New Patient With J-Pouch, need help with diet/meds

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mslee4evr
New Member


Date Joined Dec 2009
Total Posts : 8
   Posted 1/2/2010 6:17 PM (GMT -6)   
Need help.  Had my takedown on 11/23/09 and really wasn't told what to expect.  Can you all help me?
 
I am at a phase where my body feels like it has to have a bowel movement all the time.   i will go and it is just little pieces, but i still feel the pressure there in the rectum and it hurts to the point that my bottom bleeds.   this part conxerns me.
 
Another thing is that i can do this like 10-20 times a day.  If I don't eat too often, like in the evening, i know that i will have a BM the next evening, but i have been trying to get my body ready b/4 i go back to work on Monday the 4th.
 
i have spoken to my nurse who just says it is all normal, but still doesn't give me an idea of what i am to expect.
is this normal?
 
if anyone could give me assistance, i really would appreciate it.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 1/3/2010 9:05 AM (GMT -6)   

This is normal for recovery but you can do things to improve the situation.  Are you keeping a food log?  If you write down everything you eat you can gauge your transit time and comfort levels.  Foods that go through to fast or are too uncomfortable should be set aside and tried later.  Are you taking lomotil or imoidum to slow things down?  If not you should give them a try.  Two after every meal and then adjust as needed.  You can take up to 8 per day.  Have you tried adding fiber to your diet?  Many pouchers swear by Metamucil wafers, not the powder but the wafers.  It thickens things up and helps reduce burning upon elimination.  Are you using calmoseptine on your sore butt?  If not you might want to try it.  And lastly I recommend you visit www.j-pouch.org  There are over 6000 pouchers on that site who can give you advice and support.  It took me a good six months to get somewhat better.  Recovery should be measured in months, not days or weeks.  It will get much better though!

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


mslee4evr
New Member


Date Joined Dec 2009
Total Posts : 8
   Posted 1/7/2010 6:43 PM (GMT -6)   
Thank you for the comment of "taking it by months, not days or weeks" that seems to really help me out.
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