Illeostomy reversal

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Vanity66
New Member


Date Joined Aug 2009
Total Posts : 5
   Posted 8/27/2009 6:07 PM (GMT -6)   
My mom had diverticulitis and was having frequent episodes so her Dr. suggested that she have surgey and remove part of the damaged intestine.  He said that after the surgery she wouldn't have this problem anymore and that was great but.... he told her that there was a 50% chance that she would wake up and have a bag temporarily.
 
Unfortunately we did no research before her surgey and it has been a difficult few weeks.  She has an Illeostomy and it has been so hard to deal with.  We finally have a handle on it. 
 
She had the surgey on July 9th and we are going to see the Dr. to schedule a reversal on September 9th.  This time I don't want to be uninformed.  I want to be prepared.  When she had the surgery I didn't realize how much she was going to need me and how hard it was going to be for her.  So this time for the reversal I want to make sure I plan everything well and know exactly what to expect.
 
I was hoping I can get some information and stories on reversals..
 
 

glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 8/27/2009 7:13 PM (GMT -6)   
Be prepared to run to the bathroom a lot. I had calmoseptine on hand for all the infamous butt burn I heard about. I've only had to use it a few times but it sure does help (available at your local pharmacy). I also got some big pads that you lay on your bed for at night. For the first week or two out of the hospital I wore depends (for women!) at night because the first few nights were pretty rough. You don't always know when you have to go, then you wake up and are like...err! I'm sure things will be different for your mom though, I had my entire colon and rectum removed. It sounds like she will still have some.

Good luck!
Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006
 
Proctocolectomy and J-pouch formed with loop ileostomy April 2009
Reversal June 2009
 
 


Vanity66
New Member


Date Joined Aug 2009
Total Posts : 5
   Posted 8/27/2009 8:04 PM (GMT -6)   
Thank you so much for your response it definately helps! 
 
Vanity66

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/28/2009 8:38 AM (GMT -6)   
suebear will probably come by and help you some, but she will also tell you to go to
jpouch.org, they have lots of help over there
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