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cocotlc
New Member


Date Joined Oct 2009
Total Posts : 17
   Posted 1/23/2010 1:34 AM (GMT -6)   
I have gained 10 pounds over night...I am not kidding!  I am only three weeks post op and my diet has not changing very much and I am still keeping active...Anyone have a clue....Also when can I exercise?

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/23/2010 5:40 AM (GMT -6)   
You are not alone!! I gained a lot of weight with my ostomy mad I guess, for me, not running to the bathroom every five minutes did it.

I have been able to maintain (after getting back to my desired number) my weight with food choices and exercise. There really isn't a magic pill to do it! I also prefer to eat my calories than drink them. Have you increased liquids w/calories?

As far as exercise, nothing strenuous for a little while longer (what time frame did you doc give?)...but you can walk! Walking is a great way to keep yourself moving and there's not twisting or lifting!!

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 1/23/2010 6:06 AM (GMT -6)   
You're gaining weight?  That's like someone complaining that they've maxed out on their FICA, and they no  longer qualify for a Roth IRA!!! Good for you!!!! Cocotic, not only is the glass half full.....it's overflowing!!!!  Keep it up!!!

 

Post Edited (vette guy) : 1/23/2010 5:09:24 AM (GMT-7)


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 1/23/2010 8:28 AM (GMT -6)   
I've lost 26 pounds since surgery, but I have been really struggling with dehydration and appetite loss. My appetite is back now, though, so I could see weight gain in the future. My doctor has ok'ed exercise now, but, of course, I have to keep the incision and wound in mind when doing so and not do anything strenuous.
26 year old female
Diagnosed with unspecified UC 11/08
Asacol, Prednisone, 3 infusions of Remicade with no success
8/09 colonoscopy shows that the whole colon is affected
12/18/09 First part of J-Pouch surgery; recessed stoma impossible to keep a bag on
12/30/09 Second part of J-Pouch surgery too soon; fistula
1/9/10 Second Ileostomy Surgery with sparing of the J-Pouch
Now just trying to make it 6 months with keeping a bag on until we can try the next surgery again


babygirl10150
Veteran Member


Date Joined Jul 2006
Total Posts : 639
   Posted 1/23/2010 11:12 PM (GMT -6)   
I gained ALOT of weight after my colostomy, like almost 60 lbs! I was eating better, exercising but was still gaining. Ended up going to the dr and she gave me weight loss pills which worked wonderfully! I got down to a healthy weight and managed it.
Michelle

~Nissen 12/14/09~


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 1/24/2010 8:03 AM (GMT -6)   
Hey folks'...when all things are constant, after your surgery...the one thing that is now inconsistant is the fact that YOU ARE
NOW HEALTHY!! Imagine that!!  Isn't a healthy life grand???  We have to watch our weight now...just like "normal" people!!

Post Edited (vette guy) : 1/24/2010 7:09:07 AM (GMT-7)


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 1/24/2010 8:06 PM (GMT -6)   
I lost alot of weight leading up to my colostomy(129lbs down to 109lbs). I was having a major Crohn's flair and survived on Booster Juice's and mashed potato's for about a month. Now that I have been eating everything (including meat...OMG animals are tasty...please don't give me flack) I've gained about 15 lbs. Yoga is really helping me keep off the calorie up take that I have been indulging in, and running around with the new business helps as well. I was allowed to do easy yoga after 6 weeks, but I have to wait until 12 weeks has passed before I can do anything really strenuous. Though I am really afraid of hernia's. I am wondering when, if ever we can start doing crunches??
-Allie
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 1/24/2010 10:50 PM (GMT -6)   
I am kinda afraid of hernias too. Have tried to read all about hernias and ask my Dr. brother in law questions because his specialty is recovery from surgery and illness. What ever excerise you do we must be extra careful not to hold our breaths and to use good posture at all times with energy expenditure.

I have gain some since ostomy but some is lost muscle mass and some is fat from eating junk I have been deprived of for a long time. I frankly liked being 100 when I am only 5 ft. 2 in. I try really hard just to be active and eat good food and not too much junk.

