Gastrografin enema questions

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Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 11/29/2009 8:37 PM (GMT -6)   
Hi everyone,
 
Hope you all had an enjoyable Thanksgiving, I know that I did!  I am having a gastrografin (spelling?) enema done this Tuesday morning.  For those of you who don't know what this is, it is the test that is done for patients with temporary ileostomies to see how their insides have healed before having the reversal (take down) surgery.  My hospital sent a 2 day prep for this exam.  Today is day 1 of the prep.  The diet I followed was VERY restrictive.  I pretty much only had eggs all day with clear liquids.  I also had 10 oz of magnesium citrate which is burning my skin as it is coming out of my stoma.  Tomorrow, day 2, I am only allowed 8 oz of water at 1, 3, 5, 7 and 9pm along with another bottle of mag citrate at 8pm.  On the day of the exam (Tuesday), I am supposed to take a Dulcolax 10mg suppository at 6am.  So, these are my questions:
 
1) How do I stop the burning that is coming out of me?  The liquid is leaking on my skin and I just changed my bag this morning so there was a good seal already.
 
2) Is the 2 day prep necessary?  It seems like all that is coming out of me is already pure liquid so I feel "cleaned" out?
 
3) What is the point of the suppository?  I don't understand why I need it because no food has gotten past my stoma since surgery?  I am starting to wonder if this is a generic prep that the hospital sends that is not specific for people with ileostomies. 
 
Any help is much appreciated!
 
Thanks,
Darlene (Nutz)
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009


taurus
Regular Member


Date Joined Jul 2007
Total Posts : 65
   Posted 11/29/2009 10:22 PM (GMT -6)   
Wow. They want you to do all that?
 
I also had a gastrografin before my ileostomy takedown. All I had to do was clear liquids the day before. That was it. Even when I finally had the takedown surgery all I had to do was clear liquids the night before.
 
I think the problem here is the HOSPITAL sent this info. Unfortunately some hospitals can be clueless about ileostomies. I experienced that with the radiology people when I had to go in for my enema. Or maybe they just send those instructions to everybody. The thing is that it can be potentially dangerous to take alot of laxatives when you have an ileostomy.
 
 

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/29/2009 11:47 PM (GMT -6)   
i was under the impression that people with ileos should never take those preps. just a day of clear liquids should be fine, since we clean out so fast anyway. i had heard that those were dangerous for us. If i go a day and dont eat much, i have just a liquidy mess that you can smell the bile in, which is probably part of what is burnign you, your stomach is empty so on top of the prep which probably burns too you have that coming out. You need to be very careful that you dont get dehydrated, only being allowed 32 oz of water for a whole day, when we actually need about 100oz just to keep up. You should call your dr first thing tomorrow! Even my preps for scopes werent that restrictive with the amount of water.
good luck!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5418
   Posted 11/30/2009 9:05 AM (GMT -6)   
You should not be doing this prep. This is for someone who has a colon and a rectum. You should not eat after midnight and only fluids the morning of your exam.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 11/30/2009 10:20 AM (GMT -6)   
Thank you guys so much for the responses! I called the hospital and my doctors office this morning only to find out that there is NO prep whatsover! I basically starved myself yesterday and had to empty my bag every 10 minutes after drinking the magnesium citrate b/c it filled like a water balloon:( You guys are so helpful on this site. Thank you for taking the time to help me out. I can't believe the poor communication between our health systems and doctors offices. That was ridiculous. I had a slight suspicion that the prep was simply a generic form for everyone! Once again, people are so ill informed about ostomies...it's too bad:(
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5418
   Posted 11/30/2009 1:20 PM (GMT -6)   
Darlene,

This is only the START of doctors and nurses screwing up. I have had 2 primary doctors in the past 8 years since my jpouch surgery. Neither one of them knew what the surgery was. After educating them they still ask me stupid questions like, "Do you still have UC?", "Do You Have Dumping Syndrome?", "How Does the J-Pouch work?", and "I Can't Possibly Fill an RX of Lomotil for That Quantity!" I could go on and on but you get my point. Just last week at my annual physical my PCP requested a stool sample on my lab work. I no longer need to give stool samples unless it's suspected I have worms which I don't!! Besides I just finished telling her that at my annual jpouch exam in May I had biopsies taken for colon cancer and they were clear!!! Just get prepared to repeat yourself, to be misunderstood, and to educate every healthcare professional who's path you cross.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3071
   Posted 11/30/2009 1:21 PM (GMT -6)   
Yikes! That sound like a horrible time. I've gotten the 'generic' information before, too, and just laugh I used to confirm with my doc's assistant not to take it...but I don't anymore.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/30/2009 10:14 PM (GMT -6)   
the regular drs just dont have the information on ostomies that they need. Its sad when we know more than we do
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


taurus
Regular Member


Date Joined Jul 2007
Total Posts : 65
   Posted 12/1/2009 8:47 AM (GMT -6)   
It's so true that the regular doctors don't know much about ostomies. Regular NURSES don't either. It's too bizarre to me that RN's have little knowledge about ostomies or even ostomy care. Most don't even know the basics. I was in the hospital for a minor problem and I had my very first leak. I needed a bit of help putting on a fresh wafer. The nurse told me it had been years since she had to deal with an ostomy!

I mean seriously, is having an ileostomy or colostomy that rare? You would think that doctors and nurses would have at least basic knowledge of ostomies. But when I had my ileostomy surgery, I had to wait six hours beyond my discharge time just so I could talk to an "ostomy nurse". I was thinking to myself, "why can't I just talk to a regular RN"? Crazy!

And when I had my pre-reversal gastrograin, I had more ignorance to deal with. The radiology people looked intimidated by it. I had all that barium coming out of my stoma and filling the bag and they looked sort of weirded out by it. You would think they have seen this type of situation before.

Audreys
New Member


Date Joined Nov 2010
Total Posts : 7
   Posted 2/1/2011 9:00 AM (GMT -6)   
Hi,
 
I also have to have this test done and wondered what the pain level is and they do insert this into the stoma, correct?  I am four weeks out of surgery, complete removal and reversal in three months if all is well.  My test is on Feb. 16th and I hate surprises.  Please inform me as to what to expect and the pain level I will have to deal with.  I am such a wimp!  thank you in advance.

dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 2/1/2011 9:08 PM (GMT -6)   
I'm a Registered Nurse. We get around 3 hours teaching in nursing school on Ostomies, and Ostomy care. IF we're lucky. i'm considered the "expert" on ostomies on the night shift where I work. Only because i've had an ostomy, and have a clue what's going on. I've got a friend who works with me, that i'm teaching what I know. Do I always get a perfect stick? Heck no! but I usually get a better one than the so called wound care nurses where I work.
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