My forth day in hospital, I love my ielostomy!!

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ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 9/14/2009 4:45 AM (GMT -6)   
Sorry bout my first post guys pushin down on the ole button quite bit Friday and saturday was very panful.. I had SO many people come in the waiting room for me, the surg was two hours and recovery was five because they couldn't get my blood pressure and pain down, so. Was fnally wheeled into my room with about twenty friends and family there and I had tears in my eyes cause the pain level wasstill at nine, everone started crying, even my dad... I gets better tho, Saturday afternoon. Was feeling better and I had a steady flow of visitors, some people I hadn't seen in ears, and morphine makes me real comfortable so. Was making all knds of poop jokes and showing everyone my scar and bag, I am really fascinated by it:)... And everyne was righmy surgeon, Craig johnson is EXELnT! Becomes by everyday and he couldn't come on Sunday nightso he calls up here to make sure I was ok and if I needed him, I would love to show u guys m scar, whas the bes way? I can email it to u...
Anyways sorr for the long story but it's 5:30 in the morning and I as just woken up for my vitals and my beautiful wifeis sleepingnext to my bed on the couch and I am waiting on a few more morphine pumps before I go back to sleep. My mom and wife have been staying here since Rebekah is pregnant my mom ants to let her sleep while she takes care of my nightime needs. Mom had to go to somethi g last night so is just Rebekah and I. This is the firsttime we have slept alone since being married for almost two years.. Aww.. By anyways that's more my personal goings on. Should write more about the surgery stuff..
The first day the bag just had sme blood in it and it was leaking because someone didn't know how to do it and the bag was adheased over my stichs gauz. We replaced that and still nothing came out Saturday, but th STM really starts to wake up sunday and this mojnday morning, the RN's have emptied the bag three r four times and. Really wish the would let me cause the are real messy about it, I think I have read and waxhes nough videos to firgure out the right way to to it, it is the fold up velcrow kind and it is kinda hard to get open at the end. Gosh his got long sorr guys, will post more and sorr if. Repeat myself, I'm alittle TWI or PWI lol, oh and Internet it ten dollars a day here so I optesto just use my iPhone, I still always gave accessto email and the forum on here :) thanks for all your love
my name is Isaac, 24 year old guy,Jehovah's witness UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred

we will have our new baby boy January 25, 2010 :)


Had first of to surgeres, sept 11, 2009! Had proctocolectomy with temp ielo, i will be med-free! Will have part two around November 11 if all goes well, dr said I will stay home from work for three months, oh and I'm getting laid off, last day of work is march 26, 2010, just enough time...

Post Edited (ruissarr) : 9/14/2009 4:48:12 AM (GMT-6)


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/14/2009 5:11 AM (GMT -6)   
Glad you like it!!! Make sure you have some time quiet time...you did just have major surgery and need time to rest:)

geminisunset
Regular Member


Date Joined Sep 2008
Total Posts : 153
   Posted 9/14/2009 6:55 AM (GMT -6)   
Glad you are doing well. It gets better every day, so hang in there and keep resting.
GeminiSunset
Diagnosed w/IBS: Oct. 2006  Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
1st Surgery for J-Pouch: May 22, 2009 - need 2 more surgeries, dates TBD
Medications: Canasa Rowasa enemas; Lialda; Prednisone; Protonix; Remicade; Zyrtec-D; Toprolvarious pain meds post-surgery;
Supplements: Women's One-a-day multi-vitamin; Super B-complex
Current Status: Aug, 2009 - Recovering from the 1st stage of J-Pouch surgery; temp ileostomy; 2 more surgeries to go as there was too much damage to create a J-pouch


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 9/14/2009 8:58 AM (GMT -6)   
Wow you are so positive. Glad the operation went well.

Do get some rest or you will pay later. Glad there are so many wishing you well. I know the best thing about my surgery was reconnecting with my family who I hadn't talked to in years.

Your wife sounds like quite the support. You will have your time to help her too.