Have to say it's good to feel more normal and not hurt all the time.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying


cocotlc
New Member


Date Joined Oct 2009
Total Posts : 17
   Posted 1/24/2010 11:49 PM (GMT -6)   
Weight gain has always been my problem. I had EXTREM constipation, only going once every two to three weeks. I was so excited about the idea of emptying like "normal" folk and had the idea it may help weight loss. I am going so much now, like emptying the bag 3-5 times daily. (Colostomy, post op-2 weeks) I am not drinking my calories by any means. I have 1/2 glass of diet apple juice mixed with water in the AM with a fat free yogert. Some sort of snack like 4 Ritz or a Banana, then 1/2 cup soup or half a chesse sandwich for lunch. Another light snack typically eaither 2 peanut butter cookies( the size of a sliver dollar) or a fruit cup. Dinner is typically 1/2 cup of white rice, 1-2 oz meat, and 1/2 slice of bread. In the evening I might enjoy a glass of black coffee or sugar free hot cocoa. The only other things going in my mouth are water, tea (no cream or sugar) and about two hard candies a day. I don't know where the weight is coming from....

Stacey4127
New Member


Date Joined Nov 2009
Total Posts : 16
   Posted 1/25/2010 9:39 PM (GMT -6)   
Hi all

I just had a sub-total colectomy and had an temporary ileostomy placed. I went into surgery weighing 135 pounds, I now weigh 114 pounds. I have been eating like crazy and not gaining a pound. I guess everyone is different. It is really strange how some people gain weight and some lose so much with these surgeries. My surgeon stated to me once I have the reversal I will start to gain the weight back. I will be so glad when that happens, as I don't look good at 114 pounds, just look very unhealthy, even though I feel healthier than I did prior to surgery. Strange.

Stacey
1994 - exploratory laparoscopy
1998 - emergency laparotomy ovarian cyst
1999 - emergency laparotomy removal of left ovary and endometriosis
2000 - total hysterectomy - laparotomy
2001 - laparotomy removal of mass which was adhesions
2001 - laparotomy due to complications of previous surgery
2003 - laparoscopy removal of adhesions
2006 - laparoscopy removal of adhesions
2009 - 12/17/09  laparospic subtotal colectomy with anastamosis and removal of adhesions
2009 - 12/26/09 - open laparotomy due to leak from subtotal colectomy - ileostomy placed
2009 - 3/2009 [ REVERSAL SCHEDULED]


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/25/2010 10:35 PM (GMT -6)   
yall i have gotten so freaking fat! all i wanted to do was eat all the stuff i couldnt eat before! and at first i was working out so i could do that. I would literally go to the gym and throw away the cup my milkshake was in when i walked in, lol. But then i quit going to the gym but kept eating so i got fat!
(and btw animals are tasty, lol, went to sticky fingers for dinner!)
Anyway, so now, since we are going on a cruise next year i gotta get skinny so the cute guys will look at me, lol.
So i have been doing wii fit and trying not to eat as much, or drink soda
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/26/2010 7:13 PM (GMT -6)   
do I assume sticky fingers is BBQ?! lol

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/26/2010 7:22 PM (GMT -6)   
yes it is! best ever!!! I could live there, lol.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


damagedgoods41
Regular Member


Date Joined Sep 2009
Total Posts : 377
   Posted 2/1/2010 1:19 AM (GMT -6)   
Hi i would like to say that ive had my ileo for nearly 10 years and when i had the first of many operation's, i went from 8stone to nearly 12 stone and have no idea why myself as i hardly ate anything for almost 2 years until my appetite changed. It took me a couple of years to loose all of the weight and am now a healthy size 8-10 in aussie sizes. I hated the weight gain as i just balloned overnite and it was horribly uncomfortable for me espe cially in the hot weather we have here in Aus!!!! If it's causing you alot of stress go and see ur doc and they may be able to help you loose some. Look after yourself.
 
sincerley,
 
beverley......
 
Permanent ileostomy,radical hysterectomy & bi-lateral ophrectomy,bi-lateral mastectomy,atonic bladder.
DX chronic depression,bi-polarr11,panic disorder & o.c.d.!!!
Currently taking Avanza 30mg,Abilify 20mg,Seroquel 200mgs,Asprin,Valium 5mgs & Sandrena HRT gel 1.0mgs
Strive to be a success but rather to be of value!!!!!!!
 
Dont count the day's,make the day's count!!!!!!
 
