New Member - wondering what's ahead

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Thumper60
New Member


Date Joined Apr 2009
Total Posts : 15
   Posted 9/29/2009 8:23 AM (GMT -6)   
about a year ago, it seemed like my frequency between movements was getting longer and longer. For me, normal was 1-2 days, then 5+ days and the trend was worsening to the point where I wasn't able to go at all without taking something. Over the last 6 months, I've had 2 failed colonoscopies, an incomplete BE, a Virtual Colonoscopy, an MRI, 2 CAT scans and most recently a Sitz Marker test. I can identify a lot with the people in this group who have shared their stories. I wish I new what was in store for myself. The GI doc has told me that I have a problem with colonic inertia, which might have some connection to my diabetes. Also, I guess my sigmoid colon is 4x longer than the average. That's a lot of colon if I do my math right.
 
Any way, I've been referred to a surgeon, who I'll be meeting with tomorrow, to talk about doing a total colectomy. I don't know, does this sound extreme to anyone, or just me. I suppose if it's not doing it's job at all that would justify it.
 
I admit I'm a little nervous about the possibility. People on this site have been very open and honest about their expriences. I really appreciate it. I can see that everyone is a little different, so it's hard to say what my experience will be like. I lead a fairly active lifestyle (used to), but this has been a hindrance to doing all I want to do.
 
I don't know what else to say, just any encouraging words or prayers would sure be appreciated.
Peace

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1321
   Posted 9/29/2009 9:15 AM (GMT -6)   
Thumper, can you poop normally when the stool gets to the rectum? Have you tried miralax in large doses? What have you tried as far as laxatives go? I have colonic inertia and anismus which is an outlet problem. My life consists of going to work and coming home and sitting on the toilet which amounts to 24 hours per week I stay in the bathroom just trying to have a bm. It has ruined my life! Have you had a defecogram and an anal manometry test? Why did you fail the colonoscopy tests? Because my colon looked very normal when I had my colonoscopy. Tracy

Thumper60
New Member


Date Joined Apr 2009
Total Posts : 15
   Posted 9/29/2009 11:04 AM (GMT -6)   
Thanks for responding Tracy. I've been theough large does of miralax, go litely, lactulose, MOM, enemas, fiber, and even Amitiza. The stool doesn't "move" into the rectum. I passed the balloon expulsion test. When stool does make it to the rectum, I can get rid of it. Colonoscopies failed because there are 2 very severe loops the scope can't navigate through

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/29/2009 11:20 AM (GMT -6)   
so they are talking about giving you a ostomy?
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Thumper60
New Member


Date Joined Apr 2009
Total Posts : 15
   Posted 9/29/2009 11:27 AM (GMT -6)   
I'll find out tomorrow. If not, I guess they'll connect the cmall intectine to the rectum? and hope for the best

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/29/2009 1:17 PM (GMT -6)   
hi Thumper,
i had colonic inertia for 16 yrs. i couldnt go to the b/r w/o taking enorous amounts of laxatives and eventually those almost stopped working too. i had no other choice but to have my colon removed. like you, i was really scared and felt that it was extreme. took me a long time to actually feel i'm ready. well things gotten so worse that i had no other choice.

i tried everything till i made the decision. all kinds of nutritions, austheopath treatment, reflexology, colonics, nothing worked. went to 2 acupuncture therapists and they both said that in my case there's nothing they can offer me. every kind of therapists i went to thought they could save me from this surgery, but after treating me for a while, they all came to the same conclusion... that i should have surgery. at first i thought my whole life was ruined and it was hard for me to think about it, but now i'm happy i finally did it.

i had a total colectomy on Aug 16 of this yr (6 weeks ago) and so far i feel SO much better than before surgery. i go about 5-8 times a day and it feels SO good to be able to go on my own.

i cant tell you it was easy, cause it sure wasn't. it is a huge surgery and it was the hardest thing i ever did in my whole life, BUT it was worth it.

if you have any questions, please feel free to ask, i'll be happy to answer if i can.

i wish you all the best!

Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis


damagedgoods41
Regular Member


Date Joined Sep 2009
Total Posts : 377
   Posted 10/3/2009 6:57 PM (GMT -6)   
hi thumper just wishing you luck and best wishes for your up and coming op!!!!!!!
rose-bud40 :))))))))
diagnosed with C in 2001.
colorectal anastamosis 2001.
surgery went horribly wrong,swab left inside,emergency surgery 2001.
total colectomy & ileostomy 2001.
surgical complication's-abcess,more surgery 2001.
more complication's-stitches come apart inside and ended up having more surgery and blood transfusion. 2001.
infection at lap site,another abcess. 2001.
i spent 12mths in Cabrini Private Hospital in Melbourne.
THE ONLY MED'S I AM ON ARE AVANZA FOR CHRONIC DEPRESSION............


adaperl
New Member


Date Joined Oct 2009
Total Posts : 19
   Posted 10/10/2009 3:45 PM (GMT -6)   
Thumper, don't wait till its an emergency situation. I was never told about colonic inertia till i had a blockage so severe it almost killed me. If they didn't do surgery when they did, I would have went sepsi and that would have been the end. I had a total colectomy and for everyone out there, I live by Plum juice. Be careful at first, but if you get on a regular schedule with it, it is something natural that is a helping tool. Good luck !

Thumper60
New Member


Date Joined Apr 2009
Total Posts : 15
   Posted 10/10/2009 6:13 PM (GMT -6)   

Thanks for the responses, folks. I just learned the other day that instead of next month, they want to do it next week. So on Wed 10/14, they're going to do it. I don't think it's an emergency situation or they would have said something.

Anyway I guess 3-5 days in the hospital, 4-6 wks out of work. We'll see how it goes.. I'll be in touch

 


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 10/10/2009 11:43 PM (GMT -6)   
best of luck to you Thumper!! do keep us posted!!

Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 10/11/2009 11:34 AM (GMT -6)   
At least you don't have too long to worry about anything!! Good luck!!
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying

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