Derrier' leakage after Ileostomy

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Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 11/4/2009 4:25 PM (GMT -7)   
The one thing I haven't been really able to deal with well is the -essence- which comes out of my derrier' .. which seems at times to be uncontrollable. When I had my surgery 2 years ago, I expected everything that used to come out of there to be routed to the bag..

However, that's not quite true.. Is there a 'good' way to deal with it or is there some way to control it?

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 11/4/2009 4:30 PM (GMT -7)   
I had leakage even actual "movements" for six months during the time I had the ileostomy. I actually think it has helped to make my takedown easier. I
Jackie, 44
Pancolitis, DX October 06
Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- REVERSAL:::::: October 23rd -YEAH!


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5428
   Posted 11/4/2009 4:47 PM (GMT -7)   
It sounds as if you still have your anus and have not had that sewn shut? Are you expecting further surgery, is what you are living with temporary?

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 11/4/2009 5:16 PM (GMT -7)   
Yes, it's a temporary. Been putting off going back in the hospital for the past 2 years for the J-Pouch activation. Now that I have things "stable" in my life after a year of unending diarrhea, 3 surgeries and essentially losing a year of income. I really am not anxious to go back in the hospital.

Also, I am not really excited about having to "adjust" to the J-pouch. My life had enough adjustments to make dealing with UC; dehydration; steroids and everything else. I suspect i'm about as normal as I'm going to be now.. Is the pouch any better than the bag?

privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 11/4/2009 5:40 PM (GMT -7)   
Wade,
I had surgery the end of June and my ileo is permanent. For the first 2 months or so I kind of a mucous type discharge and then it stopped. Now I feel like I need to go most all the time I have a rectum but nothing ever comes out of it. It just feels like I need to be on the toilet but I'm just getting used to it.

Cathy

privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 11/4/2009 5:40 PM (GMT -7)   
Wade,
I had surgery the end of June and my ileo is permanent. For the first 2 months or so I kind of a mucous type discharge and then it stopped. Now I feel like I need to go most all the time I have a rectum but nothing ever comes out of it. It just feels like I need to be on the toilet but I'm just getting used to it.

Cathy

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5428
   Posted 11/4/2009 8:03 PM (GMT -7)   

Wade,

The jpouch has been great for me!  Coming up on our 9 year anniversary together.  I do 100-200 mile international hikes, travel abroad, backpack, etc.  I encourage you to visit www.j-pouch.org for support and advice on your reversal.  It will be an adaption but the worst is behind you!

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 11/4/2009 10:49 PM (GMT -7)   
Hi Wade,

At first a lot of mucous came out of my rectum because I still have my colon and a permanent ileostomy. As time goes on my colon hardly produces any mucous now (2+ years). Mine is an end ileostomy.

If yours is a loop ileostomy there is a complication I've heard of where some actual poop slides back down the wrong end of the loop and goes through the colon to the rectum. Check with your doc to be sure this isn't happening. It's likely just mucous you are passing rectally.

Good luck with whatever you decide on the J-pouch activation. Rosemary

ruissarr
Regular Member


Date Joined Jul 2009
Total Posts : 80
   Posted 11/5/2009 1:09 AM (GMT -7)   
i had my loop ileostomy for 2 months now and my reversal is next week but the whole 2 months, about everytime i sit down to empty the bag, i actually have the urge to push like a regular bm and clear/white stuff comes out of my anus..not smelly at all, the nurse said it is the stuff my intestines make to help with digestion and it doesnt hurt or smell, its kinda cool and interesting acutally, i am going for my pouchogram tomorrow, they will give me an enema of barium type stuff and take an xray and make sure the pouch has no leaks, its kinda cool cause i dont have any prep, since all my poop goes in the bag..ahh what an interesting/exciting time in my life lol
my name is Isaac, 24 year old guy,Jehovah's witness UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred

we will have our new baby boy January 25, 2010 :)


Had first of to surgeres, sept 11, 2009! Had proctocolectomy with temp ielo, i will be med-free! oh and I'm getting laid off, last day of work is march 26, 2010, just enough time...
 
ileostomy takedown scheduled for november 9

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