Keeping Stoma area rash free?

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Sami'sMom
Regular Member


Date Joined Oct 2009
Total Posts : 32
   Posted 10/16/2009 11:49 PM (GMT -6)   
My 12yr old had a total colectomy in Feb of this year and now has an ileostomy. When she removes the flange it's always red and rashy looking. We originally thought she was allergic to the paste and switched to a strip paste but the area still looks inflamed.  She uses a powder on the skin if it is exposed. She's gotten better at cutting the stoma size on the flange but sometimes makes it a little big. She also hops in the bath to make it easier to remove the flange, so the area gets quite clean. Is there anything to help prevent this rash?


Mom to 5 special children
 14yr old- GAD, PTSD, ODD, LD
 12 yr old- Crohn's Disease-total Colectomy Feb 09, PTSD, Dystymia, JRA, Asthma
 11 yr old- Globally Developmentally Delayed, Low Cognitive Functioning, PTSD
 10 yr old(almost)- Epilepsy, Unspecified Social/Emotional Disorder, PTSD, LD
 32mth old-Bright and Happy

Post Edited (Sami'sMom) : 10/16/2009 11:54:17 PM (GMT-6)


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1243
   Posted 10/17/2009 3:12 AM (GMT -6)   
It may be that she's allergic to the wafer itself. Have you tried other brands? Have a look at the following sites and get as many free samples as you can:

www.coloplast.com
www.hollister.com
www.convatec.com
www.dansac.com

There are a few more manufacturers if you Google them :)

PS try not to use paste if the area is inflamed and excoriated - it has alcohol in it and will sting! Eakin Seals are my favourite - they have skin healing properties in them as well (available from Convatec in the US), but there are also Hollister Strips and Coloplast strips to try as well.

Good luck.
Ileostomy for 33 years due to UC

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 10/17/2009 11:38 AM (GMT -6)   
Shaz,

Been trying since surgery to keep stoma from leaking. Am growing bumps around edge and unfortunately have been using the paste. Did get some eakin seals but they didn't work well the one time I tried so will go after it again.

Thanks so much for the advice. I looked at all the sights too but couldn't get into some because I live in Canada. Will check into it more. I hate all this right now. Am depressed I guess. It hurts all the time. ET nurse newer than me at what to do. Plus they don't get how heavy concave flanges can be on 5 ft athlete. THey come off or leak every other day!!

Nurse said I just need to keep trying different ones. Your sights were wonderful to make it easy for me to get in contact. I am lousy on the internet. I end up in the craziest places looking up "ostomy" Didn't know they had special shoes for ostomates!!

Anyway- thanks again and have a wonderful weekend.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying


Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 10/17/2009 1:20 PM (GMT -6)   
hi, i got my stoma 12 days ago and so far my stoma looks ok and my skin around it. i use what the ET nurse calls a "doughnut" that stretches and gets placed just, just over the stoma with no skin showing whatsoever. then she makes sure my wafer is not too big - doesn't want skin to show so it doesn't get irritated. so far so good. there was a tiny bit of redness under the "doughnut" but she used adhesive remover to get rid of the little flakes and redness and it worked. good luck
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 10/17/2009 6:18 PM (GMT -6)   
Are the donut things Eakin seals? Do you put them on your skin to fit or on the wafer and then on the skin? I've been doing it all wrong? Or there are just different ways. I'll try that way.

Thanks for the idea!!!
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying


Sami'sMom
Regular Member


Date Joined Oct 2009
Total Posts : 32
   Posted 10/17/2009 7:33 PM (GMT -6)   
The ostomy supplies she uses are the New Image from Hollister and the strip paste is also from Coloplast. I don't know if I can get them to change as I believe they are the only ones covered. I get 100% coverage for her. 75% through Aids to Daily Living and the rest through my insurance plan. The strip paste has no alcohol in it because that is what they figured what was causing the allergy with the other paste. The Eakin Seals she uses as a dip paste to fill in the creases of her skin to prevent leakage. I never realized that she could use it as an actual seal paste.
 
Thank you for the websites. I will check them out and see what kind of samples I can get. Also I will talk to my dr to see if maybe they can change the supplies to see if that helps, then they can talk to the insurance to see if they can get special coverage.
 
I'm really glad I have found this site. It's helping me understand information that I feel like I've been drowning in the past 2 years.
 
Thank you


Mom to 5 special children
 14yr old- GAD, PTSD, ODD, LD
 12 yr old- Crohn's Disease-total Colectomy Feb 09, PTSD, Dystymia, JRA, Asthma
 11 yr old- Globally Developmentally Delayed, Low Cognitive Functioning, PTSD
 10 yr old(almost)- Epilepsy, Unspecified Social/Emotional Disorder, PTSD, LD
 32mth old-Bright and Happy

Post Edited (Sami'sMom) : 10/17/2009 11:47:18 PM (GMT-6)


ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 10/18/2009 10:55 AM (GMT -6)   
Is it possible that the adhesive isn't getting completely removed when she changes the wafer? I change in the shower with hot water and lots of cleaning but have found that without using something extra I can't get the adhesive to be totally removed. If I miss anything I end up with the skin where the adhesive was left being red and bumpy. Just as a note: I am allergic to the adhesive in plastic band-aids and plastic tape so my irritation may be coming from this but based on my limited experience so far I don't think it is. I have followed someone removal suggestion to push the skin away from the wafer rather than pull the wafer away from the skin and that has helped. I also have found that shaving the area where the wafer goes helps to eliminate the redness as the hair growing back in under the wafer seems to add to the irritation. Someone on one the sites that I read suggested shaving as that was something that his ostomy nurse had suggested to him and it worked. I figured - it can't hurt to try and so far it seems to be working. I still have some redness but nowhere near what I had in the beginning.

I also use a Hollister new image system without tape on the wafer but have tried (and may switch to) the Convatec durahesive wafer (the Hollister bags work with it - but no floating flange and you have to work really hard to get the bag on the flange. sad ) as the Convatec durahesive wafer is one of the gentlest on the skin according to my ostomy nurse. I got two of them from her and they came off much cleaner and easier when it was time to change and my skin did seem to like them better. The Hollister wafer always seems to have a couple of spots where it doesn't want to come off. The nurse said if my skin didn't clear up with the Convatec I would probably have to go to an adhesive-less system because it might just be an allergic reaction. So far I haven't taken that step as I'm trying the Hollister again with the cleaning off of the adhesive and shaving to see if that will allow me to stick with the floating flange of the Hollister system. I do use the Hollister adapt ring barrier - if she's getting irritated skin around the opening of her wafer I would agree that she should try using some of the barrier around the hole in the wafer to ensure that her skin is protected. I was instructed to do this every time I change as the barrier helps protect the skin.

Good luck! I hope you find a solution.
Ducridr - 35 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

First of 3 surgery's to get a j-pouch on 8/21/2009!!!

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