Drunk Ileostomates, is this possible?

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OzCrohnie
Regular Member


Date Joined Jan 2010
Total Posts : 61
   Posted 1/28/2010 1:49 AM (GMT -6)   
So I don't drink very often but when I do I drink a lot, like a real lot. I'm a self confessed binge drinker....
I'm honestly not one of those people who will have a beer after work and sit down watch tv and go to bed. I don't see the point (I know many other people do this and enjoy this, my family included), but me, I drink specifically to get very drunk and go out dancing with friends. I love this, it's fun and I love to dance, but I can't dance unless I've had a fair bit to drink (makes me feel more confident & therefore i move more freely etc). If I try to dance without much alcohol of if im just slightly drunk I'm basically just bobbing up and down, I should upload a video of the differences, it's quite hilarious! :p


To my point:

My Stoma Therapy Nurse said that after I have my ileostomy I will not be able to get drunk anymore. She said I can drink small amounts of alcohol (again, I dont see the point) but I cannot get drunk. I believe her reason for this was due to dehydration. I know it's bad for non-ostomates to binge drink, but it's like she was saying that its significantly worse for ostomates to get drunk1


My Question: Do any of yous drink large amounts of alcohol? Has your doctor/nurse told you you can't get drunk?
I know Summerstorm once said to me that "once you are all healed up and off the pain meds, drink away! LOL, however you must shares some drunken stories, i do!" but after my nurses warnings I wanted to check with other ostomates out there? Maybe it depends on if its a colostomy or an ileostomy as the large intestine is what absorbs the water, so it'd be worse for an ileostomate who has no large intestine.... I will be an ileostomate....


This will sound stupid and possibly even imature, but im freaking out more about never being able to drink to my hearts content then the fact that I will have a bag full of poop attached to my stomach!

I'm planning on pressing my nurse for more details at my appointment tomorrow, but was hoping for an indication from other ileostomates as to whether they get drunk?
Male, 22, diagnosed with Crohn's at 13.
Medication: Salofalk, Infliximab infusions, Humira injections.
On and off Prednisone for years.
I pop Loperamide (aka Gastro-Stop) like candy!
Have had one, two, three, four colonoscopies.
Getting a (permanent) bag in February!
Favourite Quote:  Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1243
   Posted 1/28/2010 7:06 AM (GMT -6)   
Oh yeah, you CAN get drunk lol! And yes, like bowel intact people, you will get dehydrated - just drink a glass of water in between drinks to help stay on top of it.

I have nothing to compare to since I've had my ileo since I was 10 (and my parents didn't let me drink alcohol at that age for some reason lol), but I know many ileostomates have said they do get drunk quicker post op than they did before surgery.

Just try and stay on top of the dehydration whilst consuming alcohol (sports drinks are great for this!).
Ileostomy for 33 years due to UC

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/28/2010 9:22 AM (GMT -6)   
YES YOU CAN GET VERY VERY VERY DRUNK!!!!

I didnt start drinking until after i got my ileo, and i have no idea why, lol. I dont drink much during the week, maybe a beer type thing, or some baileys in hot chocolate (mmmm, baileys). But alot of times on Fridays i hit the liquor HARD! jello shots are my fav! And butterscotch schnapps with baileys on top, mmmm. At first it didnt take much to get me drunk, cause i had no tolerance, now it takes me more, but i still manage to get sloppy drunk, if i want, lol.
Lets see, you want a story...well one night, in the hottub, i decided i wanted to carve a pumpkin (this is in June) and i was adamant i needed to get a freaking pumpking right then! they said, there is no way you can have a knife, so i went in a got a spoon! I didnt even have a pumpkin! But boy i was gonna find one!
Another night I was at a friends house, i was freezing cold, so i started taking my shirt off! in the living room! I thought that made sense, lol. My female friend ran over there and stood in front of me and stopped me, there were like 10 people there, and she said, what are you doing??? I said, i'mcold,so im taking my shirt off! They busted out laughing at i realized what i was doing,and put my shirt back on!
I got more,but i probably better not tell them...

