my temp loop ileostomy reversal, need answers please!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Ukcd25
New Member


Date Joined Nov 2009
Total Posts : 4
   Posted 11/24/2009 12:45 AM (GMT -6)   
hello everyone, really hopping some of you can help as you all seam to be extremly knowledgable on this site!
 
im a 25yr onld male from the uk, was diagnosed with crohns in late jully this year after nearly a year of constant pain, and longer before that of nearly everyday pain (i was originaly told i had ibs untill i pesterd my gp to be sent to a specialist)
 
in one of my meetings with the specialist they noticed the hard lump i could feel near my appendix removal scar, and decided to keep me in, i had a ct and x ray with contrast etc.... and they decided to keep me in for a wekk to try antibiotics and steroids, theses didn't work and they decided that because the bowel (i think the part is called the terminal ileas?) had become so narrowed and basically messed up with scarring etc... that i needed a bowel resection.
 
they took about a ft i beleive in the end and i ended up with a temporary loop ileostomy
 
im due to have it reversed on the 21st dec, and tbh i can not wait as i've absolutly hated having the stoma, not gotten on with it at all, had problems with leaks, and the subsequant burns/soreness that results etc... so really looking forward to the reversal and getting back to a normal life!
 
i've had absolutly no pain internally since my op, there are no plans for me to have a j pouch or anything like that at all it will simply be a reversal of the loop ileo and everything will be back to normal inside me (minus the bit of bowel that was removed)
 
but i have quite a few questions, i've had a look around but the only answers i've found for my question relate to people with other dieseases, complications, having a j pouch created etc.... none of which applies to me
 
so basically my questions are:
what to expect straight after the op, i've heard people can get dihorea almost incontenent for a while after? also heard that i may loose a lot of weight after the op? (i lost a lot before my surgery dur to the crohns, but have put on about 2st since having the stoma)
 
will i be able to drink alchohol after my reversal? i never noticed that it caused me any problems paticularly before the op, and i wont be on any meds straight away at least (so assume no meds)
 
as my crohns seams to be in full remission, and i still have my rectum etc.... etc... and i'll be totally normal inside after the op, does this mean that once everything is fuly healed i'll be able to basically live a fully normal life, eating and drinking what i wish? (i understand if i go on meds then booze may be out, and that also some foods may cause my crohns to flare up)
 
also how long can i expect to be in hospital for the reversal op? i understand this can vary greatly depeding on how i heal but im after just a rough guide, as to what the soonest i could expect would be. but tbh im not bothered if im in hospital over xmas/boxing day as i'll just be sooo happy to not have the stoma anymore!
 
i'd really appreciate any and all answers to my question, and i ask that all replys be kept as simple to understand (medical terms etc...) as im no where near as knowledgable as many on this site seam to be!
 
many thanks
mark

Ukcd25
New Member


Date Joined Nov 2009
Total Posts : 4
   Posted 11/24/2009 12:57 AM (GMT -6)   
oh also, after my first surgery i had a catheter for a couple days i think it was, should i expect this again this time, as i know this is ment to be a much shorter op.

also as far as pain goes, i didn't really have any after the first op, untill things started healing and then obviously it was sore to move etc... but not really any proper pain, and was only on a morphine pump for a few days while i was in there and then just ibuprofen when i went home four days after the op. so is the reversal likely to be about the same pain/discomfort wise or slightly less?

and not sure if its relevant but only had the temp ileo to give the joined up bowel time to heal before it had to work, (not sure if thats always the case or if it will help in answering my questions

dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 11/24/2009 9:17 AM (GMT -6)   
Mark, I had my ileostomy reversal in April. I was in the hospital a week, but I think a lot of that was due to I had a lot of adhesions, from the first surgery, and my doctor took it really slow with me. The pain was better than the first surgery, and I had a dilaudid pump after the second surgery. I asked for anything but morphine, after the second surgery. I itched so bad, and sweated so much, with the morphine (both normal reactions), that I didn't want to go through that again. I wasn't out of bed, until the fifth day after surgery, because that was the first the doctor wanted me out of bed. I don't know why. I had a catheter, until day six, I think after surgery. It was driving me nuts!! I wanted to walk, and between it and the horrid IV pole, that wouldn't move, I didn't like walking.
 
