I've had my j-pouch for almost a year. I have some random light leakage at night, maybe up to 3 times a week especially when in a deep sleep. My doctors say I should try taking Imodium before going to bed, but I don't like taking pills and don't want to be on them for life. I just wear a light pad which is more than adequate. I usually go to the bathroom twice a night anyway. I want to see if this is a long term thing as well or gets better with time, every month seems to get better. During the day I'm fine without any leakage or accidents.
If he is going to the bathroom a lot during the day, more than 6 times, he may have pouchitis and not know it right after the j-pouch surgery. I thought it was normal, but they discovered I had pouchitis through the 1 year follow up appointment and prescribed 10 days of antibiotics. I was down to one to two BM a day, but after a month or two I'm back to about
4 to 5 a day and 2 at night. I feel a million times better and living life again. Hope this helps.
UPDATE...I've now had my J-pouch for 6 years. The random night leaks stopped 2 years after the j-pouch surgery...and I say I reached my final jpouch "capacity" about
5 years post op. 5 BM a day and one at night. I also discovered I have chronic pouchitis. I began taking tinidazole (an antibiotic) initially with the two pills a day for two weeks and discovered that after the first day the pouchitis symptoms were gone. So I began lowering the dose on my own and now I take one or two pills and and that lasts 6 weeks, then I usually feel the pouchitis symptoms again and I take another one or two pills and I'm good for another 6 weeks. I've been doing this religiously for the past 4 years like clockwork. My life is normal and I don't have any dietary restrictions other than spicy foods just because it exits too hot for me.
I just recently had to have an emergency surgery to remove scar tissue that wrapped around the small intestine. In fact I just got out of the hospital a week ago. This surgery was much easier than the 3 I had in 2008. They still had to re
open my old 12" incision but I can tell I'm healing/recovering much faster than the other 3 surgeries I had. I had scar tissue all over the place but I was told they did a good cleaning this time!!!
Post Edited (GISGuy31) : 11/10/2014 12:59:08 AM (GMT-7)