But you will get dehydrated easier, and so you should drink lots of water, i always have a water with me. And i notice that i get gas sometimes when i drink, so i take a gas-x and a pepcid first. I also usually take some immodium if we are going to a club or something, that way i wont have to empty. But for some reason, regardless of whether i do any of those things, even if i make myself throw up, i always wake up at like 5 (that is if i have gone to bed yet) and 7 with so much gas in my bag its crazy! Then the next day i have a horrible hangover and swear i will never drink again. But i forget that by the next weekend, lol.
However, dont mix baileys and cough syrup, dont assume the baileys is out of your system yet. trust me on this!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/28/2010 9:25 AM (GMT -6)   
Oh and you can most certaintly go dancing, too bad you dont live near here, we could go dancing! People will go with me, but they all just stand there in a circle, and i have to dance alone sometimes my husband tries to dance,but then i just walk off, cause its sad,lol.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 1/28/2010 11:26 PM (GMT -6)   
<- drinking a Smirnoff Twisted right now, had a double gin and tonic at dinner. I sound like a drunk...Hm. I had my colostomy surgery on Nov.23 and on New Years got good and plastered. You CAN drink and you CAN get drunk. The only difference I have found is I pee alot more.

-Allie
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


damagedgoods41
Regular Member


Date Joined Sep 2009
Total Posts : 377
   Posted 1/29/2010 1:08 AM (GMT -6)   
hey ozchronie,
 
Ive had my ileo for neary 10 years now and am not a drinker but i have tried a couple of different drinks last year sometime when i was on a manic high!!! Anyway all it did to me was give me a huge headache and it just made my bag blow up like a balloon every 5 mins and my out-put was a dark red color. To me its not worth the risks as in dehydration,leakage and other!!! Believe me youll find out the hard way when it comes to most types of alcohol and if you like fizzy drinks "LOOK OUT"....... I know for me that i cant touch the stuff but for you i hope it will be a different story.... Also hope ur surgey goes well for you and make sure you dont drink too soon afterward's cause u will pay for it.
Im not having a go at u about ur drinking as it's each to there own,just concerned as you say ur a binge drinker and thats worse.....
 
sincerly,
 
damagedgoods........yeah yeah yeah yeah
Permanent ileostomy,radical hysterectomy & bi-lateral ophrectomy,bi-lateral mastectomy,atonic bladder.
DX chronic depression,bi-polarr11,panic disorder & o.c.d.!!!
Currently taking Avanza 30mg,Abilify 20mg,Seroquel 200mgs,Asprin,Valium 5mgs & Sandrena HRT gel 1.0mgs
 
  • Some folk's are wise and some are otherwise!!!!
  • The music is nothing if the audience is deaf!!!!

    For me it's a day at a time now,as I can no longer
    look to the future!!!! 
     
     
     
     
     
     


    vette guy
    Veteran Member


    Date Joined Nov 2006
    Total Posts : 650
       Posted 1/29/2010 1:30 AM (GMT -6)   
    Cheers!!!

    summerstorm
    Veteran Member


    Date Joined Aug 2006
    Total Posts : 6571
       Posted 1/29/2010 12:47 PM (GMT -6)   
    oh yes, jello shots will turn it bright blood red, as will some of the other drinks with strawberry or cherry, so do be aware of that.
    If you put the gel pills in it will thicken it and help it not be so watery
    UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
    -I have gone to find myself, if i get back before i return, keep me here-


    OzCrohnie
    Regular Member


    Date Joined Jan 2010
    Total Posts : 61
       Posted 1/31/2010 7:02 AM (GMT -6)   
    haha, love the shirt story!

    And this is excellent news from all!

    I must ask, are Jello Shots like Jelly Shots? I think Americans call jam jelly though, so that probably confuses my question though, um... http://www.beautyandlace.com.au/vodkaandjellyshots.html !!

    I've been making them heaps lately for parties, They are great! I'm a huge fan of shots! Although I mainly do them at home now as shots have been banned in our town within the last few years... :(
    I usually drink Vodka, Midori, Malibu and Pineapple juice (all mixed in together). I find that this stops me from getting heaps of gas (I stopped drinking carbonated drinks a year ago) and it also prevents me from getting a huge hangover (Seriously, headache/stomach pain wise, if thats all I drink I'll be fine!!).

    I'm heaps more relieved now, I spoke to my Stoma therapy nurse on Friday about it and naturally she said that she couldn't condone binge drinking, she did say that after a year or so (once I'm used to having an ileostomy and know my body better) I'd probably be able to do it providing I am very careful and kept myself hydrated. So that was definitely some positive news!

    It's made me feel so much better for my operation thats happening tomorrow (8 hours!). It's actually been quite a good weekend considering whats happening on Monday. One of the best weekends I've had for ages! Went out Friday night on the town drinking and dancing (I'm always looking for more friends to dance with Summerstorm!!), went horse riding with a girl I know on Saturday (my first time horse riding) and then been catching up with all my friends Saturday night and Sunday!

