Burnt bottom and housebound.

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Pinkrider
New Member


Date Joined Mar 2007
Total Posts : 6
   Posted 1/3/2010 6:45 PM (GMT -6)   
Hi all, I had my final surgery in April 2009 and have struggled ever since with a sore bottom!
 
It's been so bad for a few months to the point where my body clock has been bashed out of routine and I struggle to sleep, I usually end up on the recliner armchair which for some reason, is far more comfortable than my bed? In fact, I seem to settle a little easier when I sit up in bed - this is obviously not a long term solution! I am also starting to regret ever having the reversal - why did I try and fix what didn't need fixing?! :(
 
Anyhoo, I have had to wear sanitary towels ever since my first surgery in October 2009 and I'm getting pretty sick of them, they do nothing to help my sore bottom but unfortunately, I need to wear them. eyes 
 
On a really bad day, my bottom can be very itchy (I try very hard to refrain from scratching!) and weeps * a lot* which means creams that my Doc prescribed are useless. I cannot make the five minute walk to the shop because of terrible soreness, I also seem to seep leaks that I can't control as they are so (for want of a better word) trickly.
 
I'm getting married in six months to a wonderful man who would move Heaven and Earth to make me better but is at a loss because we're having no luck. My GP has told me several times that he's never ever had a patient like me in all his years in medicine - that sure didn't make me feel better! Lol.
 
I  have skimmed over some posts on here and have decided to try thickening foods and creating a food diary (which might help me lose weight!) and have also made a note of some of the stuff everyone seems to be using to help.
 
Thanks so much in advance for any replies.
 
I thought I would edit to add that I have tried Lopermide which didn't seem to help - even when I took 12 in one dose! I was prescribed a nappy rash cream but it doesn't clear the red raw sore bum up for very long. So fed up of not having this alleged normal life that my surgeon said I would have...cry

Post Edited (Pinkrider) : 1/3/2010 5:49:49 PM (GMT-7)


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 1/3/2010 7:36 PM (GMT -6)   
I used baby creams and they helped. Maybe you just need to keep using them until other things work-out for you.

Metamucil was my thickening help. I had a pretty strict routine of eating and exercising so body wouldn't throw me too many scary experiences. Oh one bum exercise was tightening bum cheeks 15 times and do it a few times day. For me it gave me some control when for a while I had no control at all.

Hope you get it all figured out for yourself.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 1/3/2010 9:27 PM (GMT -6)   
Also try sitz baths. You can add a tablespoon or two of Aveeno to the warm water (buy the box of packets, the type that is recommended for tub baths, for poison ivy). If you don't have Aveeno, baking soda will suffice.

You can purchase plastic sitz baths from your pharmacy.

I've found that soaking in them several times a day when I was raw from going so much, really helped. Also, try sleeping w/o underwear if possible. Allowing air to help heal your irritated areas.

I did the butt clench exercises too. And kept a food diary. What has helped me the most is a low residue diet. I am still on it about 75% of the time. Have been for 10 years now. A LRD might not be a good idea for you (I have multiple bm's, as long as I eat, so plain foods seem to be my friend, as opposed to high fiber, which makes things much worse for me). This is why a food diary is a God-send, you'll see a pattern begin to form of foods that agree with you and also identify which foods irritate your GI tract. Avoid the ones that bother you, obviously. Any notebook will work.

Good luck to you. I hope you begin to feel better soon.
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening

Post Edited (Marsky) : 1/3/2010 8:30:20 PM (GMT-7)


Pinkrider
New Member


Date Joined Mar 2007
Total Posts : 6
   Posted 1/4/2010 4:13 AM (GMT -6)   
Thanks for the replies, I will definitely look into trying all of the suggestions you've all given me.

I just don't want to spend my wedding day having to sit down because of my bottom, or spend my wedding night changing sanitary towels. :-o

Thanks again. :)

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 1/4/2010 9:06 AM (GMT -6)   
Hi pinkrider, have you tried Lomotil? Since i had part of my large bowel removed from crohns i suffered with D was put on loperomide, Immodium but never really done anything i then was put on Lomotil which was brilliant i only had to take two tabs in the morning and wouldn't need to use the toilet till early evening and yet i ate and drank loads throughout the day!! As i have a temp stoma at the moment don't need it but will be going back on it once the reversal is done. maybe worth a try good luck hope you get relief soon. Bev x


resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs


reversal 27th Jan 10. B12 shots, every 3 months, iron syrup,loperimide,folic acid, citalopram 60mg<FONT color=blue> (for Anxiety.)

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