Is this normal?

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Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 12/10/2009 10:26 AM (GMT -6)   
Hi everyone!!!!!
Oscar (my ostomy, the colostomy!!) is doing great but I have a question: He keeps giving me "nuggets of goodness" ie: soft, 1-2 inch long nuggets of poop. They aren't big enough to go into the bag but rather hang out around him and as such, im having to peel the pouch off and wipe them off. Is there anything I can do to promote a normal poop? Is this the normal course of things since it's only been 17 days since surgery? Im not bloated, feel fantastic and for the first time ever am not worrying about where the next washroom is. Just a little concerned at this stage.
 
Thanks!
-Allie


-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

Post Edited (Allison77) : 12/11/2009 12:44:55 AM (GMT-7)


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 12/11/2009 6:05 AM (GMT -6)   
I think it is because you are still early in your recovery...my friend had similar questions with her colostomy, and it does get more 'normal'...you can even irrigate colostomies so you don't have to wear a pouch :-)

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 12/11/2009 12:51 PM (GMT -6)   
Seriously???????????????????????????????? Wow....This just keeps getting better and better!
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 12/11/2009 1:09 PM (GMT -6)   
Sorry to say this, but for many people with Crohn's like myself, irrigation is not an option. You'll have to check with your ET nurse and or Gastroenterologist.
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 12/12/2009 1:24 PM (GMT -6)   
Im not going to look into it for at least another 3-4 months. It's still too new, but im glad there is a posssibility that I can irrigate. My home care nurse took a look at Oscar and he needs a concave wafer so she came over this morning and we changed out the wafer and pouch. He has shrunk quite a bit since surgery! She told me that throughout life he will need to be re-assesed and sometimes he will be larger and sometimes smaller and gaining and losing weight like I do will change things as well. There is so much to learn!!
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 12/12/2009 5:12 PM (GMT -6)   
badbaggirl said...
Sorry to say this, but for many people with Crohn's like myself, irrigation is not an option. You'll have to check with your ET nurse and or Gastroenterologist.

I couldn't agree more!!!  Back in '89, no one told me it wasn't an option for those with Crohn's, so I gave it a try.  I bought that giant pouch, and spent and hour waiting for it to work, and it never did!   Even if it took and hour and it did work, IMHO...it wouldn't be worth the time. 
I remember reading about a priest that would irrigate in the morning and then only wear a stoma cap for the rest of the day.  I remember thinking to myself.....even if it worked 99.9999% of the time for him....I'd hate to be that poor guy stuck in the confessional with him the rare times it didn't work!!!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 12/12/2009 6:40 PM (GMT -6)   
Thanks for the info...I though if the colostomy was in the descending colon irrigation was possible.

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 12/12/2009 11:40 PM (GMT -6)   

 

I found this on another forum and, as you can see, there was no disclaimer for those with Crohn's.  Maybe it just didn't work for me.  BTW, I'm not shouting.  After I cut and pasted this article, I couldn't change font size. 

 

 

 

COLOSTOMY IRRIGATION

 

Note: Only a colostomy can be irrigated. You cannot irrigate an ileostomy. Children do not irrigate.

Colostomy irrigation is a procedure that allows more control over the elimination of body waste because it stimulates the intestine to function at a regular time. The reason for regulating the bowel is for the ostomate's comfort and convenience. If irrigation is not accomplishing regulation or is making you more uncomfortable you should not be doing it. Irrigation is usually done at the same time every day or every other day. If you irrigate, you may need only a cover or pad over your stoma between irrigations and may not need an ostomy pouch.

Irrigating is not for everyone. Your colostomy must be in the descending or sigmoid colon. If your colostomy is in the ascending or transverse colon, the stool will be watery (ileostomy) and you won't be able to regulate it.

To irrigate your colostomy, you need to have the following equipment and supplies:

  • Lubricant.
  • An irrigation set, which includes a container for water, tubing with a cone end (one end of the tubing attaches to the container and the cone end is inserted into the stoma), and a clamp.
  • No more than 1000 cc of tepid water.
  • An irrigating sleeve and belt. (The sleeve is a long, clear plastic bag, open at the top and bottom. It snaps onto the barrier.)
  • Toilet tissue.
  • A toilet to dispose of waste.

In this procedure, an irrigation cone and tube are connected to the stoma (the end of the exposed intestine), and irrigation fluid is flushed through the intestine to clear it of waste.

Irrigation requires a health professional's approval and guidance.

 


dreamer06
Regular Member


Date Joined Jun 2008
Total Posts : 221
   Posted 12/14/2009 8:26 PM (GMT -6)   
The irrigation sounds kinda scary but I can tell you that I have had a colostomy for about 6 months and I normally only go in the morning when I start to move around and the evening when after I eat dinner. Although if I eat something that doesn't agree with me then its well just bad...
Diagnosed with Crohns Oct. '07.  Have had 9 abcess/ fistula surgeries.  Colostomy 20 March 2009.
 
Current Meds:
Imuran 200 mg                            Omeprazole 20mg                     Vitamin D 2000 i.u.          Remicade 10mg x8wks
Synthroid 112mg                          Lexapro 20mg                           Tylenol  50mg
Birth Control                                 Calcium  500mg                         Morphine 40mg
Sucralfate 1gm x4                         Multi Vit                                     Cyclizine   50mg
 


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 12/15/2009 4:40 PM (GMT -6)   
In the articles I have read and in talking with my surgeon and ET nurse, people with crohn's who have had a difficult time with diarrhea before surgery are not good candidates nor are some people who have have cancer. My output has always been watery so I can't do it...

Sounds like a lot of work, but it would be worth it on SOME days though!!!
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.

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