Surgery is in two days and I am nervous

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ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 9/9/2009 8:59 AM (GMT -6)   
I have a few last questions and I am nervous because the surgeons office hasn't returned my call yet. Anyways my biggest question is sting my preop visit at the hospital they never said anything about an ostomy nurse, then later my surgeons office said I should have seen one that day. What does seeing the ostomy nurse entail? Does she mark my ostomy site? The hospital said j will
just see her after the surgery. Stent I supposed to be marked beforehand? Or not?
my name is Isaac, 24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred

we will have our new baby January 25, 2010 :)


1st stepj pouch surgery is scheulded for sept 11, 2009! soon i will be med-free! Will have part two around November 11 if all goes well, dr said I will stay home from work for three months, oh and I'm getting laid off, last day of work is march 26, 2010, just enough time...


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/9/2009 11:56 AM (GMT -6)   
yeah you were supposed to be marked before hand
And they talk to you about the different kinds of bag and such available and give you some info and such.
Go ahead now and contact the companies for samples, so you will have them to try when you get home.
And call the dr office about the nurse, cause if the site isnt maked they wont know where to put your stoma and it might get put in the wrong place

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 9/9/2009 12:51 PM (GMT -6)   
I saw the ostomy nurse while in the hospital the day before surgery. She did the mark for the location. Are you being admitted in advance of your surgery? If so this is probably when you will see the ET nurse. If you're being admitted the morning of surgery you might want to call your surgeon's office and ask when you are to have this visit as it is your understanding they select the ostomy location, not the surgeon.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 9/9/2009 1:51 PM (GMT -6)   
ya i finally talked with the surgeons office and they said its not really necessary for me to see the nurse beforehand, and said the surgeon will put it in the correct place, i will be sure and get a rough idea the morning of..its just temporary so its not really a big deal, i just hope they do the correct surgery on me! lol
 
oh ya and i am now clocking out of work for the last time for three months!! we have our ultrasound in about 30 min, and we will find out the gender of our baby!
my name is Isaac, 24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred

we will have our new baby January 25, 2010 :)


1st stepj pouch surgery is scheulded for sept 11, 2009! soon i will be med-free! Will have part two around November 11 if all goes well, dr said I will stay home from work for three months, oh and I'm getting laid off, last day of work is march 26, 2010, just enough time...


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 9/9/2009 5:55 PM (GMT -6)   
Isaac,
I didn't see a nurse b4 hand either. My Dr. office told me the same thing.

I'm so anxious to hear about your baby!
What's the news!
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 9/9/2009 6:12 PM (GMT -6)   
I would still try and insist on seeing an ostomy nurse beforehand. Surgeons DON'T always know the best place on your body for you, more often it's just the place that's easiest for them to put it (sadly, a lot of the time this is on or above the waist line, esp for men, which is what you DO NOT want). The stoma nurse will watch you standing, sitting, take into account the type of clothes you wear etc and work out the best place for you!
 
"just temporary so its not really a big deal"
 
Ummm... yes it is a big deal, otherwise you may be setting yourself up for a few months of misery with leaking bags due to uneven skin folds, unable to wear your clothes properly due to the bag interfering with your waist line, etc.
 
 
Ileostomy for 33 years due to UC

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!


ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 9/9/2009 10:40 PM (GMT -6)   
oh good point! see i am not up on all the ostomy things yet... thanks for the advice, the hospital said the ostomy nurse is on call, i will call tomorrow and see if i can see her friday
my name is Isaac, 24 year old guy, UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred

we will have our new baby January 25, 2010 :)


1st stepj pouch surgery is scheulded for sept 11, 2009! soon i will be med-free! Will have part two around November 11 if all goes well, dr said I will stay home from work for three months, oh and I'm getting laid off, last day of work is march 26, 2010, just enough time...


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/11/2009 7:10 AM (GMT -6)   
well you are probably getting healthy right now! but GOOD LUCK!!!
Keep us posted!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 9/13/2009 2:11 AM (GMT -6)   
best of luck to you! let us know how ur feeling when ur up to it. i am scheduled for my j pouch for oct 5th and i am getting so anxious.
Nutz
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  Currently taking 6MP 50mg, Prednisone 30mg, Lialda 2 tabs/day, Colocort enemas, Canasa suppositories


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/13/2009 4:09 AM (GMT -6)   
hope everything went well, best of luck to you and get better soon!!

Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis

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