Appointment at Cleveland Clinic in Florida

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lasbutterfly
Regular Member


Date Joined Nov 2007
Total Posts : 281
   Posted 11/23/2009 10:00 AM (GMT -6)   
I have an appointment with Dr. Wexner a week from today, on Monday, to discuss surgical removal of my ileostomy tube.  I am so ready to schedule surgery for a real ileostomy and bag, but am very frightened of surgery.   I had a wonderful surgeon in May and June that tried to give me an ileostomy, but my insides were a mess.  I was in the hospital for 52 days and I think that everything that could've gone wrong, did. 
 
I had to have a picc line put in, I had 3 blood transfusions, and a nasogastric tube.  I was really sick and pray that I don't have to go thru this many trials, again.  I am ready for my surgeries to be over and to get my life back.
 
butterfly

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 11/23/2009 1:05 PM (GMT -6)   
Well - Dr. Wexner is one of the best in this field and the Cleveland Clinic has great resources and facilities.

PLease keep us informed as to how goes with Dr. Wexner.
Jackie, 44
Pancolitis, DX October 06
Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- REVERSAL:::::: October 23rd -YEAH!


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 11/23/2009 2:31 PM (GMT -6)   

Good Luck Butterfly.....

I have been thinking of you and hope that things can go your way, you surely deserve it and your going to the best place for it. Miss talking with you. Let us know how it goes. Prayers your way.

 

Lizzie


Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia (Anismus)
Admitted with Small Bowel Obstruction April 4, 2009 and emergency ileostomy 4/13
Re-admitted with abdominal abscess. Released 4/24
Cleveland Clinic twice for 3/4th referral. Anismus undetected (no medical explanation)
Retracted stoma-infection/skin breakdown.
Ileostomy Reversal- Oct 8, 2009. Ileus/Dehydration 10/13. New rectal dysynergia-biofeedback-11-19
 
"The Greatest Healing Therapy is Friendship and Love"


lasbutterfly
Regular Member


Date Joined Nov 2007
Total Posts : 281
   Posted 11/24/2009 10:29 AM (GMT -6)   

Thanks, Lizzie.  We both have had a difficult time of it and I hope that our futures can look brighter soon.  I admire you so much for what you've had to work through, too.

Jackie, did you have Dr. Wexner as your surgeon?  He did my colectomy and he and his team of doctors treated me wonderfully.  I spoke with his surgical scheduler and he's just now scheduling surgeries for the beginning of January.  I'm hoping that I won't have too long of a wait.

butterfly


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 11/24/2009 11:59 AM (GMT -6)   
Actually, Dr. Weiss was my surgeon. He is more soft spoken but also top notch. I hope you get your surgery scheduled asap.
Jackie, 44
Pancolitis, DX October 06
Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- REVERSAL:::::: October 23rd -YEAH!


Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 11/25/2009 6:47 AM (GMT -6)   

Lori,

I've been thinking about you and wondering when you were going back to CC.  I wish you the best and pray you'll be able to have a "normal" ileostomy soon.  You've been through so much.  At least you know you're in good hands!  I've heard nothing but good things about Dr. Wexler, as well as Dr. Weiss.  Please keep us posted and try not to be too nervous.  Have a nice Thanksgiving, too!

Janie


lasbutterfly
Regular Member


Date Joined Nov 2007
Total Posts : 281
   Posted 11/25/2009 9:14 AM (GMT -6)   
Janie, I see Dr. Wexner at Cleveland Clinic, FL on Monday afternoon at 2pm. Unbelievably, my insurance was very helpful and my authorization was approved hassle free. I worry about you, too, and hope that you also can enjoy a happy Thanksgiving holiday.

I have sutures around my tubing on the outside and inside of my abdomen so that my tube doesn't move or fall out. Last night they came out on the outside for the 4th time since surgery and so I will have to be sutured up again, today. I am exhausted from everything that continues to happen and am anxious to see Dr. Wexner and be "fixed".

butterfly
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