monday is reversal surgery!

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ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 11/4/2009 9:22 AM (GMT -6)   
so i am really ready for monday!! esp since my stoma has been hurting...it hurts reallly bad any time there is form..
but anyways, i am done with the bag soon, at least i know that if i did end up with a permenant ileostomy that its really not that bad at all,
you guys have any tips for goin in to surg? i have read that as far as eating i need to take it real slow...what foods do u recommend right at first?
my name is Isaac, 24 year old guy,Jehovah's witness UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred

we will have our new baby boy January 25, 2010 :)


Had first of to surgeres, sept 11, 2009! Had proctocolectomy with temp ielo, i will be med-free! oh and I'm getting laid off, last day of work is march 26, 2010, just enough time...
 
ileostomy takedown scheduled for november 9


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 11/4/2009 10:24 AM (GMT -6)   
Well- the hospital will take care of what you eat at first. The first two days - I had only liquids and IV fluids. THe last day in the hospital I had potatoes and some chicken. It didn't sit well with me because I had A LOT of gas pains. I probably should have waited to eat more.
Anyway- by day 5 I was eating peanut butter and toast, chicken noodle soup and ham sandwiches. Today is day 12 and I am almost at a normal diet for me. I had tuna salad for lunch today.
I am avoiding fresh fruit and veggies and salads. Mainly because I have gas problems.

Other advice- well the usual soft TP, calmoseptine, or balmax, desitin...

this is still so new for me. The first day post surgery was pretty good- I went to the bathroom right away and then the 3rd day when it was time to go home, I had so much gas pains I was unable to even move. I got home and for two days I was in pain from gas and nauseated from the percocet.


Then, things got better. I originally had staples to close my incision, but they had to be removed because an infection was brewing. Now I have an open wound I have to pack twice a day. Honestly, that has been the worst part because I can't sleep comfortably.

And up to now, ,,,,,, NO BUTT BURN- I am very happy about this and ready for it if it creeps its ugly head.

I wish you the very best-
Jackie, 44
Pancolitis, DX October 06
Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- REVERSAL:::::: October 23rd -YEAH!


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 11/4/2009 10:30 AM (GMT -6)   
Congratulations Isaac!  This is awesome news!  My reversal was in March/09.  I was only in hospital 3 days.  I had no diarrhea, but was constipated after.  But once I got things moving it went really well. (Thanks to prune juice and Milk of Magnesia)...  He closed my stoma site with a drawstring stitch and once it healed, there is barely a scar.  Just take things slow food wise when you get home and basically just listen to you body.  Drink lots and LOTS and then LOTS MORE water etc.  I walked alot around the house as well and that helped with any gas pains.  It went really well for me and I wish the same for you!!....Cheryl
 
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 Ileostomy Reversal March 9/09


Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 11/4/2009 3:49 PM (GMT -6)   
Wow Isaac, I can't believe it's already time for your reversal! I remember reading posts from you on getting your j pouch! Best of luck to you! My dr wants me to wait until after the holidays which will be 3 months total for me- I guess I need the extra time to heal. Do you feel like you have 100% of your strength back going into the reversal? I am 4 1/2 weeks post op and still only feel about 50%... hoping I get all my strength back again. What is your prep the day before surgery? liquids???
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 11/4/2009 4:01 PM (GMT -6)   
Woo Hoo Reversal on Monday! That is great.  I am 5 weeks post my reversal.  Here are some things that I have learned...
 
1. Butt Creams! I had my bag for 2 years and my butt was not used to being 'used.' It is very sore and bleeds from being raw.  I have all kinds of butt creams that keep stool from touching my skin.
 
2. Diet! Don't eat anything that stimuates your system. I still do not have an appitite after surgery.  I have to remind myself to eat b/c my stomach is still healing and it does not mind my brain to eat.  Try to eat bland.  Today I had a toasted turkey sandwich with light lettuce and mustard with a 1/2 yogurt. 
 
3. Stay Hydrated! Drink Gatorade.  After my reversal, I was going to the bathroom a lot.  This is dehydrating. You need to keep hydrated.  I noticed that even though I did not feel thirsty, my lips were cracking and bleeding.  My body needed fluids!
 
4.  Pain Meds are Bad!  If possible, try not to use pain medications.  They SLOW your gut and retard your healing process (not to mention they are addicting and withdrawl is awful). My surgeon came into my room 24 hours after my surgery and asked me if I could go w/out the medications and attempt walking.  I kept the pain medications for 36 hours and then told the nurse not to give me anymore.  She removed my pain pump and that was that.  It hurt awful! But today I ran 3 miles because I allowed my body to heal faster and better than most.
 
5. WALK, WALK, WALK! Yes, it's painful.  No, you wont want to do it...but do it anyway. You're a young man, you can do this! I just kept telling myself, "I got this!!" I walked 5-10 minutes right after surgery and then walked a little everyday. 
 
6. Listen to your body! Don't eat before you're ready.  Don't stress if you're not able to accomplish everything you want after surgery. All things will come in time.  Be patient.
 