    Dark red output sounds kinda scary actually damagedgoods! I know you're not having a go at me :) You're right, everyone is different. Thankfully I've found drinks that I like that aren't fizzy, they are a lot more expensive though, and I often get them given to me with fruit and in cocktail glasses which makes it the butt of a lot of jokes :p

    Hmm, I guess when I fully recover I'm going to just have to reassess everything I usually drink (and eat) to test how I am affected so i know what I can and cannot consume...


    Anywho,

    Operation is tomorrow morning, So I had better head to bed for some rest!
    Goodnight all, thanks for answering my questions everyone!
    Male, 22, diagnosed with Crohn's at 13.
    Medication: Salofalk, Infliximab infusions, Humira injections.
    On and off Prednisone for years.
    I pop Loperamide (aka Gastro-Stop) like candy!
    Have had one, two, three, four colonoscopies.
    Getting a (permanent) bag in February!
    Favourite Quote:  Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


    Shaz032
    Forum Moderator


    Date Joined Feb 2003
    Total Posts : 1243
       Posted 1/31/2010 7:10 AM (GMT -6)   
    Good luck OzCrohnie, we'll be waiting here for you on the other side :)
    Ileostomy for 33 years due to UC

    Moderator of the Ostomy and Psoriasis Forums

    _______________________________________________

    I'm not a complete idiot - some parts of me are missing!


    summerstorm
    Veteran Member


    Date Joined Aug 2006
    Total Posts : 6571
       Posted 1/31/2010 11:20 AM (GMT -6)   
    i think that jelly shots are the same. Although here its called jello. Its not like you spread on toast jelly, right? but like a dessert thatkind of moves on its own?
    Anyway, what i do, that makes them super yummy, so you know how. Is take like a boy of cherry, boil half a cup of water, mix it with the mix and 3/4 of a cup vodka, then use fruit juice to make up the difference to make it 2 cups. You cant taste the vodka at all!
    i dont think i stay drunk as long as other people seem to though, so i just drink more, lol.

    Anyway I hope the surgery is going well! let us know as soon as you can!
    UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
    -I have gone to find myself, if i get back before i return, keep me here-


    Comber
    Regular Member


    Date Joined Jan 2009
    Total Posts : 40
       Posted 1/31/2010 2:32 PM (GMT -6)   
    Hey!  I dont have an ileostomy anymore because i had a reversal but i had my ileostomy for a year.  At that time i was only 22 years old and so ofcouse that wasnt going to stop me from drinking.  I got drunk plenty of times and didnt drink water at all and i never had any kind of problem.  The only thing that i noticed was that my bag would fill up a lot more sometimes with liquid only and it was always red!  Cuz i drink a lot of cherry dr!!  I had no problem getting drunk, i wouldnt stress out about it!!
     
     

    capecodder33
    Regular Member


    Date Joined Oct 2009
    Total Posts : 69
       Posted 1/31/2010 6:58 PM (GMT -6)   
    i haven't gotten truly drunk yet with my temporary ileostomy, but i've been buzzed a couple times and haven't had any problems. i drink lots of water and gatorade during the day though to stay hydrated.
    Male, 29 years old. dx ulcerative proctitis 1987; left-sided ulcerative colitis in 1993.
    Tried sulfasalazine, asacol, colazal, rowasa, prednisone, imuran, 6-MP, remicade, and humira. Achieved remission for 3 1/2 years with remicade & 6-MP after a nasty flare.

    Now UC free! :-) J-Pouch Step 1 on 12/10/09, Step 2 on 2/11/10 and DONE.


    Equestrian Mom
    Veteran Member


    Date Joined Mar 2008
    Total Posts : 3115
       Posted 1/31/2010 7:39 PM (GMT -6)   
    drink water in between drinks(and before going to bed) and use CAUTION when emptying...

    summerstorm
    Veteran Member


    Date Joined Aug 2006
    Total Posts : 6571
       Posted 1/31/2010 10:05 PM (GMT -6)   
    def use caution when emptying while impaired!
    EUI is dangerous! My hands tend to not listen once i get drunk and i have to concentrate sooo hard, lol
    UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
    -I have gone to find myself, if i get back before i return, keep me here-


    OzCrohnie
    Regular Member


    Date Joined Jan 2010
    Total Posts : 61
       Posted 2/4/2010 11:42 PM (GMT -6)   
    I'm Back!

