Total colectomy and IRA for NHPCC

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

UKVince
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 12/28/2009 6:07 PM (GMT -6)   
Hello everybody...
This is my first post. This forum seems to be the closest to my needs I think !!
To fill you all in.. I had surgery and chemo in late 2003 for a carcinoma of the sigmoid colon. My last regular colonoscopy identified another polyp in my ascending colon this time. It's too big for removal by scope so I have to have more surgery. This time my consultant wants to do a full colon removal and IRA. I have to take his advice as I konw its the sensible thing to do. But am really scared about life without a colon. Will things change much? Will my diet need to change too? My head is all over the place at the moment. Surgery is scheduled for 27th Jan. I have not been able to find any forums for NHPCC sufferers but I guess Crohn's patients will have the same treatment for their condition. Any advice and support greatfully recieved. Thanks

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/28/2009 6:35 PM (GMT -6)   
they doing a colostomy or an ileostomy?
anyway, either way life wont change much. Just have to empty a bag instead of take a poop! lol.
at first you wont be able to eat certain things, but after about two months you will be ready to go! some people choose to stay away from nuts and seeds and popcorn, they can be hard to digest. I dont eat nuts or seeds, but i do eat popcorn.
Other than that all that will change is you will not have to worry abotu cancer or any of the other things a dumb old colon can casue, lol.
Im not sure what NHPCC is or what IRA is So i dont know if they affect things or not.
Anyway good luck with your surgery!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


UKVince
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 12/28/2009 6:42 PM (GMT -6)   
Hi summerstorm and thanks for a quick reply....
 
NHPCC is non hereditry polyposis colon cancer.
IRA is ileorectal anastamosis.
I will not need colostomy or ileostomy as my small intestine is gonna connect directly with my rectum.
This website is a god send....have found out so much in last couple of hours.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/28/2009 9:28 PM (GMT -6)   
oh im sorry i misunderstood what you were having done.
so you wont have to have an ostomy until the intestine gets "ready" for its new job?
anyway, even with that, one thing you do have to think about is dehydration, becasue your colon absorbs alot of the water that you take in.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


UKVince
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 12/29/2009 11:17 AM (GMT -6)   
yes thats correct, my surgeon will connect both ends at same time so defo no ostomy. Is dehydration going to be a big problem then?

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 12/29/2009 8:00 PM (GMT -6)   

You should be fine if you are keeping your rectum.  I have an ileoanal anastamosis (jpouch and no rectum) and do just fine.  I eat over 30 grams of fiber a day and exercise like crazy with no problems.  You may or may not have hydration issues.  I only drink 20oz of coffee in the morning and then don't drink water until I go to the gym around 4pm.  But we are all different so you will need to take care in learning what works best for you.  You can meet others who have the IRA at www.j-pouch.org   Most of the folks on that site had jpouch surgery for UC but we do have a few who had surgery for rectal cancer. 

 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


UKVince
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 12/30/2009 9:20 AM (GMT -6)   
Thanks Sue, will look at that site too.
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, August 23, 2017 7:11 PM (GMT -6)
There are a total of 2,859,124 posts in 313,731 threads.
View Active Threads


Who's Online
This forum has 155311 registered members. Please welcome our newest member, FreqFlier.
626 Guest(s), 13 Registered Member(s) are currently online.  Details
19tarpon47, Marley, Oldbuddy, RickTrin, Michael_T, dafight, Lover of Life, Octobrsky13, suttersmill, Fairwind, fiddlecanoe, J.Griff85, FreqFlier


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer