I need HELP! ... Please...

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cocotlc
New Member


Date Joined Oct 2009
Total Posts : 17
   Posted 12/29/2009 10:59 PM (GMT -6)   
I am counting the days until my colostomy...surgey is next Wed.  at 7am and I have absoutly no idea what I need.  I have no one to talk to regarding this.  My doctor said we'd go over it the day before surgery but I feel completely lost.  I have a few questions regarding what I need post surgey.
 
1st)  What type of supplies do any of you keep on hand in your restroom on any given day?... I have a small cabnet that I already keep my personal stuff like shampoo in but not much extra room so I wanted to know if I should get an extra cabnet/shelf for storage.  I plan to irrigate when I get the all clear if that makes a difference.
 
2nd)  What type of pain medication should I ask for?...I have read some of the posts that talk about epedural's.  I had one with my daughter but the tought of being awake during the proceedure sounds horrible.
 
3rd)  Can I take a bath after surgery?...the days following and then in the furture...or will I be showering?
 
4th)  How soon can I (have any of you) started to exercise after surgery?  I currently use an elipitical (tony little gazelle) and I run about 6-9 miles daily, with one day off.  It dosn't seem to engaged my tummy muscles but I don't know.
 
5th)  For fun...anything that I should do the night before surgey...what did you all do...
 
Thank you, I truly look to all of you for support.

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 12/29/2009 11:32 PM (GMT -6)   
First of all, congrats on the wonderful decision!! I had my colostomy surgery on Nov.23 and I have honestly never felt better. I was able to sit through my first movie at a theatre in about 10 years (and im only 32, missed lots of good movies!) and today waited in LINE at the bank with not a care in the world. Awsome. Ok, so Im going to answer your question's as they pertained to me when I had the surgery (only 5 weeks ago)
1. Depends on the pouching system you use. I use the Hollister 2 piece system with a closed pouch, Hollister cut to fit flat skin barrier's as well as convex skin barriers (depending on how Oscar is doing), coloplast paste, Eakin ring, colomagic disposable liners and a host of powders depending on how my skin and Oscar (my ostomy!!) are doing. I keep most of my supplies in my dresser drawer in my bedroom. In the washroom I keep one little basket that contains a few pouches, some paste and some ziplock baggies if I need to change the pouch. Really, not much in the washroom, my drawer however looks like a ostomy store exploded! I didn't get any of this until I was in the hospital recovering and my ostomy nurse just kept trying different things to see what would work.
2. Whoa...you will NOT be awake for the procedure. I chose the epidural and it was wonderful until the second day when the nurses rolled me over and it wiggled out a bit...less then 24 hours ater surger and I had NO pain medication. Was awful when it happened but when it was working (day of and following day) I had NO pain. I was on a Patient administered moriphine drip afterwards for 2 days, then an occasional shot until I was discharged. To take at home I was given a prescription for percocets. I think I've taken 2.
3. You can absolutely take a bath but you will have to wait until your healed (ie: incsion/drains), im able to take baths now, but prefer showers. In fact, every few days I take off the skin barrier/pouch and Oscar and I take a completely NAKED shower. It feels amazing.
4. The doc's say to wait at least 6-8 weeks before resuming exercise. Im in yoga withdrawl but on Jan.4 im going right back to classes, taking care with stretching my tummy of course. It's better to wait and make sure your healed rather then over-do it and have to go through the healing all over again.
5. I did everything the week-end before, ate Burger King and Kentucky Fried Chicken, decorated the house for x-mas and just did stuff that I knew I wouldn't be able to do for a few weeks. Now however...the only thing I can't do is vacuum (for another few weeks...according to the dr.) or lift anything too heavy. I've honestly never felt better.
Good luck with your surgery!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

-Allie
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 12/30/2009 8:54 AM (GMT -6)   
Allison~wow, you sound great :-)

cocotic~glad to hear your date is almost here! Don't feel lost, we'll help you :-)

1. I would let your WOCN pick the right system for you. You can always call the major suppliers after and get samples but there is no point until you know what your stoma will need!

2. That is a personal thing...I always chose general anesthesia but had had an epidural once...just preference.

3. Like Allison said once everything is healed...they can weaken your skin before it's closed.

4. Personally, after my last surgery it was closer to 12 weeks, but everyone is different!! You can always start walking around the yard or to the mailbox as soon as you feel strong enough smilewinkgrin

5. ATE!!

Bring an MP3 player or Ipod to the hospital...they are great for blocking out noise. Also, a robe and slippers without backs will allow you to go walking the halls without having too much assistance!

Good Luck:)

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/30/2009 10:20 AM (GMT -6)   
1. in my bathroom i have all my supplies, up on a shelf in the closet and i have taken empty bag boxes and i have 6 of them filled with what i need for a change (wafer, bag, paste, trash bag, rags, paste, sureseal and scissors and some tape) that way wheni need to change, i just grab a box and am ready. But like on a daily basis, all i use is toilet paper and if i go somewhere i might put in a few m9 drops or my gel tabs.

2. I think i had the epidural but i cant really remember. I do know that once i started with oral painmeds, i also asked for phenogren, cause they make me feel kind of sick.

3. you can bathe and get in the hottub and the swimming pool and all that good stuff, but liek they said only after your inscions heal all the way.