    Soo an update, had the surgery on Monday. Still in hospital. A lot of the nurses have given varying average times in hospital of a couple of weeks to 2 months. My Surgeon has told me as far as he is concerned I can leave today, providing I am comfortable with leaving and that my Stoma Therapy Nurse thinks ill be fine too. My STN and I have decided that I'll leave on Monday arvo or Tuesday morning.

    I had my first shower on Wednesday, and got out of bed for the first time on Tuesday. Oxygen nose thingy is now permanently off me as of Wed arvo, that horrible catheter was taken out early Thursday morning. My drip and painkillers (via cannula) were taken out Thursday arvo and I am now on oral medication (if needed). Had a liquid diet first few days, slowly progressed to normal food now (I had steak for lunch :p ).

    So from my understanding I've recovered fairly quickly. Tues & Wed was really weird for me as I didn't have to get up to go to the bathroom at all (bag was emptied from the bed on those days). It's was a rather nice feeling...


    Still need to go to the bathroom properly (as I have a rectum), but that's been once a day, once every two days or sometimes three times a day. I guess it really varies and will also calm down over time.

    I'm emptying the bag by myself ok, changed it myself for the first time today (while my STN was present/helping). Although, I'm not quite looking forward to going home....

    Getting out of bed is kinda hard (I use the bed remote control to adjust the head to a sitting position, lower the bed, then shuffle over to the edge, put my feet on the ground and stand... all while trying not to use my stomach muscles), walking is annoying (I'm usually a very fast walker, my friends often have to run to keep up, but now I'm really slow, I'm hunched over so as to not stretch my stomach and it takes a bit of effort to do it).
    I'll have help when I'm at home, but I don't know how I'm guna get in and out of a normal bed without seriously hurting myself :s (Need to steal a hospital bed, anyone got a ute? :p ). How long does it take until you can change positions (from laying to standing) normally?


    The surgery was done via key hole, I have three small cuts (not including the stoma) where they entered; one of which is on my belly button. I'm keen to take the tape off them to clean the blood off and see what my belly button looks like now).

    My stomach feels like it's got a kind of heavy weight attached to it, it's kinda weird and hopefully its to do with the surgery and not the stoma??? (My bag is basically empty and I still have that feeling). Do you's ever forget its there?

    My stoma is also quite noisy! Not all the time, but it'll often make spurting noises and stuff. I'm hoping that calms down over time too...

    How long does it usually take for food to go through into your bag once you have swallowed it? I asked a nurse today and she said depends on what I ate, so like mashed potato or pasta or something may take a lot longer compared to liquid things like yoghurt....
    I mainly asked her as I ate mashed potato, steak, a sandwich, crackers & cheese around 12:30 today for lunch and nothing much has came through (my stomach is pretty noisy though, so maybe it's still digesting it) and it's been 4 hours.

    _____

    Oh and yer, We put Jam on toast and Jelly (the solid looking thing that wobbles) is a desert...
    Male, 22, diagnosed with Crohn's at 13.
    Medication: Salofalk, Infliximab infusions, Humira injections.
    On and off Prednisone for years.
    I pop Loperamide (aka Gastro-Stop) like candy!
    Have had one, two, three, four colonoscopies.
    Getting a (permanent) bag in February!
    Favourite Quote:  Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


    damagedgoods41
    Regular Member


    Date Joined Sep 2009
    Total Posts : 377
       Posted 2/5/2010 1:19 AM (GMT -6)   
    Hey Ozchronie,
    Wow I cant believe you have already had ur op and are talking about going home!!!! You must be very fit to feel as good as you are!! I cant believe ur eating steak already,ur doing so well. Are you happy with where they placed ur stoma and if so have you had any leaks ect????
    Also in ur next post could you tell me what product ur using and if it's a one piece or a two piece,just curious. Also its great that they did ur op by keyhole surgery and you got away with not having a total laparotomy which is an insicion from hip to hip or from ur sternum down to ur pubic line,your very lucky indeed my friend and this will make ur recovery much quicker as you dont have to worrie about infection as the chances are nearly nil for what they have done. Anyway all i can say is im very happy for you and if you ever need any advice or just need a good chat please dont hesitate to ask lot's of question's regarding your new stoma and new life ahead!!!!!! Take care and dont overdo thing's ok.
     
    sincerley,
     
    damagedgoods....beverley.....scool scool scool scool
     
    P>S> when you start solid foods it takes a little longer for it to travel through you small bowel and out of ur ileo!!!!! You will get to know it in time as in when its gonna work and when it wont!!!!!!
     
