Joining the ranks...Nov.23!

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Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 10/12/2009 8:24 PM (GMT -6)   
Hi everyone,
My name is Allie and im on the Crohn's board but after much pushing and prodding my dr.'s have agreed that I need a colostomy. The surgery to have the permanent colostomy and removal of the colon to the rectum has been set for Nov.23 and I couldn't be more excited!
I have had Crohn's since 1999 and have run the gamut of surgeries, including resections, draining's, have had 3 strokes and have had 2 continuously draining (rectal) fistula's for 10 years. Back in 1998 I had a fissure and the Dr. cut my rectal muscle too much and since then I have had little to no control of my rear end. People with Crohn's have accidents all the time but Im a walking advert for depends! LOL.
To say Im absolutely over the moon to have a "portable poo bag" is putting it mildly. I want to shout at the top of my lungs to everyone how amazing this is for me.
I just wanted to say hello and ask everyone here if there is anything I should be aware of or any questions I should ask before hand? I have always got wonderful idea's/response's/suggestions from the Crohn's board and Im positive that as I start this new phase in my life I will find a wonderful fount of information from everyone on this forum!
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


BetterHalf
Regular Member


Date Joined Oct 2009
Total Posts : 39
   Posted 10/12/2009 11:59 PM (GMT -6)   
My husband is having his surgery on Thursday, October 15th. So, I don't have any advice for you. But, I posted "upcoming surgery" and got some terrific ideas on how to help my husband with his hospital stay!

Good luck to you, Allie!
Glenda

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 10/13/2009 8:11 AM (GMT -6)   
YAY forbeing healthy soon!
Its great to know you only have so much more time until you wont be sick anymore!

Some things to remember
Its normal to waiver in your decision, keep a pro and con list, your pros will be MUCH larger than your cons, lol. My con list was 3 things, my pro list was 2 pages.

Stuff to take to the hosptial, IPOD, computer, gameboy (if you like games) GAS-X (you dont want to have to wait on the dr to write a script for it, and with gas-x it works best if you take it before you get gas.
Go ahead and order some samples of bags now, that way they will be there when you get home. Dont freak when you see the nasty green stuff thats gonna be your orignal output, or the awful clear bag they put on you, when i saw that i was liek OMG what did i do??? Then after i started eating it got better. If they give you red food, your output will be red, and when i say red i mean RED, lol. Dont worry, you arent bleedign to death, lol. (i almost woke my husband up and told him to take me to teh hosptial after eating red velvet cake, i thought i was dying!)

Also when you go for your marking, wear your regular clothes, the stuff you wear most, that way you will get marked in a good spot for your clothes. If you wear sweatpants or something she will mark a good spot for those clothes.

If you have little kids, line up someone to help with them when you get home.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 10/13/2009 10:19 AM (GMT -6)   
What a wonderful attitude!! You are going to be fine. Welcome and there are so many wise people here. (I'm not one because I am new too) the suggestions are great for the hospital stay.
Keep us posted.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 10/13/2009 11:29 AM (GMT -6)   
So are you having an ileostomy or colostomy?

I wish you all of the best...
Jackie, 43
Pancolitis, DX October 06
Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- TBA


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/13/2009 4:24 PM (GMT -6)   
Welcome, Allie!

Everyone covered everything I was gonna say, so I just wanted to welcome you. I suffered with Crohn's for 7 years, so my heart goes out to you. After what you've been through, I think you're gonna love having an ostomy. I know I do! :-)

Take care,

Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 10/13/2009 6:36 PM (GMT -6)   
Thanks everyone!! Im not wavering in my decision in the least, in fact I am currently filling a spiral notebook with all the things im going to be able to do once I have the colostomy. One of the things....picking can's on the side of the highway. Honestly, I sometimes see people out there miles from a washroom and just shake my head in wonder! LOL.
Jackie, im having a colostomy.
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 10/13/2009 8:50 PM (GMT -6)   
its amazing the weird little things you will be so happy about, the first day i got to eat in the car without worrying about a bathroom, i cried with happiness, lol. How stupid of me,lol.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 10/13/2009 9:21 PM (GMT -6)   
Hi Allison,
You do have a great attitude, I am so happy that you will get your life back too. I also have crohns/colitis and was a walking add for depends as well, it was a horrible time in my life. I now have an ileostomy and it has given me back quality of life, I do have some issues with mine but I am getting there, my surgery was only early march then had second surgery in july for proctocolectomy. I thought crohns patients had ileostomy's, but then Im not sure what the difference is between a colostomy or ileostomy. I know colostomy is on the left side of the stomache and ileostomy is the right side and output is different as well but thats about all. I will have to do some more research lol. Anyway I am thrilled for you and know you will do great. take care and keep us posted,

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/14/2009 6:03 AM (GMT -6)   
The first time I slept through the night without having to get up to go every hour was amazing! I had no idea how sleep deprived I was. Oh, and shopping for groceries or clothes without having to run to the bathroom a couple of times is the best!! :-)

Your quality of life is going to improve by leaps and bounds. I'm so excited for you!!

Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/15/2009 5:09 AM (GMT -6)   
Allison--glad you came to meet us!! As someone who lived with three continuously draining rectal fistulas for 10 years (whew, that was a lot) you are GONNA LOVE life with an ostomy tongue tongue tongue

I knew I was "better" at about 6 months post op--one day I woke up and thought "WOW"!! I still find myself thinking I need to buy my butt supplies or take my meds...but then I snap out of it!!

Cheers to life without accidents!
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