Help with ileostomy supplies

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HelpingSIS
New Member


Date Joined Sep 2009
Total Posts : 1
   Posted 9/23/2009 4:49 PM (GMT -6)   
My sister is ill with cancer and can longer work to purchase her ileostomy supplies. She has no insurance we are trying to get her SSI in the interim does anyone know a place where we can get "inexpensive" supplies. They are really expensive and with everything else....its alot. Pharmacies in our area look at us like we are crazy by the way they have no earthly idea what I am talking about when I say ileostomy so we have been getting them from one in particular that says they can no longer order them!!! UGH!! 
 
Suggestions??
 
Thanks
HelpingSIS
 

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/23/2009 6:10 PM (GMT -6)   
well she can order samples, and get a few that way.
And sometimes the ET nurse will have some samples, or they might know of someone who just had a takedown and had leftover stuff.
And someone on here just posted abotu some leftover supplies, and also there was a website named where you could get stuff cheap. Or maybe try UOAA.org (or maybe .com) they have alot of stuff on there.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/23/2009 6:13 PM (GMT -6)   
here is the post with the free supplies

http://www.healingwell.com/community/default.aspx?f=33&m=1578126
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/24/2009 5:03 AM (GMT -6)   
Check with your local ostomy association/american cancer society...they may have a local program that can help you. If you purchase your supplies through a company that does not take insurance your prices will be significantly cheaper. If you go to www.UOAA.org you can find a list of the suppliers and I think there is even an article on that site that discusses finding cheap ostomy supplies. You will probably find better prices on line than at local pharmacies, too.

Welcome to the forum!

ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 9/24/2009 3:14 PM (GMT -6)   
I would also check w/ her GI/surgeon's office and see if they have any recommendations on where you can get supplies cheap/free. They might also be able to provide some samples for her to use. You can also check w/ the company that makes her supplies - maybe they have a program to help provide supplies to people that can't afford them.
Ducridr - 35 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

First of 3 surgery's to get a j-pouch on 8/21/2009!!!


Running Time
New Member


Date Joined Sep 2009
Total Posts : 3
   Posted 9/24/2009 4:00 PM (GMT -6)   
Hi Helpingsis,

I have just been reading posts and saw yours. This is my first post. I have insurance but it doesn't cover medical supplies. I found a group of nurses (3) that formed an organization to help with supplies. They only charge for shipping and handling. I dealt with Barbara who is very familiar with ostomy supplies and by the way very nice. There phone number is 877-678-6690 and there web-site is http://www.ostogroup.org/ Hope this helps, if you have any questions, please let me know......Joe

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/24/2009 7:11 PM (GMT -6)   
WOW turn Joe, that site is AWESOME and will certainly be able to help some people here! Welcome to the forum, too!

Running Time
New Member


Date Joined Sep 2009
Total Posts : 3
   Posted 9/25/2009 6:05 AM (GMT -6)   
Thanks for the welcome, Ohio76 wink   Great Site
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