Why is this? Question about exploding bag

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2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 11/2/2009 9:46 AM (GMT -6)   
Hi everyone
 
Its been a while.  I just wondered why after my evening meal my bag still fills up even in the early hours of the morning.  I eat around 7ish and i may have a small snack but don't eat after 9.30 usually.  Around three or four times a week i have to get up and empty as it is nearly exploding off my stomach. 
 
Now i dont have this problem with constant filling during the day - food has usually gone through completely after 2 hours.  Do you think it is becasue i eat a lot more in the evening or do you think it is becasue my digestion is weaker by the evening? 
 
It just unnerves me to think that, when i have my ileostomy closed, i will be endlessly on the loo at night.  couldnt stand that.
 
thanks all and hope you are all well. xx
Karen - 47 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
March 2009: Loop Ileostomy - awaiting reversal ..hohum..
 
 


Alittlelighter34
Regular Member


Date Joined Nov 2009
Total Posts : 24
   Posted 11/2/2009 9:58 AM (GMT -6)   
I was advised by my surgeon to not eat as much as night. You empty your bag during the day, but during the night, that can be 7-8 hours of not emptying it which causes it to get really full. Try eating less for dinner and maybe a little earlier. Also, don't eat things that slow down your digestion (peanut butter, etc.) as this will delay the digestion and things to empty into the bag long after 2 hours. Thats just my 2 cents. I hope that helps, and hang in there! :-)

Frank R.
10 years of Indeterminate Colitis, and total procto-colectomy with ileostomy on 10/16/09! SO far so good!


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 11/2/2009 10:12 AM (GMT -6)   
I've had the same problem...and I was breathing through my mouth while I slept shakehead If you can retrain yourself to breath through your nose...yes, it can be done...I bet you'll find great improvement!!

I try not to eat late, but I usually have dinner between 7-8pm, empty before bed around 10pm and sleep through the night smilewinkgrin BUT I had many nights that I was up 2-3 times to empty air...I was SO happy when my WOCN clued me in!!!!

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 11/2/2009 12:52 PM (GMT -6)   
 yes you have a very good point i too have this problem around 3am i struggle out of my bed with what looks like a balloon attached to my side i can't even sit up coz i know it will probably pop off!!! through the day i may only empty it twice but night is abit of a nightmare. i think i shall try some suggestions you have been given below. thanx guys Bev x   
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)


privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 11/2/2009 7:44 PM (GMT -6)   
I have the same problem and I try to eat dinner between 6 and 6:30 and usually don't eat a snack.  My largest meal seems to be breakfast and I eat the most then as well.  The rest of the day my output is really thick-- I almost can't get it out of the bag and it looks like formed stool in the toilet.  I have leakage problems and that would usually happen about 2-3 in the morning so I would shower and clean up then.  I'm watery in the night and in the morning.  I think this stuff is crazy and different for each person. 
 
Cathy

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 11/3/2009 3:34 AM (GMT -6)   
Thanks guys for your response and advice - yes seems we are all different.  I probably do sleep with mouth open at time as it is very dry sometimes. 
 
I will try to eat less at night and earlier - that might help - it is a bit of a juggling act really.
 
as for leaks - i dont have them now i have the convex bags which is immensely helpful.  Yes i get the very thick output at times.  its knowing what has caused the watery output -  I am almost 100% sure that eating too few carbs causes watery output.
Karen - 47 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
March 2009: Loop Ileostomy - awaiting reversal ..hohum..
 
 


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 11/3/2009 4:52 AM (GMT -6)   
Sp here I am at 3:47 am, up to empty my bag and can't get back to sleep. My bag bag is just like that! ALmost exploding when I wake up. I think it is half air. Will have to try the breathing change and not eating after 8 or 9.

If I go for a walk after dinner I have less to worry about at this hour. Just can't get out all the time lately.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 11/3/2009 8:13 AM (GMT -6)   
I found that I eat more at dinner and when I eat fast it seems to fill up over night. Maybe try a tums or beano to help with any air that fills the bag? I also try to eat really early at like 5:30 or 6pm... But that just works for me and my family.

:) Good luck!
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Check out my blog: shlookshlies.blogspot.com/


2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 11/3/2009 9:50 AM (GMT -6)   
THANKS liza
Karen - 47 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
March 2009: Loop Ileostomy - awaiting reversal ..hohum..
 
 


Alittlelighter34
Regular Member


Date Joined Nov 2009
Total Posts : 24
   Posted 11/11/2009 7:10 PM (GMT -6)   
you are simply eating too much too late. Try making lunch your large meal and see if that helps. I eat as little as possible at night so that I don't have to wake up at 3:00am to empty the bag. It's a drag, I know, but we all have to get used to it. :-)

Frank
10 years of Indeterminate Colitis, and total procto-colectomy with ileostomy on 10/16/09! SO far so good!


Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 11/11/2009 8:25 PM (GMT -6)   
I eat a large breakfast a medium lunch and a VERY light dinner. usually not later than 3 or 4 in the afternoon. I'll snack on things later.. but nothing of real substance.. a sandwich is too much. I notice my body slows down when I go to sleep.. usually about midnight. at 3 or 4.. guaranteed I'll wake up and empty the bag. doesn't always need it but I feel better when I do. After I wake up. takes about 30 minutes for the digestive track to get back to work. as I'll have to empty it when I wake up. then about 30-45 min later.

A few times the bag looked like a little balloon at 3am. full of gas... and I can always trace it back to something "new" I ate.. It's a matter of your digestive system what causes it.. different for everyone I suppose. Gotten used to dealing with poop.. it's something I live with now and something you have to pay attention to is your eating times, how much you eat and what you eat.

As my nurse told me when I started this adventure.. start out slowly and only eat a few foods. then branch out and watch how each one works out. some will, some you'll have to deal with..

Hope my experiences help a little. ANYTHING however, is better than UC and not living a normal life.......

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 11/11/2009 9:19 PM (GMT -6)   
I have to say, I eat what I want, when I want (and it shows!). My main meal is at around 6.30pm. I'm of the mindset, life's too short to let my ostomy dictate to me what I can and can't do. If I want to eat late at night, I will... and deal with the consequences if necessary. If I have to get up at 3am to empty my bag (and as I get older I'm getting up to pee anyway), so be it! It's really a matter of what you're willing to put up with.
Ileostomy for 33 years due to UC

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!


2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 11/12/2009 3:25 AM (GMT -6)   
Hey all thanks for your replies - they are very helpful. 
 
Yes i do think i eat too much too late - i am a pig i think as i spent so long restricting my food intake because of pain.  I remember in the early days of the ileostomy i ate small amounts of low fibre food and was very wary of chewing well and i dont remember the same thing happening.  Now that has gone down the pan!  Yes it is a nuisance so to speak, but like you say hey at least we have our lifes back.  So yes it is something i regret when getting up in the night or early hours with a bag of air on my side. 
 
It is definately something i will have to deal with now, as i get my ileostomy closed at some point in the future and i certainly dont want to be pooing all night long. 
 
i will try your suggestions.  thanks so much.
Karen - 47 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
March 2009: Loop Ileostomy - awaiting reversal ..hohum..
 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/12/2009 5:15 AM (GMT -6)   
I think we all toot while sleeping, but never noticed it until it was trapped inside of an airtight bag. :-)
Dx'd Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

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