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crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 9/19/2009 2:49 PM (GMT -6)   
H, thanks so much for replying to my post. i to have a end and not a loop ileo could you just give me a brief account of what it involved if you know? also did you have to do any prep beforehand? how long was your stay in hossy? sorry for all the questions but i'm one of those peeps that likes to know everything beforehand and not going into the unknown!! smilewinkgrin   thanks so much Bevx
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal sheduled for Nov09 Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid, Back on citalopram 40mg (for Anxiety.)


Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 9/20/2009 2:29 PM (GMT -6)   
Hi Crohnielass
 
For me I was told that as it was an end ileostomy they would have to open my mid line scar and I would have to have an epidural and would be in hospital for 10 days at least.  They obviously never looked at their notes because when I went in they told me the surgeon had sewn the other side where they could get to it through the ostomy site.  Therefore I never had an epidural just morphine.  I surprisingly didn't have to do any prep at all I was told to just not eat anything after midnight the night before my op. 
 
The operation lasts for about 1 hour.  When I came round I was in a bit of pain but I was determined to get up as soon as possible so they took me off the morphine quite quickly as it made me spaced out (not enjoyable for me unfortunately haha).  I can't quite remember when I was put on soft foods like icecream and soup I'm sure it was the next day.   2 days later I had to go to the loo but it wasn't anywhere near as bad as I'd thought.  I walked an awful lot as I was determined to get out and get better.  I was discharged on the 4th day.  I've never suffered from the butt burn I've read about
 
I was told to eat what I liked but I stuck to a simple diet for 2 weeks.  Then I was given imodium to take as I please, I only really take it if I'm going out just to give me the confidence.  I have to say I had a fair bit of pain for the first few weeks but nothing strong pain killers didn't take care of it certainly didn't make life worse I think it's more the fear of what if somethings wrong as the threads I've read haven't really mentioned pain.  I feel fantastic now and can jump around like a spring chicken which is fortunate as I have a 3 year old son haha.  Just the relief of not waiting for the surgery makes any pain go away I'd worked myself up into quite a frenzy about it but now you wouldn't believe I've been through anything.
 
If there's anything at all I might help you with don't hesitate to write I'l be wanting to know how you got on :) Good luck! x
 
 
36 year old single mum to a 2.5 year old son
Suspected Crohns when 10 years ago had a very painful rectal abscess
Diagnosed with Crohns desease properly 6 years ago
2008 developed fistula bowel perforated onto bladder resulting in temporary ileostomy
hopefully a reversal around March 2009.
Actually reversed July 2009.


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 9/21/2009 11:26 AM (GMT -6)   
Hi lass, thanks so much for the info, i will probably be calling for you nearer the time with loads of questions.  I see my surgeon on 2nd Nov and he is giving me a date when he will do it he chooses and books his own operattions so it could be a few days after seeing him or a week or two that i'll get it done the sooner the better!! smilewinkgrin thanks again i will stay in touch Bev x

Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal sheduled for Nov09 Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid, Back on citalopram 40mg (for Anxiety.)


ginamia
New Member


Date Joined Mar 2011
Total Posts : 3
   Posted 3/7/2011 8:28 AM (GMT -6)   
I can not poop with any laxatives but 15 senna a day and after 45 on the third day I go alittle.  My dr said to make friends with a transplant surgeon. I am a nurse. I have inertia after the sitz.  do you really lose any weight after all of this and will i no longer look pregnant d/t constipation
 I just want to poop. It can't be healthy to have stool in you for 21 days was my last bout and I was hospitalized with an obstruction. I feel if I won't let garbage sit in my house fo 5 days why would I leave all that crap in my intestines for 21 please help
 

Post Edited (ginamia) : 3/7/2011 7:31:42 AM (GMT-7)

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