear time.

Hope that helps with the price side of things...but we all have our 'special' ways, don't we:)

ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 9/1/2009 1:50 PM (GMT -6)   
Gosh I love this site! I would be so lost without you guys, today In the shower I shaved the site where I beleive my stoma will be, i'm a pretty hairy guy, my jpouch surgery is next Friday
and I am trying to get used to the thought of the stoma being there, I kinda got nauseated while shaving on the shower, hopefully once I actually have the stoma I will be ok! Anyone else have these worries?
my name is Isaac, 24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
 
j pouch surgery is scheulded for sept 11, 2009! soon i will be med-free!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/1/2009 3:06 PM (GMT -6)   
i had all kinds of silly worries before i had surgery, its totally normal.
And you might get kind of grossed out by it at first, i did, but you get used to it very quickly. Esp once the staples and all get out its much easier to deal with.
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