Problems with ostomy

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skybeck
New Member


Date Joined Nov 2009
Total Posts : 1
   Posted 11/7/2009 8:49 AM (GMT -6)   
Have had my ostomy for about 5 months and have had nothing but problems with wafer failure.
These past few days it's been about every 10 hours. We've tried different manufacturers, pastes, powders, techniques, rest periods...you name it. Will finally go back to work on Monday at a new job. I'm desperate. Can anyone help?
Thanks so much.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5691
   Posted 11/7/2009 9:44 AM (GMT -6)   

Have you been working with an ET nurse for a solution?

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 11/7/2009 9:47 AM (GMT -6)   
Hey skybeck,
I have an ileostomy and I had a lot of trouble too but I think I've finally got it nailed down. The sites are so helpful and they have helped me tremendously. I can tell you what I use and what I did and maybe you can work on it until some of the others that have had their's longer can jump in. Always, and I mean always make sure you are clean the area with warm water, do not use soap that will have a film. I use Dial antibacterial and some use ivory. If your ostomy spits when you are working with it you have to clean again and again so it is best to do it when it isn't as active. Mine is morning before breakfast or later in the day after lunch has passed through. I use a Convatec wafer and a bag that I empty about 6-7 times per day. If you empty your bag and don't use disposable be sure you don't let it get more than 1/3 full before you empty or else the weight will pull it down. I use an Eakin seal on mine because I have a lot of redundant skin that will allow leakage. Always warm your products before you put them on. I use a small blow dryer and warm my seal and wafer. I've tried this 2 ways I've put the seal on my skin and then put the wafer on and I've put the seal on my wafer. I don't know that it matters but putting it on the wafer is the way I go. I also use the paste and after I've put the seal on the wafer I put paste all over the wafer and so far so good.

I was released from the hospital and had never worked with a WOCN do you have one? I didn't but after getting on here I found that everyone thought it was crazy that I had never seen one. She helped me but by the time I got to her I had almost solved my problem with the groups on line. I have gotten 4 days out of the one I have on now and that is a record for me since I've been home and I came home in early Sept. Also, after you put your new wafer on I use the blow dryer again and work it around to ensure it is stuck. Don't be to active after you put it on so you don't pull or disturbe it. There is another website that I belong to called C3Life.com and they are helpful also. Good Luck with the wafers and the job I know how disturbing this is when you leak been there and done that......

Cathy

Cathy

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 11/7/2009 6:44 PM (GMT -6)   
Can you let us know what products you use...what your stoma and stomach look like (peaks/valleys etc..)?

suebear is right, you should be working with a WOC Nurse, but we'll help if we can!
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