Back from the ostomy meeting.

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Xianghua17
Regular Member


Date Joined Jun 2003
Total Posts : 79
   Posted 12/6/2009 9:49 PM (GMT -6)   
I had a good time. It was nice to be able to talk about my condition freely. Everyone was really nice and inviting. I still felt like the oddball though. I was the youngest one there. It was great and I think I will go again next month.
Heather

I was diagnosed with Crohn's Disease in 2000.

I was hospitalized about 10 times between 2000 and 2004. I had about 9(or more) blood transfusions total.

Finally, in January of 2004 I was told the damage was too bad and I needed a permanent ileostomy.

I went through a healthy pregnancy in 2006-2007. I had a handsome 8lb 6oz baby boy.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 12/7/2009 7:54 AM (GMT -6)   
good for you!

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 12/7/2009 7:21 PM (GMT -6)   
Glad you found local support.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 12/7/2009 9:45 PM (GMT -6)   
Mine is tomorrow night. Know I won't be the youngest!!!
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying


privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 12/7/2009 11:38 PM (GMT -6)   
Good for you and they probably thought --- finally someone younger than us to give us a different insight.

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 12/8/2009 1:06 AM (GMT -6)   
I used to be the youngest at my meetings too.  Not any more!!! Kudos for going to your local ostomy meetings!!!!

Post Edited (vette guy) : 12/9/2009 1:21:38 AM (GMT-7)


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 12/9/2009 8:02 AM (GMT -6)   
So I got dressed nice and took my homemade gingerbread men and melting moment cookies to the party. It was way across town and freezing cold. -21 anyone?

Yeah, so I go to the place we usually have our meetings and it is lympnoma cancer party. If it was thyroid or rectal cancer party I might have stayed. Couldn't get anyone at home to answer to go look up address or me so drove home while eating the d cookies. I was very mad at self for not bringing invitation. Turns out it was on my side of town and at different cancer center location.

Moral of story pay attention to details and never assume.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/9/2009 8:31 AM (GMT -6)   
-21? like negative 21? Thats crazy!

And im sorry you missed your meeting!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-

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