    (((((((((((((((((((((((((((((MANY HUGS TO YOU))))))))))))))))))))))))))
    Permanent ileostomy,radical hysterectomy & bi-lateral ophrectomy,bi-lateral mastectomy,atonic bladder.
    DX chronic depression,bi-polarr11,panic disorder & o.c.d.!!!
    Currently taking Avanza 30mg,Abilify 20mg,Seroquel 200mgs,Asprin,Valium 5mgs & Sandrena HRT gel 1.0mgs
    Strive to be a success but rather to be of value!!!!!!!
     
    Dont count the day's,make the day's count!!!!!!
     
    No more revenge now;I will think upon revenge!!!!
  • I dont knowthe key to success,but the key to failure

    is trying to please everybody!!!!!!!!!!!

    Life becomes harder for us, when we live life for others!!!

    Without music, life would be a mistake!!!!!!!!!

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    Chasblah
    Veteran Member


    Date Joined Feb 2007
    Total Posts : 788
       Posted 2/5/2010 4:57 AM (GMT -6)   
    Hello.
    Glad to know everything is going well for you.

    I was in the hosp. for 5 days after my first surgery (counting surgery day).
    Your stoma will quiet down over time and things will go through much slower. I'm trying to remember how long it took for me. probably a few weeks. And it does depend on what you eat. I find, for me, if i eat dairy (cheese, milk, ice cream) or juice it goes strait through. but if i eat some variation of corn (corn chips esp.) it's slower.
    I'm thinking it took at least a month b4 i could sit up, roll over, and fetch like a good dog. I mean, b4 it didn't hurt to do those things normally. But even longer b4 i could lift things comfortably and wear normal clothes again. took about 4 months b4 i could squeeze into my jeans, comfortably. And i tuck the pouch in my pants.
    Yes you'll forget it's there! I hardly even notice it. I also thought it felt like a big dead weight pulling on me, right after surgery. I don't let mine stay full for very long (I might empty mine more than others). After I eat, for about 20 min. it fills and then i go to the restroom. I also wear shorter pouches, because i don't like the really long hangy ones hitting my leg. Also, my pouches have the opaque cloth cover so they don't stick to me.

    Cheers to your new, healthier life!
    Chassity
    28 yrs. old. married with one beautiful daughter (born 11/20/07)
    -diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
    i only take vitamins now, when I WANT to. :)
    (temporary ileostomy....maybe)

    "Things turn out the best for those who make the best of the way things turn out."


    SocalJohn
    Regular Member


    Date Joined Oct 2008
    Total Posts : 160
       Posted 2/5/2010 10:38 AM (GMT -6)   
    Hey OzChronie,

    I didnt have a chance to read all of the responses to your question, but I felt I might be pretty qualified to answer you.

    Just like you, I used to be a huge binge drinker prior to becoming an ostomate. I didnt think there was any point to drinking without getting wasted.

    Since I got my ostomy, I have cut back drastically. My age might also have something to do with it. I noticed your 22. Im turning 32 this year. I started drinking at 16, and by 22 I was a very heavy drinker. Most of the people my age, all followed that pattern. Drank for 10+ years, then cut back when the wives and kids started joining our "brotherhood".

    Anyways, I still like to drink. But because I only drink maybe once or twice a month, it doesnt take much to get buzzed. My main reason for cutting back though is because of the nasty output it makes in my bag. Its already a hassle to empty the pouch on a normal day. When your drunk, and having substantial output, its a hell of a mess. And the lovely side effects last for a couple days after a binge. Everything takes time to settle when you wear an appliance.

    So long story short is yes, you can drink if you want to. Just dont be surprised if you quickly decide its not your favorite thing to do anymore.

    John

    summerstorm
    Veteran Member


    Date Joined Aug 2006
    Total Posts : 6571
       Posted 2/5/2010 7:37 PM (GMT -6)   
    i notice that you said you are walking hunched over, and i did the same thing, and i know why you are doing it, but let me tell you its gonna end up with your back hurting far worse than your stomach does! once i realized what i was doing and started keeping my back straight i didnt have as many back problems.
    I often forget my bag is there, but at first it was like wearing an anchor around your waist! its the muscles healing and such. If you tuck your bag up where it doesnt pull down, it wont feel as bad. And if you can tape the top to your stomach it makes it even better.
    As for transit time, depends on the food but usually 45 minutes to two hours. However, for some reason, i always have lots of output in the morning, evvent hough i havent eaten in like 12 or 14 hours. very strange.

    anyway, hople all goes well!
    UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
    -I have gone to find myself, if i get back before i return, keep me here-


    OzCrohnie
    Regular Member


    Date Joined Jan 2010
    Total Posts : 61
       Posted 2/15/2010 8:27 PM (GMT -6)   
    Hi Guys, Sorry its taken so long to reply, the last week or so hasn't been the best... I'm still in hospital and going in for more surgery tonight. But I'll get to that in a minute...