No more revenge now;I will think upon revenge!!!!
  • I dont knowthe key to success,but the key to failure

    is trying to please everybody!!!!!!!!!!!

    Life becomes harder for us, when we live life for others!!!

    Without music, life would be a mistake!!!!!!!!!

    Im not young enough to know everything!!!!!!!!

     

     
     
     
     
     
     
     


    privey
    Regular Member


    Date Joined Oct 2009
    Total Posts : 453
       Posted 2/1/2010 1:50 PM (GMT -6)   
    At one point I was so heavy I had gastric bypass in 2002 and weighed in at 399.9#. Yes I was a very big girl.... after all my surgeries these past few years I've been up to 113 lbs but for some reason dropped 7 of them over the holidays. Me and 106 do not look healthy and I have been fighting with dehydration. I seem to have it licked again though and would love to weigh in about 120-130 lbs at some point.
    Could your weight gain be related to water retention? On one of my last hospitalizations I topped out again at over 200 lbs but the majority of it was water weight.

    honestwoman50
    Veteran Member


    Date Joined May 2009
    Total Posts : 833
       Posted 2/3/2010 3:34 PM (GMT -6)   
    cocotlc
    Hey how are you doing?  Gaining weight are you...lol   I have read a lot of posts that say once you have the surgery that you really cant eat for 3 weeks and some of them have lost like 30lbs....OMG, if that is the case I am screwed,  I am down to barely 137 and I cannot afford to lose a bunch of weight as I am 5'10 and my bony butt and sagging sikn is horrid.
     
    The thing is let me preference it with when I was on heavy pain meds 3 years ago I had really put on the weight being not active due to all my back surgeries, so in the past year and a half I have continually lost weight, by starvation, and limiting what I eat cuz everything I eat kills me....so I have lost 103 pounds as of today.
     
    So before I get the surgery should I try to gain as much weight as I can???
     
    I added you to my yahoo at least I think it was you did not get your name but added you.
     
    Do you intestines feel differently once you have the surgery, do things feel the same as stuff goes through you.  I am acutely aware of every inch on my guts as I can feel everything as it tries to go through but dont....I can tell the doc exactly where the gas is and where my bowels are stopped at, weired but true.  This process is so exhausting, I constantly am thinking about my pain, cramping, gas, and the endless war that is going on inside of me...so stressed out and the doc will not give me anxiety drugs, maybe the surgeon will tomorrow, its worth a try.
     
    I cannot sleep, constantly wondering if I am making the right decision, trying to imagine how it will be with one and my life after, just too much going on in my mind and cannot relax.
     
    So this must be at least week 3/4 for you...tell me about you ...what your feeling, how you feel can you eat...I just want to know every gory detail if you dont mind....?  So glad that your my friend, alone with all the fine people on these sites...
    People ask me why do I come on here, I tell them we are all looking for answers and we usually have a acute problem not like the others that it just barely bothers.  We are the worst of the worst, and any little thing that we can find to help reduce our suffering is what we are looking for plus the fact that we are not alone on here.
     
    Hope your well....Leslienono
    Leslie King


    summerstorm
    Veteran Member


    Date Joined Aug 2006
    Total Posts : 6571
       Posted 2/3/2010 4:42 PM (GMT -6)   
    i dont think food feels any different going through you, you cant really feel it, sometimes i cna feel it when i have gas coming out of my stoma.
    And if i have gas i can definetely feel that!
    UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
    -I have gone to find myself, if i get back before i return, keep me here-


    vette guy
    Veteran Member


    Date Joined Nov 2006
    Total Posts : 650
       Posted 2/4/2010 12:31 AM (GMT -6)   
    summerstorm said...
    yall i have gotten so freaking fat! all i wanted to do was eat all the stuff i couldnt eat before! and at first i was working out so i could do that. I would literally go to the gym and throw away the cup my milkshake was in when i walked in, lol. But then i quit going to the gym but kept eating so i got fat!
    (and btw animals are tasty, lol, went to sticky fingers for dinner!)
    Anyway, so now, since we are going on a cruise next year i gotta get skinny so the cute guys will look at me, lol.
    So i have been doing wii fit and trying not to eat as much, or drink soda

    Yup!!!  Especially when they're smothered in BBQ sauce with a baked potato on the side!!! Yummers....that's good eatin'!!!

