Hi Everyone - Good News

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ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 12/23/2009 1:55 PM (GMT -6)   
I'm sorry I haven't been here too often, I guess in some ways that is a good thing, but in others it's bad because I need to give back support to others having issues like I did when I was going thru my rough patch earlier this year. (wheeewhhh that was a long sentence!) :)

For those of you who don't know ... I had UC for over 10 years, had the 1st step surgery in April 2009, reversal in June 2009, and am a recovering JPoucher now :)

I have had a tough time with pouchitis ever since the reversal and anti-biotics have some killer side effects! I am pleased to say that for the first time in 10 years, I FEEL healthy again. I am able to wake up in the mornings, I am able to stay awake in the evenings and most of all I am able to enjoy my daughter! (My wife and I had our first this past October)

I can't thank everyone here enough, you guys pulled me thru this. I have pouchitis beat now, I'm only taking probiotics and 2 lomotils a day (which I hope will go away also, but I'd be fine this way too!).

I am truly grateful. My daughter is keeping me very busy now, and I'm able to focus on my work and not be troubled by emergencies and rushing to the bathroom. This is truly a miracle.

2009 was tough, a hurdle, but we jumped it and we're smooth sailin!!!

Happy Holidays everyone and all the best for the New Year!!!

Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 12/23/2009 2:17 PM (GMT -6)   
Hi UCfree! That is great news! I am really happy for you and your family! Your daughter will appreciate having a healthy daddy! I had my 1st of 2 surgeries in October and awaiting my reversal in January. I already feel UCFree but just need to get through the next surgery! Enjoy the holidays:)
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009


Clicky
Regular Member


Date Joined May 2008
Total Posts : 166
   Posted 12/23/2009 3:42 PM (GMT -6)   
Hey UC free

Thanks so much for posting this - it really gives me hope! I have part one in a few weeks - I hope too to be able to enjoy life and our kids again soon.

So so pleased for you! I hope that you really really enjoy your holiday and new year :)
Diag proctitis 97
Major flare and extension to left sided colitis Aug 2006 - present

I have bled every day since Aug 2006 (I quit smoking in June 2006)



Imuran (Azathioprine) game me liver damage. LDN no luck.

Was on lots Asacol and mesalazine enemas - now seems to be making worse.

Back on Prednisone :(

Booked in for JPouch Jan 2009


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 12/23/2009 10:29 PM (GMT -6)   
Hi...GREAT NEWS...Have a very Merry Christmas with that new baby!

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 12/23/2009 10:55 PM (GMT -6)   
Congrats UC free. What a motivating success story. Rosemary

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 12/24/2009 12:48 AM (GMT -6)   
Thanks for sharing. have a merry Christmas and uses every minute wisely.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying


privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 12/24/2009 9:21 AM (GMT -6)   
Congrats UC Free this must be one hurdle of many that you have cleared. I am happy for you and your family. May the year 2010 bring you peace, joy and good luck.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 12/28/2009 10:27 AM (GMT -6)   
Glad things are getting better!!! Cheers to a GREAT 2010:)

candyland
Regular Member


Date Joined Nov 2007
Total Posts : 98
   Posted 12/29/2009 10:28 AM (GMT -6)   

Hi UCFree,

Congratulations on your GREAT news!  With a new baby and a new lease on life, your 2010 is bound to be a wonderful year! Best wishes to you and your family. 

 I do want to ask you a question tho.  I had my reversal surgery in May 2008 and have been a j-poucher since then (also a former UC sufferer) and I'm still having constant battles with pouchitis.  I've tried all kinds of things, antibiotics, probiotics, etc., but it seems that once I finish up with an antibiotic that works, the pouchitis is back within a week or two.  How did you go about taming the beast and what was the method that finally worked?

P.S.  For those with upcoming surgeries, please don't be discouraged.  This is the exception, not the rule and I want to emphasize that even pouchitis is 100x better than UC!!!


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 12/29/2009 11:06 AM (GMT -6)   
Candyland .. you CAN do it ... I have no real secret honestly .. I was on Cipro and then Flagyl and then on Cipro again for months on end .... here is what finally worked for me ...

My PCP called up an infectious disease doctor and he put me on a Bactrim / Flagyl regimen for 15 days (along with an Align in the morning every morning). That 15 days sucked .. the flagyl drains ya out !! After that for 2 days I felt like crap again. I then started VSL#3 DS in the evenings mixed with yoghurt. And that was it!!!

So now I'm on ...

1 lomotil + Align + metamucil wafer in the morning
(sometimes a metamucil wafer in the afternoon b4 lunch)
metamucil wafer before dinner
1 lomotil + packet of VSL#3 DS mixed with yoghurt in the evenings AFTER dinner

soon enough I'll be off my lomotil I know it .... but honestly it's been a blessing.

Hope this helps and please don't hesitate to email me or msg me if you have any questions!
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