Trying to decide if I should reverse my ileostomy

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august4
New Member


Date Joined May 2009
Total Posts : 5
   Posted 12/29/2009 10:02 AM (GMT -6)   
Hi Everyone,
 
     I have read many response on this site and there is a wealth of information.   I even posted once.  I have an ileostomy for about 16 months.  I recently had a colonoscopy and my doctor has stated that all looks well and that I look like a good candidate for a reversal.  She even stated that it would help my colon's health.  Although this is good news, I am leary because when I had this done last year, it was because during a crohns surgery and reconnection, things let loose and I got major infections and was in the hospital for about 5 weeks.  I also have a kidney transplant and take immunusuppresants.  They think this may be why it did not heal 100% in the first place or it was simply something that happened.
 
     Has anyone else had complications the first time around and then had a successful reversal?  I know I can never have a guarantee; however, good news from fellow Crohns' patients would be helpful in my decision making.  Things also seem soooo much better right now with my ileo compared to the pain and long bouts in the bathroom prior to my surgery. 
 
     I am a 47 year old male with 2 children and an understanding wife.  I know that with a reversal, quality of life could be better...
 
Thanks for any responses!
 
Chris

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 12/29/2009 8:03 PM (GMT -6)   

I can't answer your question because I didn't have your experience but I can tell you of a number of people who had complications following these surgeries and were leery about doing the reversal for fear of more problems.  However, all the people I know sailed through the reversal the second time around and this will probably be true with you too.  It's sometimes hard to see the positive when we have experienced so much negative but keep the faith and trust your surgeon's experience.

Sue

 

 

 

 

 

 

 

67


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 12/29/2009 8:30 PM (GMT -6)   
Hi Chris,

Gather all the info you can from all of your care providers, then go by your gut instinct. good luck. Rosemary

lasbutterfly
Regular Member


Date Joined Nov 2007
Total Posts : 281
   Posted 12/30/2009 7:17 AM (GMT -6)   
Hi Chris.. I was in the hospital for 52 days this summer, so I understand somewhat how you're feeling.  I had surgery and 12 days later had to have emergency surgery.  Now, I have to do tests every 2 weeks, starting Monday and going through the beginning of March.  At that time, my surgeon is going to address me having surgery, yet again, in June.  I am very afraid, too, but sometimes we just have to go with our guts and either trust or not trust our surgeons.  In my case, I don't have a choice and am praying that my surgeon uses his knowledge and experience to make me well.  I hope that you can continue to be well, too..
 
butterfly
---------------------------------------------------
Chronic Constipation 11/06-7/07
Diagnosed Colonic Inertia May 2007
Total Colectomy with ileorectal anastamosis 8/07
Constipation again 3/09
Ileostomy with obstruction 5/09
Emergency surgery 6/09 ended with 3 fistulas , a feeding tube, 3 jp drains, and a leg bag with tube attahed to small intestine (52 hospital days)
Drains removed 7/09 and 9/09
Possible surgery for Brooke ileostomy 6/10

august4
New Member


Date Joined May 2009
Total Posts : 5
   Posted 12/30/2009 3:21 PM (GMT -6)   
Thanks for the replies! It is very welcomed. I am starting to lean to having it done. We are going to meet with the surgeon and thoroughly discuss this. Will let you know.
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