I am so sorry to hear of your struggles!
My stoma is not nearly as small as yours, but I did have issues with leakage from the bottom of my wafer in the beginning. I found that some wafers just didn't form to my body well. I also learned that I needed to dry the skin around my stoma the best I could before applying the Eakin Seal and wafer. I use a washrag to dry the skin and...to be honest...I sometimes stand in the tub/shower and use my q-tips, brush my hair, etc. while allowing my skin to air dry as much as possible. I stand in the tub b/c I'm worried of messes...as I do shower with my appliance completey off when I change it.
I use a Hollister one-piece 88300 with an Eakin Seal. I find the wafer to be durable and moveable. I had loved the Coloplast two-piece but the wafer seemed too restrictive and "popped" easily. Hollister also has a one-piece that has a cloth wafer that moves easily too. I have chosen the one-pieces b/c I feel more secure with them and am able to play hard with my son and go about my day with no issues.
I do hope you find something that works for you soon! I did find that the more dry my skin the better the seal. And I have found that since showering with each appliance change they are also staying on better.
I wish you luck!!!!!!!
Going to lose my mind. I changed my bag sure to the itching/skin breakdown at 7'ish last night and work up at 3 am with a bed full of stool and a leaking bag again. I am so beyond frustrated. I just called the ostomy nurses and am waiting for a call back from them while I am at work. I agree that I just cannot do this anymore....and I feel I deserve to be having a better experience with this and not worrying when my nest leak or skin breakdown is going to occur. My skin looked decent this morning despite the leak, I put some nystantin and stoma powder on the weeping bleeding part last night and it seemed to calm it down. It will only be a matter of time before the would is open again though. Considering I only had the bag on for 8 hours the entire area behind wafer was covered in stool. If it would have been on any longer the skin would have brokedown.
Thanks for all your help. I really appreciate all of your kindness. I need to do something about this.
I just got off the phone with the ostomy nurse and they feel they have done and tried everything they can for me with the appliances. They feel my surgery date needs to be moved ahead or a revision needs to be done. He also told me to get a letter of medical necessity to help cover the extra supplies I have been having to order.
What do you guys think???