7. Don't be afaid to take a bath! A hot warm bath will feel like heaven to your butt if you have butt burn. I was living on the toilet and in the bath tub for the first 4 weeks.  My family always knew where to find me - in the bathroom!
 
8. Lose Clothing - bring elastic pants/shorts to the hospital to wear home.  You're not going to want to have anything tight around your incision or where your stoma used to be.
 
Take care,
Amey
 
Congrats on your surgery.  Please keep me posted once your out.
Amey
 
Reversal 9/2009 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 11/4/2009 4:28 PM (GMT -6)   
Amey-
I understand why you are saying what you are about pain meds- but I think saying they are BAD is a definite overstatement.

Everyone is different as far as pain tolerance. WIth each of my three steps of surgery, I have taken Percocet at home for about a week and then Vicodin for about another week. I rather be comfortable then in pain and suffering for weeks.

I have not had any trouble weaning off the drugs and definitely did not get addicted.

I guess what I am trying to say that it is a matter of personal choice and being so adamant about pain meds may make people feel they have to suffer through it.
Jackie, 44
Pancolitis, DX October 06
Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- REVERSAL:::::: October 23rd -YEAH!


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 11/4/2009 4:43 PM (GMT -6)   
Jackie - Good call! You're right.  I meant they are bad for the gut, but they are good for the brain if someone is in need of rest. Thanks for the correction. 

Take care,
Amey
Amey
 
Reversal 9/2009 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 11/5/2009 1:19 AM (GMT -6)   
oh thanks guys for all the advice!! we went to walmart tonight an had a little presurgery shopping spree, i bought the softes TP i could find, i bought some more equate flushable wipes, (i use these everytime i empty my bag, i even bring a zip lock bag of them when i am out in public), and we bought some diaper rash stuff, its 40% zinc oxide.. is that what i need? i read that calmoseptine has zinc oxide and menthol..i couldnt find anything like that, thinkin maybe i should go to walgreens? oh and we bought some generic imodium and gas x...hmm dont think im missing anything...

nutz- i would say considering the circumstances, yes i feel 100%, i feel very good, i mean when i sneeze or cough, my lower abdomin hurts bad, but other than that, i feel normal..oh and how my stoma hurts real bad when i eat.. i am not even going to worry about it tho, since i only have one more bag change and i am done! oh and the prep the day before surg? nothing! i just dont eat the day before,my surg is monday, im not sure if that just means dont eat after midnight sunday night or dont eat anything sunday, im gonna ask, but the said just drink liquids the day before and i am all cleaned out...my surg is a 3pm so i will prob eat somethin sunday..

oh and since i have still been passing liquid from my butt every time i sit on the toilet, i am hoping the butt burn wont really be an issue, it might sound dumb, but i was thinking, maybe wiping harder and gettin ur behind "roughed up" for a few weeks might help with avoiding the BB, im gonna try it..right now iam using cheap, rough TP but after my surg, i am switching to the charmin ultrasoft.
my name is Isaac, 24 year old guy,Jehovah's witness UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred

we will have our new baby boy January 25, 2010 :)


Had first of to surgeres, sept 11, 2009! Had proctocolectomy with temp ielo, i will be med-free! oh and I'm getting laid off, last day of work is march 26, 2010, just enough time...
 
ileostomy takedown scheduled for november 9


dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 11/5/2009 4:14 AM (GMT -6)   
Isaac, I had my reversal surgery on April 13th, 2009. Aside from massive diarrhea, the day I left the hospital, I haven't had any major problems. I think I ate to many things at once, that brought it on. I had a regular lunch, and that was only the second real meal, i'd had since my reversal surgery. Everything else, had been liquids. I think i've had two or three other times, but only when i've eaten something that didn't really agree with me, even before my ileostomy. I'm somewhat lactose intolerant, and the few times i've had problems, have been after eating milk products. I was in the hospital 8 days. I love my surgeon, and think he just took it exceptionally slow with me. My biggest complication, was I got an ileus while in ICU. I had an NG tube, and was NPO on my birthday. :( that really sucked!! Then on the saturday after my surgery, I got sick that night, and threw up while brushing my teeth. I hadn't felt really super all day, and then the mint from the toothpaste and nausea just didn't mix well at all. I still don't like mint!! The nurses asked me where what I threw up was, and I said it was washed down the sink, because everything I had to throw up in, was full of stuff, and I wasn't going to take the time to dump it in the floor, or throw up on the floor. Thankfully, they called and  got me something then, and I didn't have any  more problems.

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 11/5/2009 9:38 AM (GMT -6)   
Calmoseptine has to be ordered by the pharmasist. It does help...A LOT. My dr gave me some samples and it helps. 40% zinc oxide is a great skin barrier. It's thick and keeps stool from touching your skin. I wish I would have been as prepared for my reversal.
Amey
 
Reversal 9/2009 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 11/5/2009 7:28 PM (GMT -6)   
Sounds like you're ready to go Isaac! I hope surgery goes great for you! I will be thinking of you on Monday at 3pm...
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009

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