loose stooles after reversal....HELP

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trooper82
New Member


Date Joined Sep 2009
Total Posts : 6
   Posted 9/29/2009 1:53 PM (GMT -6)   
I had an Eliostomy due to Rectum Cancer and just had my reversal. I have continuous loose stools and it continues about 5 hours a day. My surgeon says I will have this problem for about a year, or less. I have only had the problem for about ten days and life is not good. I am taking two tablets of Imodium and one bag of konsyil in five ounces of water. Can anyone give any other advise, or what they are going through to crush this problems. if not, I will have the bag installed again. Life was simple then.

thelou

Texas

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/29/2009 4:21 PM (GMT -6)   
Are you watching your diet? You should be eating foods that will thicken things...rice, bananas or peanut butter are some that work, but it can be an individual thing as to what works for your body. When was your reversal surgery?

Is it 2 Imodium all day? That might not be enough to stop your issues at the moment. It takes everyone's body some time to adjust and learn its new way of working...the trick is to find the right foods and medication mixture that works until then!

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 9/29/2009 7:44 PM (GMT -6)   
Low Residue Diet!

Can't recommend this enough. I too had rectal cancer, 10 years ago, a temp ostomy and was experiencing so many bm's, each day, three during one meal. It was awful. I had no control over when I'd have a series of loose bm's either. I never knew when they'd hit, I joked they would come at regular intervals like labor pains (mothers would relate). Immodium didn't do much for me (still doesn't, 10 years into this).

I honestly did not see any sort of normalcy until I strictly ate only low residue diet foods.
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5691
   Posted 9/29/2009 7:56 PM (GMT -6)   
Trooper,
 
If you'll check on page 2 you will see that we gave you many suggestions to this same question you posed last week.
 
Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


sheshe
New Member


Date Joined Oct 2009
Total Posts : 1
   Posted 10/5/2009 6:49 PM (GMT -6)   
I also has an ostmy reversal sept 2nd.The surgeon told me to take lots of fiber,fiber,fiber so I take metamucil every afternoon and night not in the morning. I had diarrhea when I was in the hospital but when I came home and started on the metamucil it stoped.I still go often and not much at a time but it is the right texture. I know it will get better with patients and lots of cream.  

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 10/6/2009 6:31 PM (GMT -6)   
Marsky,
Do you still have to eat a low residue diet?
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 10/6/2009 8:31 PM (GMT -6)   
Chasbah - I'm on it bout 75% of the time. In the beginning I couldn't have any candy, nuts, seeds, many fresh fruits, etc. Then as time went on I began to add canned fruit. Then more fresh fruit. Now I can enjoy small portions of candy or cookies. I more or less eat smaller portions of plain foods. And repetitive ones but my body seems to need that - I begin my day with a plain english muffin, a banana, etc. I have a light lunch. My dinners vary though. If I weren't married I could see eating the same thing for dinner each night. But of course I can't subject my husband or family to that. But sometimes I have a chicken pot pie while I make a more complicated from scratch meal for them with whole grains and foods I shouldn't eat. My husband needs high fiber so I make him brown rice while I make myself a small pan of white rice. For one example. He needs to eat berries everyday, but I can only have a few (one or two), while he has a small bowlful with his yogurt.

I was raised on plain foods so it's not a big deal to me. But I always joke that if I preferred spicy foods, or more ethnic foods/entrees, I'd be out of luck. Yikes, my diet is very plain but it's okay. Again, I'm so used to eating this way by now it's second nature. My husband does joke that my diet is the white diet. So many of the foods I do eat are white. At first I did worry, long term, etc. But here I am 10 years cancer-free. It hasn't hurt me any to be on this diet. My doctor still agrees that I need to eat these foods. Possibly for the rest of my life. If so, I'm fine with that.

I did try the fiber route. I know for many patients a diet rich in fiber and fiber supplements help greatly, but for me it made things much worse. Metamucil type products induced bm's for 5 hours straight or more, fiber induced bm's during meals, I couldn't even finish a meal without having to use the bathroom. Since I had young children at the time I needed to eat foods that encouraged formed stool, not very loose stool. A low residue diet did just that. But again, what works for one person may not work for another.
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening

Post Edited (Marsky) : 10/6/2009 8:36:09 PM (GMT-6)


life scar
Regular Member


Date Joined Nov 2007
Total Posts : 35
   Posted 10/7/2009 1:28 AM (GMT -6)   
I had my reversal done 18 months ago and still have loose stools at least once a week,  especially after eating rich food, chocolate etc.  There is a product here in Australia called Gastro Stop which you take two capsules after a loose motion and it stops it almost immediately, great if you are going out and worried about getting caught short. eyes    I would still prefer to be "bag free" and just be careful of what I eat, especially in company as I too can go up to 5 or 6 times throughout a meal.

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 10/7/2009 5:03 AM (GMT -6)   
life scar - me too. I had a temp ostomy for 8 weeks, I managed quite nicely with it but it was a very different way to take care of bm's. I ended up staying home a lot. Of course I was also recovering from extremely painful colon surgery at the time. Not really up for going out for at least half that time. I was relieved to have the ostomy reversed.

