New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 9/24/2009 12:38 AM (GMT -6)   
I hope my stoma has settled to a permanent size. THink 7 weeks is long enough to know?

I have two bumps, on either side of the stoma. I don't know whether to cover them with paste or leave them open as part of stoma? I have had pain from this D thing since I got it. Then there is a spot that seems like a stitch is sticking out. Anybody have that happen?

Wish the pain would stop. I see the surgeon again on the 28th but last time he didn't even look at the stoma. Don't they usually want to see how it's looking? Didn't even ask about it last visit with the staples coming out. Anyone have swine flu with a ileostomy? That seems scary. There have been a number of cases around where I live and then I find out a friend has it. I am staying far away for now.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/24/2009 4:57 AM (GMT -6)   
Trigirl--I may still change, but it is probably settled down now.

Have you tried the Convatec Moldables? They would turtleneck around them (they are skin right?) so you wouldn't have to think twice about it:) Your surgeon should take that stitch out at your next visit...I've had a few of those removed over the years and it is painless! As far as your doc looking at things...he/she SHOULD (at least mine ALWAYS does) but I'd feel better about your situation if the WOC Nurse was at least looking at it.

I don't worry about the flu...any of them...I practice a lot of hand washing and avoid touching public door with my hands!!! Not the perfect way to avoid it, but I know it helps...I think it comes from years of immunosuppresent use...when even the smallest bug could make me REALLY sick:(

Let us know how the follow up goes on the 28th!

ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 9/24/2009 3:24 PM (GMT -6)   
Trigirl - I just had my 1 month checkup w/ my surgeon on Tuesday. He didn't look at the stoma since the stoma nurse was going to look at it right after my appt w/ him. Also - my stoma nurse took out most of my stitches. I'm still using a barrier around the stoma because it's not even with my skin...yet (*fingers crossed*).
Ducridr - 35 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

First of 3 surgery's to get a j-pouch on 8/21/2009!!!


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 9/24/2009 11:08 PM (GMT -6)   
OHIO76-I just got a sample of the Convatec moldable today and will put it on tomorrow. I would love this to be some kind of help but I sure don't like the size of the bags they have available for it. They are huge. I like the small Hollister ones for size w/vent in them. Is there any that have it all? Good fit, small bags and good vents?

I don't know if the bumps are skin or intestine? That's why I thought someone would look at things after surgery.
I go to my Dr's office downtown and the ET nurse is very much further away, so haven't seen one since the surgery. Guess I need to bite the bullet and make an appointment with one.

Ducridr- what is a barrier? My stoma isn't even with my skin!? It sticks way up, higher than skin level.

Thanks you guys for sharing.

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 9/28/2009 12:05 PM (GMT -6)   
So went to the Dr.'s this morning.

I had a stitch that was sticking out of my skin and irritated from the flange moving around on top of it. I begged him to cut it out. He did. But he had said the ET nurse could do it.(Didn't want that)

He said the bumps were granulated tissue that builds up from irritation. They are not stoma tissue so I should keep it covered and hope they go away. Here I had been cutting the flanges to fit around them so they were exposed to all the bad stuff.

The whole outing felt exhausting and now I am going to bed. Maybe for the rest of the day. I just can't seem to function well for very long in a day. It is very windy and brisk outside so a warm blanket and sleep will numb it all.

ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 9/28/2009 4:36 PM (GMT -6)   
trigirl - Sorry for the delayed reply. I had a busy weekend. The barrier that I use is the Hollister Adapt ring. I take a portion of it and form it into a ring that I put on the bottom of the wafer around the hole I cut before I put the wafer on. I also take a small piece and turn it into a snake roll to fill in a crease that I now have following surgery. Some people use Eakin seals or barrier cream. Basically, it fills in the dips and makes it so that the wafer goes on closer to flat and also helps protect the skin around the stoma.

I have some potentially good news for you. I got switched to a Convatec wafer during my visit to the stoma nurse last week due to skin issues. It's not the moldable but hopefully yours has the same "tupperware" connection. I can connect my Hollister bag (18282 - short, beige, w/ filter) to the Convatec wafer. I had to push hard to get it on and so I put it on the wafer before I put the wafer on me, a process that was recommended by the nurse anyway since it's not a floating flange, but it fit!! I've had no leaks since I put it on Saturday morning. I wouldn't want to change my bag in between wafer changes w/ this setup right now b/c my my abdomen is still sensitive and I'm guessing it would hurt to push that hard on it to get the new bag on. I'm with you, I am enjoying having the filter back (the gas buildup in the Convatec bag was annoying) and not having the long bag (my thighs are thanking me - no more rubbing). I know that Convatec does have a shorter bag but the one my nurse showed me used a clip for closure and I'm just not comfortable with the thought of a bag w/ a clip at this point. I like velcro.

Hopefully with the stitch out and the wafer cut to the right size the granulated tissue will heal and you will feel better. Good luck!

I think you must have the same weather I'm having - it's just good weather to sleep in. I don't feel motivated to do anything today...
Ducridr - 35 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

First of 3 surgery's to get a j-pouch on 8/21/2009!!!


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 9/28/2009 5:05 PM (GMT -6)   
Thanks for the reply. I will check out the convatec wafer when I go into the store this week. I just don't want to hurt any more.
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, August 21, 2017 3:53 PM (GMT -6)
There are a total of 2,858,149 posts in 313,605 threads.
View Active Threads


Who's Online
This forum has 155202 registered members. Please welcome our newest member, karinsar.
639 Guest(s), 8 Registered Member(s) are currently online.  Details
PhotoGirl, Malshay, rcrawford, lyme2015, mareish, Janus, tiredofallthispoop, Jinna


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer