Thank you everyone =)
I was wrong, the one scope was not a colonoscopy, it was a flexible sigmoidoscopy. Makes sense now, as she doesn't have a colon. That scope showed the stump is really badly diseased. She is going to go back on a cortienema(sp?). Her dr said that if it works and she has to be on it all the time, then so be it. It is better than losing the stump. But as it stands, she will not be able to have a reconnection as she will always have problems if it were done.
The endoscopy didn't show any worsening of the disease, but the dr said we will have to wait for the biopsy results for confirmation as it isn't always visual.
Her stoma is narrowing (stricturing?) so she has to go back to the surgeon who did the ileostomy for a consult.
The pain she is having is probably not all just from the pancreas, but also deferred pain from the diseased stump.
Today's results could have been better, but all in all it could be alot worse.
Take each day as it is and be thankful that I still have my daughter. There are people in alot worse situations.
I honestly don't even know what a J pouch is? Is that what they mean when they talk about reconnection?
I get frustrated sometimes because I don't know what to ask all the time, or I get confused with all the information that gets thrown at me. I really need to go to one of the parent support groups here. There I would be probably be able to sort out the information better and find out what I should be asking. I always ask questions but then I find out that I should be asking more or haven't asked the right ones, like what a J pouch is lol Someday I will be more literate in all of this.
I read the posts here and find out stuff I didn't even know. This site is being really helpful. Thank you.