Now that said, I could eat more fiber than I can now with an ostomy. My diet wasn't so restricted. But again, for now I'd rather relieve myself the way I was supposed to. Also our health insurance is greatly lacking, we would no doubt have to pay for all the supplies, etc. I'd rather like you just maintain things as they are and be careful what I eat.

I have noticed I can't always digest rich food either. I also had my GB removed during my resection so I'll never know if some of my trouble is b/c I'm existing w/o a GB or not. But I do not have the typical yellow bile bm's after my GB was removed. So I honestly don't think having it removed has caused me this amount of trouble. My surgeon keeps saying it's b/c I no longer have a sigmoid, there's no where internally for stool to collect, back up and then be released more slowly or spaced out through out my day. It just comes and comes, as long as I keep eating. Sigh.....

When I'm dining out with company I eat extremely light. I skip appetizers, salads and have a small entree sized meal. No coffee, no dessert (I'm a cheap date.....LOL If I were dating that is, happily married.) I order from the lunch section if possible or ask for a lunch portion, or just a side salad and cup of soup. I used to think others were staring at my plate thinking how odd that I eat so little. When they're ordering all of the above and large entrees to boot. I no longer worry about this. It took me a long time to feel very comfortable with how things are now for me. I also fib and say I'm not very hungry, had a large lunch, etc. Anything to distract them from wondering why I'm barely eating. And a few times, I haven't ordered any food, just a drink! This was before a musical concert. I knew I couldn't keep getting up from my seat to use a bathroom so I just had a very good breakfast and lunch that day, a mid-afternoon snack such as a banana and then didn't eat again until the following morning. I've done this more than once - skipping dinner completely. It really does work but you can't do this day in, day out, just for those social functions when you know that eating would make things much worse (another example, xmas day with my in-laws, that's 30 people for 1 or 2 bathrooms, need I say more? LOL).
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening

Post Edited (Marsky) : 10/7/2009 5:12:02 AM (GMT-6)


Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 10/7/2009 5:36 AM (GMT -6)   
Marsky,

I'm not sure if you read my post on the total colectomy thread, but if you told my doctor what you do about eating when you go out, or go to a concert, I think he'd say you have an eating disorder! Everytime I read about how we have to adjust our diets for various reasons, I get so ticked at him for telling me I had an eating disorder. According to him, not eating because of pain, etc, raises a red flag of a more serious problem, which is in our heads. He just can't understand why I'm still constipated after a TC and this is his excuse; it's MY problem. I have an eating disorder.... A week later, I'm more upset than I was the day he said that to me!!

Anyway, just wanted to say hi. You helped me so much several months ago to figure out what to eat after my TC when I was going alot; unfortunately I've REALLY slowed down, but it's still better than before surgery. I know your surgery was for a completely different reason, and I'm glad you're still doing so well!!

Janie

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 10/7/2009 6:21 AM (GMT -6)   
Janie - and I'd tell that doctor a thing or two in return!!! But it took me 10 long years to get this confident I have things pretty much understood and in control. At first I wanted to return to my former pre-cancer diet, whole wheat bread, bagels, muffins, cereals, fresh produce (lots of it), etc. I was a mess. Such a mess. Worse than a newborn baby's diapers too! If you're a mom then you know what I'm talking about (the mustard colored stools, the ones that clear out a room or make husbands run from the nursery!).....I was much worse than that. I went on the LRD without even checking with my doc too. Because one of his partners had said - eat anything I wanted, possibly 4 to 6 small meals, not 3, but other than that, "take Immodium and enjoy life". A colon surgeon said these very words to me - pop a pill. Yeah right. As if that magic pill will cure all.

No it was the wealth of info I gathered from online medical sites that saved me from being attached to a toilet. Mediconsult was the specific site that I learned about a LRD. It's no longer in operation (funding). I have silently thanked that kind person who suggested someone going thru chemo try a LRD on a short term basis. I clearly recall scanning the list of foods on a LRD and thinking - now if you're having 20+ bms a day and all out D too, why would you eat foods that irritate the gut? The very plain foods on a LRD make complete sense to me. Still do. My surgeon did agree with the diet, after contemplating how many times a day I was going back then and that I had two young children to care for at the time. He said - go on it, stay on it, you should find relief from that diet. I did and still do.

And here it is 10 years later, my cancer has not returned. Not even one benign polyp - can you believe that? So the diet hasn't been harmful. Food literally still goes right thru me but at least it's formed now. Thank goodness!

But I did smile at your comment about your doctor. Yes they are a real help to us at times but sometimes they are CLUELESS!
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening


smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 10/7/2009 3:48 PM (GMT -6)   
sheshe said...
I also has an ostmy reversal sept 2nd.The surgeon told me to take lots of fiber,fiber,fiber so I take metamucil every afternoon and night not in the morning. I had diarrhea when I was in the hospital but when I came home and started on the metamucil it stoped.I still go often and not much at a time but it is the right texture. I know it will get better with patients and lots of cream.



Hi Sheshe

I am a chinese woman have severe constipation, can you tell me how your life after removal of your colon ? How many times diraherra you have ?

Your feedback is appreciated.

thanks
smartly

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 10/7/2009 3:54 PM (GMT -6)   
smarty,
they had the surgery for either UC, crohns or cancer, it's not the same result for us with coloin inertia, you can't learn from their experience.

Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis

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