Well, I went to the surgeon for a consult today hoping they would tell me they will do surgery to help me out and they will! I'm going to have a total proctectomy with end colostomy. Since my Crohn's is only in my rectum, she said that the best thing would be to get rid of my rectum and give me a colostomy. I think this sounds wonderful and I'm so excited to spend even 5 minutes without the constant BS that it this DD, let alone longer!
Now, healingwell is a fabulous resource for this sort of thing but I was wondering if anyone out there knew of any other resources that have a lot of good info that I can look at until my op? I am really looking for some sort of colostomy resources since I have been able to find a lot on ileostomy, but not really colostomy.
Has anyone had this done?? Advice? Your story?
Laurenne, 25 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002. Three abscesses that are now fistulas, with three setons!
On: 6MP, Zoloft, Cimzia (working so well, I'm on Miralax too!), folic acid, b12
Tried: LDN- Did nothing good, Remicade- allergic, Humira- no reaction