Sit up in a chair, and walk as soon as possible after surgery!! Both will help with the pain.

Ukcd25
New Member


Date Joined Nov 2009
Total Posts : 4
   Posted 11/24/2009 9:34 AM (GMT -6)   
Hi

first, thanks for the reply.

Interesting what you say about morphine, as I found I was sweating a ton after my first surgery and untill I read your post I had no idea why!

Glad the pain will be less but I didn't really have much pain after the first surgery, so if this one should be less, assuming everything goes fine, then should be a breeze!

Shame about the cathater though, I too hated having one, and as Im sure being stuck in bed will drive me crazy. However I remember last time that my iv stand was movable so may be some hope of movement if my dr allows it.

How was going to the loo after the op? As I'm woundering how it'll work if it is ment to be dihorea like with a lot of urgency when I'm not ment to get out of bed? Or are the posts I've read about that only applying to people who have had things like the rectum removed/ j pouch creation etc....?

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 11/24/2009 2:41 PM (GMT -6)   
Hi Mark reading your post is like reading my story as far a the stoma goes!!!! never bonded with it and had nothing but problems also looking forward to getting it reversed.After i had a resection years ago and healed i basically led a normal life ate and drank what i liked with no probs till last year. this time around i had two resections of the small bowel and a fistula sorted out thats how i ended up with an ileo. I had an epidural to knock me out and used for pain relief after as well as the morphine pump i had no pain whatsoever only gas pain in my back at day four, im going for that option when i get the reversal done it was great! wish you luck with your op you will have to come back here and let me know what its like!!!!!! once you have recovered get out there and live your life to the fullest!! i hope you get a really really long remmision thats what i'm aiming for again!!Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)


Ukcd25
New Member


Date Joined Nov 2009
Total Posts : 4
   Posted 11/24/2009 3:00 PM (GMT -6)   
Hi bev

glad to hear there is a chance of a long remission during which time I can live a normal life! My reversal is gonna be the best Xmas preasent ever I think!

I'm gonna ask to not have a epidural if poss as I didn't really get pain from the first op and the morphine more than handled what little I did get, also heard it may make for a longer stay inside if I have the epidural and obviously wanna be out asap as really don't like hospitals. Especially as last time I was in one I got given a ileo, didn't help that I was told before the op there was only a 3% chance of getting one and if I did would only be for bout 3 weeks, not the 6 months it will be by my op date.

Still really wanna know what to expect bm wise after the op, also should i expect weight lose after the op, or gain or neither?

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 11/24/2009 5:04 PM (GMT -6)   
Mark, when i had the previous resection i had was in the large bowel I have always since then had D my surgeon said it would always be like that although by changing my diet would make it thicker But i love my food so much and managed to control thr D by taking Lomotil 2 tabs in the morning and wouldn't need to go till way over 4pm in the afternoon so it doesn't really affect my life. I have seen a few posts too where some people have suffered after having a reversal with D but then others saying no probs. hopefully someone will be along that will be able to help you could also go to www.c3forlife.com thats also a really helpful site about reversals and loads of other things keep in touch Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 20, 2014 10:56 AM (GMT -6)
There are a total of 2,222,504 posts in 247,312 threads.
View Active Threads


Who's Online
This forum has 156529 registered members. Please welcome our newest member, TF42.
368 Guest(s), 14 Registered Member(s) are currently online.  Details
iziggy, PeterDisAbelard., Trotters, Acheybody, ceecee600, BillyBob@388, Annmor1867, lesweet1971, *JimO*, Mikey72, SGT P, Poppie, Chrissysoul, quincy17


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer