Embarrassing moment trying new moldable appliance

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Trigirl
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Date Joined Jan 2006
Total Posts : 768
   Posted 9/27/2009 12:25 AM (GMT -6)   
I got one sample of the moldable flange with it's ugly bag. I was so excited. I opened the hole and put it on. Carefully I pushed the edges around the sides of the stoma. I had a hard time putting the bag on the rim part, but finally got it. Dressed in my brand new blouse and favorite fancy skirt to go to a wedding reception. Stockings, high heels, jewelry, make-up, the works. Decked out as I ever get.

Now this turns into my most embarrassing moment story. I hadn't eaten anything since early afternoon and thought once that came thru things would be good. Well, I felt this warm flow coming out and remembered what someone had said about these bags that are just plastic and how they can fool you because they feel warm coming out but it's OK, nothing is leaking. The feeling subsided and I danced and got brave and had cranberry cocktail. When the bag started to feel kind of full, I didn't want it to stick out from front of skirt, so I went to the bathroom.

I had leaked all over!! Only reason I didn't see it was the plaid print of the skirt. My underwear got it, my slip got it, my panty hose got it, my new Expensive blouse got it and there was just a little damp on the skirt! There was a side leak out the flange! Lucky,lucky it was only liquid that seemed to have escaped. Trying to get the other goo out of the bag was difficult. I had to clean up and go back to the party because there was no way I could explain why I wanted to just leave in the middle of my husband seeing friends he'd known and liked 35 years earlier.

Don't think it smelled at all. Nobody said anything or made funny faces. I stayed in the bathroom for a while hiding and then tried to keep away from people when I came out. I had an hour before we could leave. Couldn't laugh at the moment, but I did think of all your funny stories and good humor. Didn't cry about this either, so figured I might get better attitude someday.

I came home and cleaned up. I am ready for all this to get better! :s I can hardly wait to get thru tomorrow and go to the Surgeon on Monday at 8:40 am. I feel like yelling at him. Yeah that's dumb, it's not his fault. I just want an appliance that fits and it doesn't hurt all the time. I mean it, it hurts all the time. I guess I could take more pain killers but there is a "too much".

Should I have used paste with the moldable? Skin to stoma edge is hurting bitterly. That's where the bumps are. I tried to keep the flange off as long as possible, then needed to get ready for bed. Can't sleep so here I am complaining. Not sure if I want to even try the moldable again.

Hope you guys are all good. Seems the site has been quiet lately.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/27/2009 12:09 PM (GMT -6)   
well the first thing to remember is never change right before you go somewhere like that!!!
Probably shoudl have used some paste.
Im not sure about the bumps though.
But hey you handled that well and thats awesome!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/28/2009 6:51 AM (GMT -6)   
Congrats on handling that so well!!!

summerstorm is right...always try new appliances when you'll be a home:)

I'd use an Eakin Seal, too. Is the size of the moldable the right one for you?

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/28/2009 10:46 AM (GMT -6)   
yes and not even when trying a new appliance, just anytime you change, make sure you arent fixing to go out somewhere important! Like for instance, i could wait until tomorrow to change my bag, but we are going to see *wait for it wait for it* ROB THOMAS!!!! and i dont want to be at a concert with a freshly applied bag which may or may not have been on correctly, lol. So ill do it today,and hopefully if there are any problems ill find out before then!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 9/28/2009 12:13 PM (GMT -6)   
How was the concert summerstorm? I guess I learned that lesson the hard way. The clothes washed out thankfully. No permanent marks except to my head.

Went to see ET nurse today after Dr. and she doesn't even know how to use moldables. She did give me some eakin seals to try and a different flange. One that dips in, is that what "concave" they talk about?

I think I want to get a hold of some companies to try a variety. This concave one is certainly bulky and adds more tightness to the belt line. My stoma is right on my belt line. I hate this all today. Goodnight.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/28/2009 3:00 PM (GMT -6)   
summerstorm--LUCKY YOU smilewinkgrin I love Rob Thomas...he's not my type, but I think he is HOT blush

Trigirl--yes, 'concave' is convexity. It helps to pull your stoma out so it empties into the pouch better. Not everyone needs it, but if your stoma is short or your stomach dips it can really help...I happen to have both of those, so I need it.

I think you can go onto Convatec's website for a video about the moldable. That is too bad that your WOC Nurse isn't familiar with them shakehead The best way to explain it is to 'roll' the edge back (it's okay if it is bigger than your stoma) apply and Eakin or Paste and apply. The 'rolled' area will spring back and surround the stoma (it's called turtlenecking) which will protect your skin and should help with your bumps, too.

Try it again...many of use have had a few mishaps before we figured things out, too!! Don't get discouraged scool

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/28/2009 5:24 PM (GMT -6)   
Trigirl-its tomorrow, and im sooo excited,lol. Ohio he is sooo hot, lol i just wanna go look at him.

What were you using before you tried the new bag?
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-

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