local support group

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Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 9/8/2009 4:11 PM (GMT -6)   
I'm thinking about starting a support group in my city. There aren't any very close, and I would've really appreciated one in the begining especially.
 
What do you guys think?
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 9/9/2009 7:36 AM (GMT -6)   
KC, MO
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 9/9/2009 5:51 PM (GMT -6)   
heck yes!!!!!! through thick and thin. and it's been very thick lately....ugh.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 9/9/2009 10:45 PM (GMT -6)   
maybe i meant thin lately. but they are 'rebuilding' for like the 5th year. oh well. i still bleed red! (and i got some blue in there too for my Royals)
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/13/2009 6:25 AM (GMT -6)   
You could check with one of your WOC Nurses to see if they will help with the process. I know there are many in my area, but I didn't go to any...I guess it is one of those things!!

Does your city have an Ostomy Association that you can affiliate with?

dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 9/13/2009 12:21 PM (GMT -6)   
I wish you were closer, I live in NW Arkansas, and we have a small ostomy support group. We had a meeting yesterday, and I think there were seven of us total there, four with ostomies, one who had had there ostomy reversed, the spouse of one of the ostomates, and the person who leads the group. Usually we don't discuss what kind of ostomy we have,  or have had in my case, but one of our new people, had only had his since around christmas of last year. He  had no idea what was available out there, supply wise, and really very much about how to take care of his stoma. He was still using the same type of appliance that he'd come home from the hospital with. I have nothing against the company, but I think people should try different things. One of our members, brought in his "emergency" kit to show what he carries with him all the time. He then gave the new guy a belt to help support his appliance. You're about four hours from me. I know that in October, we'll be meeting on October 4th, at 2pm. If you're interested.
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