Please keep us in your thoughts

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Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 1/4/2010 10:03 AM (GMT -6)   
Hi. My 18 year old son, Dillon, is having his J pouch built this Friday morning. Four months ago he had his colon removed and after being so sick for so long it was wonderful to see him healthy again. I am getting very apprehensive about this upcoming surgery but know that we just need to look down the road when he will be feeling better. We are not sure if the surgeon will connect the pouch in this same operation. We have been told that 80% of her patients are connected and the other 20% are given a loop ileostomy while the pouch heals. This is dependant on how she finds the health of the tissue once she gets in. So...I am not sure what we will be dealing with immediately post surgery....could be a loop ileostomy or all the pooping issues that come with the working pouch.

Anyway..please keep us in your thoughts and if you have any insights I would love to hear them

Thanks,
Cathy

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 1/4/2010 10:19 AM (GMT -6)   
Hi Cathy,
 
Best of luck to your son and prayers are on the way that the surgery is a complete success, and with the best possible outcome, as well as a speedy recovery!

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 1/4/2010 11:16 AM (GMT -6)   
Hi Cathy, will be praying for you all that everything turns out well will think of you on friday best wishes and a speedy recovery Dillon! Bev x yeah
Diagnosed at 13 now 43
Resection, Right Hemicolectomy 1993 In remmision from 93 till Sept 09.
Jan 09 2 resections of small bowel & Fistula. Temp stoma given.
Reversal scheduled 27th Jan 10
Meds: Iron syrup,Loperimide,Folic acid, & Citalopram 60mg (for Anxiety.)

Never be afraid to try something new;
remember amateurs built the ark, professionals built the Titanic.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/4/2010 12:07 PM (GMT -6)   
good luck and i am thinking about yall
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/4/2010 12:30 PM (GMT -6)   
I'll be thinking of both of you on Friday!! Just remember...younger ones tend to bounce back much easier!! I think there were two teenagers, who posted, who bounced back to being fun loving kids after their surgeries...but, it is a Mom's job to worry:(

Make sure he brings his MP3 player or Ipod...:)

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 1/5/2010 12:27 AM (GMT -6)   
Friday will have extra prayers for Dillion and that it all goes well.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 1/5/2010 8:27 AM (GMT -6)   
Thank you all for your kind thoughts...you are all wonderful people!

killcolitis
Veteran Member


Date Joined Dec 2009
Total Posts : 2396
   Posted 1/5/2010 12:02 PM (GMT -6)   
Collicat,
You and Dillon will be in our thoughts. I hope this is the beginning of a very healthy future for him. Best wishes.
Sherry

killcolitis
Veteran Member


Date Joined Dec 2009
Total Posts : 2396
   Posted 1/5/2010 12:05 PM (GMT -6)   
Collicat,
You and Dillon will be in our thoughts. I hope this is the beginning of a very healthy future for him. Best wishes.
Sherry

mamaluke
Regular Member


Date Joined Apr 2009
Total Posts : 55
   Posted 1/5/2010 4:14 PM (GMT -6)   

Hi there

 

just checking in to wish Dillon all the best. Anthony is now 8 weeks post op from the third and final j pouch surgery. It has been a slippery slope but it seems as though he is beginning to turn the corner. I am writing to tell you that you must remind yourself and your son that patience is in order after this surgery. Don't expect miracles right away. Make sure you have the butt burn cream from the very start - it is crucial in the beginning.   Anthony was very discouraged initally, but it IS getting better now.  Be prepared for a little slower recovery and know that that is normal. That said, he is back to work just about full time and is gradually able to eat more and more. He initially lost a good  amount of weight after the third surgery, but seems to be stabilizing now. Even though the dreaded ostomy bag is gone (!!!!!) there is still an adjustment to the pouch. I can truthfully advise you to try to measure improvement by the week, and not by the day. He had the surgery on Nov 7 and then had a complication two weeks later. So, Thanksgiving was still tough, but the difference between Thanksgivng and Xmas was very  encouraging. He is defnitely trending up. I write mostly to tell you to be patient and know that though it might be tough in the beginning, it does get better. A lot better :)

Everything that has happened and that we have learned is too long to fit into an email, but you are most welcome to contact  me at anytime at mmarchi667@aol.com. If you have specific questions, we are full of answers. We wll both have Dillon in out thoughts this week. Good luck and please keep us posted and don't hesitate to contact us - if you want a phone # to call, just email me

 

Maria

 


Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 1/5/2010 8:14 PM (GMT -6)   
Hi Cathy!

How are you??? I have been thinking about you and Dillon so much lately. I am so glad that the time is finally here! I am so excited for Dillon. I will light my special candle for him and will be thinking about you guys on Friday:) I can't believe that 4 months have already gone by! Today marks 3 months for me and my reversal is scheduled for the 19th (as long as my flex sigmoidoscopy looks good this Thurs). I am sorry that I don't have any advice other than pray, pray and pray but I am sure that "chewing" and "walking" are still safe to say:) Don't be nervous, just BELIEVE that HE will take care of everything.

Take care,
Darlene
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009


Clicky
Regular Member


Date Joined May 2008
Total Posts : 166
   Posted 1/5/2010 10:20 PM (GMT -6)   
Hi Colliecat,

You are in my thoughts and prayers! Thank you for all your support - you and Dillon deserve all the success in the world :)
Diag proctitis 97
Major flare and extension to left sided colitis Aug 2006 - present

I have bled every day since Aug 2006 (I quit smoking in June 2006)



Imuran (Azathioprine) game me liver damage. LDN no luck.

Was on lots Asacol and mesalazine enemas - now seems to be making worse.

Back on Prednisone :(  Valium to control prednisone side effects.

Booked in for JPouch Jan 2010
 


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 1/6/2010 10:58 AM (GMT -6)   
Good luck! You both will be in my thoughts.
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

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