Go to their main page at www.j-pouch.org
Click on discussion and that should take you to the various threads.
You should also join yahoo groups jpouch board. There are quarterly jpouch meetings at UCLA, OC, and USC. Great way to meet other jpouchers in LA.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free