4.you can walk and you should, but you should probably wait a while before you take off running 6 miles, lol probably wont feel like it anyway! and esp with stomach exercises, start off slow with those and probably wait at least 2 months. You dont realize just how much you use your stomach muscles for until they are cut!

5. I spent a lot of time playing with my son cause i knew he would be living with my grandma until i was recovered. And i was too sick really to do anything.

take some gas-x to the hosptial! it will be good to have!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


pghfan
New Member


Date Joined Dec 2009
Total Posts : 4
   Posted 12/30/2009 7:36 PM (GMT -6)   
I was diagnosed in 2000 with crohns. I started with an abcess, then fistulas, which was followed by rectum removal. Before the removal I had an ileostomy for a year tro rest my large bowel. That didn't work. I use Hollister Extendwear appliances. I can go up to 7 days with the wafer and they're comfortable. I also use the pouch liners so I only need 1 pouch a day. I found that a little liquid soap in the pouch ring makes a better seal.

cocotlc
New Member


Date Joined Oct 2009
Total Posts : 17
   Posted 12/31/2009 12:04 AM (GMT -6)   
Thank you everyone!
 
pghfan: Thank you for the advice on extended wear unit.
 
summerstorm:  Thank you so much for all your advice.  I feel much better.  I wasn't sure if I need to perpair alot of space of just a small area.  My closet is a walk in but I keep it pretty full.  I think that keeping the supplies like you said might work out great.
 
OHIO76:  I am struggling to find the time to spend with my little one, although I am despertly trying.  The last two weeks are the most busy for my job and have been hard.  I am also trying to tie every lose end up but I do understand the importance of spending time with our little people.  This afternoon we were able to go outside have a pretend picnic and then lay back and look at the clouds.  It was a short time but GREAT time.  Thank you!
 
Allison77:  What can I say other than thank you!!!  I still feel that I may not be doing the right thing (surgery) but I hope I am.  I have struggled with cronic constipation literally my entire life.  I eventually had tried every medication o/c and rx that existed and the only thing that occassionally worked was 1 gallon of GoLytly every other day and even that didn't work regularly.  I really appreciate all of you advice and would like to let you know that you have made my evening.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/31/2009 11:11 AM (GMT -6)   
anytime you wonder if you are doing the right thing, just think of the the pain you are in, and having to drink that stuff everyother day,, and remember that will be over! andthen you will know for sure you are doing the right thing.
I had literal pro and con list and a mental one too, and when i would start to doubt my decision, or come up with a stupid reason not to do it (i almost called offsurgery because i was afraid i wouldnt be able to cartwheels afterwards) just htink of that list!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 12/31/2009 4:52 PM (GMT -6)   
Im so happy I was able to make your day! You will be great cocotlc, and you will wonder why you didn't do it 10 years earlier.
Like Summerstorm said...bring some Gas-X to the hospital with you, will take a while for the nurses to get an order ready for you and it's nice to have on hand when you start feeling the bloat. Ohio hit the nail on the head, bring a robe and slippers with grippy bottoms. You want to get up and start moving around as soon as possible and the robe and slippers will be nice to have. My husband downloaded a bunch of movies onto my laptop and we had movie nights with my roomate and some of the nurses and even some interns. Hint...don't watch scary movies while in the hospital...bad idea. LOL. I too had a good/bad list for the surgery, and my list included things like "I'll be able to go out onto the highway to pick up trash/bottles" Now im not sure if that is good or bad, but you know what? I can do it now if I want too.
I'll be thinking of you, and if you have any other questions, please let us know!!!!

-Allie
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 1/1/2010 2:37 AM (GMT -6)   
Cocotic- Don't sweat the small stuff.  But, do me a favor, would you?  Make a list of the things you couldn't do before your surgery.  Try to be creative.  Maybe it's hang gliding or mountain climbing, or whatever.  The choice is yours.  All of us were limted by our previous respective illnesses. Now.....realize that you can now do ANYTHING that you couldn't do before!!! 
I'll even give you an example.  I had my surgery in '89, but prior to that I so wanted to go hot air ballooning.  There's no  way I could have done that prior to my surgery.  But, it was one of the first things I did after my ostomy!!!
I remember a while back, a brilliant person (okay...I'll admit it...it was me!)started a thread about the things they can do now that they couldn't before, and a lot of people chimed in with some really cool thngs about how their ostomy has given them a new lease on life.   
 
Make yourself a list, and please try to focus on the positive things that your ostomy will bring you!!!  Believe me...in many ways your life is only now beginning!!!! Trust me!!!
 
PS.  Anyone up for skydiving????

Post Edited (vette guy) : 1/1/2010 1:44:09 AM (GMT-7)


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 1/1/2010 12:05 PM (GMT -6)   
Sky diving??? Im in.
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


cocotlc
New Member


Date Joined Oct 2009
Total Posts : 17
   Posted 1/1/2010 11:24 PM (GMT -6)   
Thank you for your kind words...sky diving...sounds great

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 1/2/2010 12:45 AM (GMT -6)   
cocotlc said...
Thank you for your kind words...sky diving...sounds great
My cousin and I were going to do it a few years back, when I lived in New York....but we chickened out at the last moment!!!
As they say...."what's the point of jumping out of a perfectly good airplane!!".
 
 

Post Edited (vette guy) : 1/1/2010 11:48:50 PM (GMT-7)

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