Pros vs. Cons of the BCIR procedure?

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lasbutterfly
Regular Member


Date Joined Nov 2007
Total Posts : 281
   Posted 1/22/2010 10:36 AM (GMT -6)   
I'm wanting to hear from anybody that has had the BCIR procedure, knows someone with it, or has research it.  What are the pros/cons?

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/22/2010 11:02 AM (GMT -6)   
I know one con is that it is only done in a few places...have you looked into a K-pouch?

XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 1/22/2010 1:55 PM (GMT -6)   
Lori-
There is a lot of info at uoaa.org in the kpouch corner section. The BCIR is a form of a modified kpouch, but each surgeon has his/her own modifications that each institute does. It is not performed everywhere as we all know. YOu know I am having a kpouch at CC on Monday and I have done much research so you can ask me anything you want and I will do my best in amswering. The biggest complications are a slipped valve, fistula, and pouchitis. You would be very low risk for the pouchitis becuase of your inertia vs. inflammatory bowel disease. Dr. David Dietz is performing mine and he is supposed to be great. I know Wexner does not do them. Its not a perfect surgery, but many many pts have great satisfaction from the surgery and quality of life. Miss you and hope your well.
Lizzie
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia (Anismus)
Admitted with Small Bowel Obstruction April 4, 2009 and emergency ileostomy 4/13
Re-admitted with abdominal abscess. Released 4/24
Cleveland Clinic twice for 3/4th referral. Anismus undetected (no medical explanation)
Retracted stoma-infection/skin breakdown.
Ileostomy Reversal- Oct 8, 2009. Ileus/Dehydration 10/13. New rectal dysynergia-biofeedback-11-19
Bowel Obstruction 1-7-10 through 1-19....PICC, Tpn/Lipids...transferred to Cleveland Clinic 1-19 for BCIR (k-pouch)
"The Greatest Healing Therapy is Friendship and Love"


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 1/22/2010 4:15 PM (GMT -6)   
The BCIR and the k-pouch are the same surgery but the BCIR has a proprietary valve. You can talk with BCIR patients at www.bcirostomy.org
The BCIR is only practiced in 2-3 hospitals in the nation; the k-pouch is available in more locations. Any surgery to remove the colon and rectum ( s, w, t, k, or jpouch, and bcir) comes with pros and cons. There is no option that comes without disadvantages. The key is knowing if you can live with the shortcomings. I think before choosing your option that you talk with patients of both k and BCIR options. Getting real information from those who live it is best.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


lasbutterfly
Regular Member


Date Joined Nov 2007
Total Posts : 281
   Posted 1/23/2010 5:54 PM (GMT -6)   
Lizzie, I am praying so hard that everything goes perfect for you with your upcoming surgery.  It is all that I can think about.  It seems like all of our problems and surgeries are starting to consume me and all of a sudden, I am really scared.
 
After your surgery, I hope that I can ask you some questions.  I know that you don't feel well now.  I really want to know what the chances of obstructions are, and if you know if anyone at Cleveland Clinic Florida does the k pouch surgery?  You had said that Dr. Wexner doesn't do them. 
 
My husband won't even discuss surgeries other than an ileostomy with me.  I'm going to talk with Dr. Wexner in March and see what he has to say.  This has to be my last surgery.  I don't want to go thru any more.  How did you talk your husband into listening to you and consider the k pouch or bcir surgery?confused
 
butterfly
---------------------------------------------------------------------------------------------------------------
Rectocele/cystocele surgery 8/06
Chronic Constipation 11/06-7/07
Diagnosed Colonic Inertia 05/07
Total Colectomy with ileorectal anastamosis at Cleveland Clinic Florida 8/07
Constipation again 3/09
Ileostomy with obstruction 5/09
Emergency surgery 6/09 ended with 3 fistulas , a feeding tube, 3 jp drains, and a leg bag with tube attahed to small intestine (52 hospital days)
3 blood transfusions 6/09
Drains removed 7/09 and 9/09
Possible surgery for Brooke ileostomy at Cleveland Clinic Florida 6/10
 

lifescircle
New Member


Date Joined Jul 2014
Total Posts : 11
   Posted 7/4/2014 11:33 AM (GMT -6)   
These posts were written a while ago. How are you all doing now? I'm researching possible K Pouch or BCIR for myself. Any and all advice and input are greatly, greatly appreciated. Particularly factual statistics and firsthand experience. Many Thanks.
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