    honestwoman50
    Veteran Member


    Date Joined May 2009
    Total Posts : 833
       Posted 2/4/2010 2:29 PM (GMT -6)   
    Hello everyone,  Well I went to the surgeon today and he wants me to have another sitz marker test done to see if I have colonic inertia or however it is spelled.  I had one done 3 months ago but I swallowed the pill and then they x-rayed me 5 days later.  He wants to do another one where I get x-rayed before I take the sitz pill and then each day after for so many days then he will reach a decision.  He said if that turns out fine then he would send me to portland to a colorectal surgeon to see about getting a surgery done on my sphincter they put in some kind of a divice so you can poo...so that is all I know for now.
     
    But once again I have not gone since I got out of the hospital and it has been 8 days...yikes, I hate this.  Hope everyone is doing well...Leslie
    Leslie King


    Liveandlearn
    Regular Member


    Date Joined Aug 2009
    Total Posts : 27
       Posted 2/7/2010 7:33 AM (GMT -6)   
    On the topic of weight gain/loss....
     
    everyone's situation is unique, as all of you have said; this is what happened to me.
     
    I got my ileo to shut down my large bowel while I healed from an infection.  I lost 35 lbs over about 5 weeks but almost 4 of them were in the hospital and I was on fluids only.  That weight loss put me back into a healthy range; I had gotten a bit piggy over time and needed to lose it.  When I finally went home, I found that I had lost all sense of taste!  Liquids tasted like muddy water and solids (toast) tasted like paper.  It was summer at the time so I survived on ice cream and chicken noodle soup. The ice cream needed to be Hagen Das of course :) and I was able to over-season the soup.   The loss of taste freaked me out despite being told that it would come back eventually.  But it did come back, first with pasta and then gradually with everything else.  
     
    For the first 8 weeks with the ileo, I was able to eat bazillions of calories each day and not gain weight.    I was hungry all the time and enjoyed eating.   Then, without warning, I gained 10 lbs overnight !! Literally.  Ok, maybe over 3 days but still!!  My tummy grew or swelled up by a few inches and was very sore.  It was not a blockage because the stoma was still doing its thing.   After a few more days the weight did not go down.  I had a routine follow up with the surgeon and he said it was normal for the bowels to adjust and suddenly start retaining/storing calories.  The mistake I made then was to give up and accept the weight.  By the time I had the resection surgery in Jan/10, I had gained back 17lbs. 
     
    In the week leading up to the resection surgery, I cut back on calories and switched to clear soups + stopped eating most carbs.  I was in the hospital for 10 days because there was a hint of a small infection so the medical team was very worried.  When I got home, I took it super easy on the food mostly to be kind to my small intestine.   Within a few weeks the 17 pounds were gone - great, right?   Then it happened again!!!  This time 5 lb gain overnight!  Same swollen tummy and pain but no blockage.  That was about 10 days ago.  This time I saw what for me was the common denominator.....bread and pasta!  I had let myself get too hungry and on one day I had a huge sub and later a big pasta dinner.   I think I also neglected the fluids I would normally have.  Presto - massive bowel upset and calorie overload.  This time I didn't give up and accept the weight gain; I have gone back to soups and yogurt etc. and have few carbs. After about 5 days the extra weight is gone and so is the soreness and most of the swelling.
     
    So - that's just my experience.  I have no idea what to expect post-reversal but I'll let you know what happens.   I'm at a good weight now and I will work hard to keep it + lose a little bit more.
    take care all,
    Connie
    ps - I'm 46
     
     
     
     
     
     
     
    June 09  - hysterectomy due to pre-C cells on Cvx.  Complications during surgery due to adhesions....resulted in nicked bowel
    July 09 - massive infection due to nick. Hospitalized 3 weeks, all antibiotics and drains failed.  Temp Ileostomy placed as last resort.
    Jan 4/10 - bowel resection to remove damaged section
    Feb /10 - flexible sigmoidoscopy confirmed resection healed perfectly
    Feb 5/10 - first follow up to screen for evil pre-C cells, results in 4 weeks
    Mar 1/10 - scheduled ileostomy reversal !!!  Yahoo :)
     
    June/09 - present...forever grateful for this forum and all members !!
     

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