Total Colectomy

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Brian2442
New Member


Date Joined Oct 2009
Total Posts : 1
   Posted 10/31/2009 1:11 PM (GMT -6)   
First off I would like to tell a little about myself. My name is Brian and I am 34 yrs. old. I have just found out that I have Familial polyposis. It was recommended thay I get a total colectomy. My mother had colon cancer that spread to her liver and she passed away at the age of 54. I have a list of questions to ask my doc when I have my consult. I was wondering if anyone would be willing to offer advice or share the pros and cons from their surgery.
 
My areas of advice in need are:
 
A) Choosing between open or laparoopic surgery?
 
B) Having your small intestine attached to your rectum or having a J pouch made?
 
C) Colectomy vs. Colostomy
 
Any advice or pros/cons would greatly be appreciated.

Thumper60
New Member


Date Joined Apr 2009
Total Posts : 15
   Posted 10/31/2009 2:14 PM (GMT -6)   
Excellent questions! I just had a total colectomy 2 weeks ago. You may have a preference on open vs. laparoscopic, colostomy vs.jpouch etc, but I'm sure your surgeon will have important insight on what is best for your specific case. Tell him/her what you would prefer, but solicit his/her opinions and why recommends

julesy
New Member


Date Joined Nov 2009
Total Posts : 7
   Posted 11/11/2009 3:13 AM (GMT -6)   
HI bRIAN I AM NEW TO THIS SITE I HAD A SUB TOTAL COLECTOMY WITH ILEOANASTOMOSIS 12 MONTHS AGO. THIS MEANS THE RECTUM IS ATTATCHED TO THE SMALL INTESTINE. I HAD open SURGERY AS MY SURGEON FELT IT THE SAFER OPTION. IT IS NO WALK IN PARK, ALTHOUGH I COULD NOT TAKE ADVANTAGE OF ALL THE PAIN RELIEF OPTIONS, COULD NOT HAVE ANTI INFLAMMATORIES DUE TO ASTHMA OR AN EPIDURAL DUE TO SPINAL PROBLEMS I WOULD SUGGEST HAVING ALL THE PAIN RELIEF OFFERED. I HAD AN ILEUS WHICH MEANS THE BOWEL WOULD NOT WAKE UP COS OF ALL THE MORPHINE. THIS DELAYED MY RECOVERY. ON THE POSITIVE SIDE IT TOOK ME 6 MONTHS TO RECOVER BUT I HAVE OTHER HEALTH PROBLEMS TOO I AM SO GLAD HAD THIS SURGERY AND GOT AWAY WITHOUT HAVING AN ILEOSTOMY BAG. THE FIRST COUPLE OF MONTHS about 20 BM A DAY BUT NOW I FEEL BETTER THAN I HAVE FOR YEARS I AM MUCH STRONGER. IT WAS DIFFICULT TO GO THROUGH AT THE TIME BUT VERY WORTH IT. GOOD LUCK.

coastfishin
Regular Member


Date Joined Jun 2009
Total Posts : 213
   Posted 11/11/2009 7:02 AM (GMT -6)   
Brian,

I had a total colectomy with the ileorectal anastomosis on October 26th. I had it done lap and it went well. The recovery is rough I will not sugar coat it. I spent 7 days in the hospital and it was painful. Even with pain medications it was rough. Now I am doing better and do not need pain meds. I do have to go to the bathroom about 10-15 times a day. Eating is a trial and error thing, and I have lost a lot of weight. I feel somewhat better as each day passes. The recovery takes awhile so don't expect to just bounce back immediately. The bm's should also slow down as the small intestine heals and realizes its new job. Just make sure you ask lots of questions and don't let the doctor rush out the door before he/she answers all your questions.

Good Luck
Jen
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