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 9/14/2009 11:55 AM (GMT -6)   
I am so glad everything has gone well. The pain will decrease daily. Please take it really slowly. I am going to mention again to take the food really slowly, CHEW CHEW CHEW and WALK WALK WALK! Doesn't feel great to be rid of that crappy colon?! turn

ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 9/14/2009 4:44 PM (GMT -6)   
YaHAHa. Crappy colon gone! It's weird!! I hurt today just cause of gas and sore and stuff but I rolled on my side and my wife rubbed my back and all the gas came out in the bag and I felt immediately better. Also th ostomy nurse came by today and my frond that has an ileostomy was there too, I feel so great now! Ver happy and all my friends and family are always up here and inwas worrid about missing work, I have a three week waiting period before my short term disablility kicks in and my brother sold my extra car that I have been trying to sell!! And bab is healthy and growing so it's just a plain ole good week:)
my name is Isaac, 24 year old guy,Jehovah's witness UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred

we will have our new baby boy January 25, 2010 :)


Had first of to surgeres, sept 11, 2009! Had proctocolectomy with temp ielo, i will be med-free! Will have part two around November 11 if all goes well, dr said I will stay home from work for three months, oh and I'm getting laid off, last day of work is march 26, 2010, just enough time...


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 9/14/2009 5:00 PM (GMT -6)   
That sound terrific, Isaac! I'm so glad you are doing well. I don't know how spouses do it. yours sounds like she's doing a great job.
I have to admit that I'm enjoying your drug influenced posts! So hilarious. I've been reading them aloud to my husband and we are having a great laugh!!
It's great to hear things are going so well and that you are ready to change the bag for yourself. That's something I had a hard time trusting I could do, but when I did, things got so much easier!
Keep up the good work!
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 9/14/2009 7:40 PM (GMT -6)   
Wow Isaac! It is so refreshing to read how well you are doing! I am so happy for you, your wife and the little one on the way! Take good care of yourself and try not to overdo it!
Nutz
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  Currently taking 6MP 50mg, Prednisone 30mg, Lialda 2 tabs/day, Colocort enemas, Canasa suppositories


ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 9/23/2009 9:54 AM (GMT -6)   
Isaac - Just wondering how you're doing. Are you home from the hospital? How are things going? I hope all is well.
Ducridr - 35 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

First of 3 surgery's to get a j-pouch on 8/21/2009!!!


damagedgoods41
Regular Member


Date Joined Sep 2009
Total Posts : 377
   Posted 10/27/2009 1:52 AM (GMT -6)   
:-)  hello Isaac just read ur posts and would like to say that i hope everything goes very well for you with ur recovery. Keep up the positive attitute as it help's imensly. You seem very courageous about it all and i take my hat off to you for that. I would also like to say i hope that you and your wife have a healthy & beautiful baby. Keep up the good work, BUT make sure you get some REST as if you do to much to soon it will slow everything down.
 
best wishes to you,
 
beverley.c. smilewinkgrin
 
p.s. make sure you chew all of your food until it becomes mush!!!!!  lol
diagnosed with C in 2001.
colorectal anastamosis 2001.
surgery went horribly wrong,swab left inside,emergency surgery 2001.
total colectomy & ileostomy 2001.
surgical complication's-abcess,more surgery 2001.
more complication's-stitches come apart inside and ended up having more surgery and blood transfusion. 2001.
infection at lap site,another abcess. 2001.
i spent 12mths in Cabrini Private Hospital in Melbourne.
1993 diagnosed with endometriosis,then age 27yrs had radical hysterectomy then 2 mths later lost both ovaries.
2005. bi-lateral mastectomy,heart attack on the table,also contracted MRSA in coronary care unit,had staph for about 12mths. pic line for 6 mths for venus access,for daily antibiotics.
also suffer from chronic depression which is mostly caused by my lack of hormone's.
I AM CURRENTLY ON AVANZA FOR MY DEPRESSION!!!!!!!


ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 10/27/2009 7:01 AM (GMT -6)   
well thanks guys for keepin up with me, i am off the pain pills for now, so this is really me LOL. i posted last night an update u can read it so i dont type it again its titled "sorry its been so long surg scheduled for nov 9" or somethin like that...
baby is doing well, she just started her third trimester, next week will be 7 months.. oh and my takedown surg is nov 9, we start our childbirth classes nov 17, i hope i feel like going, im not really sure what to expect as far as recovery, i read last night that alot of you had bad gas pains with the takedown surg...
my name is Isaac, 24 year old guy,Jehovah's witness UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred

we will have our new baby boy January 25, 2010 :)


Had first of to surgeres, sept 11, 2009! Had proctocolectomy with temp ielo, i will be med-free! oh and I'm getting laid off, last day of work is march 26, 2010, just enough time...
 
ileostomy takedown scheduled for november 9

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