In the hospital my nurses were a nightmare Washington Hospital Center- they were terse and not compasionate, nor were they following the written and verbal orders from my GI and surgeon until I had to call them to explain to the nurses what I needed, and I was in control of my paim management not their opinion. They even bad-mouthed my doctors to me. How disrespectful. As for the Ostomy nurse, even in a DC huge hospital, there is only one Ostomy nurse that works one day a week for visits, and a long time to reach on the phone. Basically it was trial and effort, of me and my wife who figured out I didn't have a perfectly round stoma and I had to customize the cutting of the wafer. My wife was immensely more help than they were.
On other surgeries, the nurses at Georgretown, the other big hospital in DC, they were prepared to deal with my ostomy even though it was my legs/Charcot disease for the reason being there.
I have gotten so much better advice here, and I am told there are associations of ostomates that will come to your house as a volunteer and help - but I haven't used them.
Post Edited (vette guy) : 11/18/2009 12:59:53 AM (GMT-7)