Why can't I get my pouch to stick?

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gierry
New Member


Date Joined Sep 2009
Total Posts : 8
   Posted 1/10/2010 6:14 PM (GMT -6)   
My husband has surgery about 3 weeks ago and is doing great, thank you God! We found out in 2008 he had UC and he has lost over 70 lbs. in 4-5 months. He lived near the bathroom and none of the meds worked. The doctor wanted  him to use a pouch so the colon could rest and maybe heal. We will see in 4 months if they will reattach or if the colon is still "sick" they will take the colon out and do the jpouch.
Our problem now is we can not get the pouches to stay 3-5 days like the nurse said they shoud. We have had to put on a new pouch for the last 3 days. They either leak or we see where they are leaking about 3 or 4 inches around the stoma and getting on his skin. We have used the one piece bags and the two piece bags the hospital sent home and Hollister sent samples for us to use. We use the paste (Adapt) from Hollister, but it doesn't seem to help either. He has had some that stayed on 5 days without leaking. When he went back to the doctor the week after the surgery the pouch the nurse put on even leaked around the circle where the pouch attached (2 piece system) and was all over his skin. Do we need a new kind, more practice, any suggestions would be appreciated.

Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 1/10/2010 7:41 PM (GMT -6)   
Hi threre!  I feel your pain.  When I first got my stoma, my bags (pouches, sorry vette guy but don't want my reply to be confusing!) would also stay on for 3-4 days.  I noticed that as time went on (after 2 months or so), my stoma retracted and I started to get leaks.  I then went to a new bag/pouch from Coloplast that is convex.  I place a barrier ring directly around my stoma and then attache the bag/pouch over that.  I make sure to press really hard around the edges so that it will stick to my skin.  I can now get 2 days out of that which is better than 1!  Good luck!
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/10/2010 9:36 PM (GMT -6)   
the stoma changes size constantly for the first couple of months so you need to measure everytime at first, just to make sure.
Please tellus what you are doing, so we can troubleshoot for you!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1243
   Posted 1/10/2010 10:32 PM (GMT -6)   
Don't let anyone tell you how much wear you should be getting from a certain brand. Everyone's skin is different and a product that will stay on for a week for one person, another person will only get a day out of eg many people love Hollister and can get 5 - 6 days wear from their wafers, I can only get 2. I love Coloplast which sticks to me for a week, but others may only get 2 - 3 days from them.

That said, the best thing to do is experiment with different brands. Another brand may like your skin better and stick longer.

If you go to the manufacturer's websites you can order free samples to try out

www.coloplast.com

www.convatec.com

www.hollister.com

www.dansac.com

They're a few of the main manufacturers of ostomy supplies.

Good luck.
Ileostomy for 33 years due to UC

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 1/11/2010 1:59 AM (GMT -6)   
For what it's worth...I change my appliance 2-3 times a week, primarily because I'm a very physically active person.  Also, because your husband is still healing...I think expecting to get a week out of an appliance is really stretching it...just my opinion.

Post Edited (vette guy) : 1/11/2010 1:13:00 AM (GMT-7)


gierry
New Member


Date Joined Sep 2009
Total Posts : 8
   Posted 1/11/2010 7:18 PM (GMT -6)   
Thanks so much for your help. It is good to know that my husband is not the only person that can't keep a bag/pouch on for 3-5 days. Thanks Shaz032 for the web sites. I will try those now. The only ones we have used are the ones the nurse sent home with us and she had Hollister to send samples. We will try the different brands. I don't know why the nurse didn't suggest different brands. Thanks again

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 1/12/2010 4:28 PM (GMT -6)   
I always wondered if hospital gets incentives to use one kind or another. It took me Forever to get things under control. hey doing much better these days,but it has been 5 months. So yes, patience is still important.

I had every company I heard about send me some samples and it really was eye opening to try the different ones and see how they worked. I wish I could have all the things I liked from each one and have the super appliance. Maybe someday.

Anyway, hope you don't give up after one try on some because they are all a little different and it seems to take time to get used to the whole procedure. It is so great to be writing this because as some people on here know I have had my problems with this stuff.

Good luck and let us know how things go.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 1/12/2010 6:39 PM (GMT -6)   
My life TOTALLY changed when I discovered Eakin Seals. Well, I didn't discover it, I read about them on this site. I could go through a bag/pouch/purse every other day and it would pull away from my skin no matter what product I used. With this particular seal (the EAKIN only - other companies make seals, pastes and such) sometimes the whole bag/pouch/purse can be away from my skin and the seal is the only thing holding it together until I can change it (and soon though). I can only last for 4 to 5 days but it's SO much better!
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/12/2010 7:30 PM (GMT -6)   
they dont get incentives so much as they usually have one brand they get free samples from, like with baby formula. And thats the only one they get them from
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-

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