    I'm pretty happy with where they've placed the stoma damagedgoods, I've had no leaks yet too. I am currently using a one-piece, but I'm not actually sure what brand etc it is to identify it, but I'll ask my STN when I see her next so I can let you know. I'm pretty confident with emptying the bag and changing it, but cutting the hole where my stoma goes is a bit daunting as I occasionally do it too big and have to do it again (I usually have a nurse here just incase). I had leave from the hospital last week and a friend took me to the beach for a few hours. I didn't swim or anything, I basically just walked along the beach with my feet in the water and sat there... It was really good to get out of the hospital, especially considering that as of today I've been in it for 16 days! I was wearing normal clothes and you couldn't see my bag at all pushing through my shirt. The bottom of it was tucked into my shorts and couldn't be seen as well.

    I've gotten to the point where I am sleeping with my hospital bed flat, and I can basically get myself out of the flat bed without using the remote to lift my head up higher then the pillows. I am walking faster and trying to do it with proper posture so I don't make my back worse. But my back has been really sore over the last week or so. It got to the point where I only had 2 hours of broken sleep one night because of the pain. I'm taking pain killers which do generally help after awhile and rubbing 'Deep Heat' into it which helps with the pain especially before bed. Some of the nurses were thinking it may be because I've been sitting/laying down in hospital for a long time, but apparently when I woke up after surgery, the first thing I complained about was my back hurting. My Surgeon yesterday said it could be because I'm really skinny and during surgery they put me on one of those things where your legs are up in the air and apart in order to stretch out the stomach (which probably put more pressure on my bony back). But yer, my main complaint over the time I've been n hospital has been my back, if it wasn't for that the hospital probably wouldn't seem as bad.

    I've also been getting a stabbing pain in my chest which appears to be due to reflux. I have never had reflux before the surgery, but yer now I've got it. I'm hoping that after my digestive system settles down the reflux will go away.. (I am taking drugs for the reflux, which do seem to help and so does walking around if its only a minor reflux pain). Did any of you’s develop reflux after having your surgery? I just found it odd because I'd never had it before my surgery...



    But anyway,
    The Friday I last posted (5th) I was doing great and had an appetite and everything. But remember when I was asking how long it takes for the food to come out of the stoma? Well... it didn't come out. I ended up having a blockage or something. To be honest my whole stay here has been a blur, I'm not sure what happened when, but basically that weekend I was nill by mouth and had to go back on a drip. I remember being in a lot of pain and throwing up a bit. Early the next week they started to introduce me to food again, liquid diets, soft diets etc up to a normal diet, but I just didn't have an appetite anymore. So I basically haven't had much of an appetite for the last 7 days. I try to eat, I do occasionally get hungry and eat something but my hunger goes away pretty fast. I think for the first half of this period my output was too high (>2Litre) but then it dropped to something way too low like 200ml.

    I haven't thrown up for 3 days, which is good. I've actually developed a love for those spew bags (kinda like the ones you see in cars/planes), I first vomited into a bucket and well, lets just say it bounced back out hahaha, but for the last week or so I've been sleeping with one of those vomit bags. They're a brilliant invention! When i get out of hospital I'm guna buy some for my car, they're soo handy!! (lame I know but its true hahaha).

    Anyway, Had a CT scan yesterday, results indicated that part of my digestive system wasn't working (I forget which part he said). The surgeon said I may have a small blockage somewhere still, or a Lesion or something else. He's not sure where it is but will be having a look tonight. He's guna try keyhole, but if he can't find it he will have to make the cut a bit bigger. Which is quite possible as my insides will be pretty swelled up still from surgery. I had the choice between waiting a couple more days to see if it fixed itself or the surgery tonight. I voted surgery, I'm wasting away as it is and just want to go home. Hopefully if he finds the problem and fixes it, if all goes according to plan... I'll be home after the weekend.

    To be honest, I just want to stuff my face with chips& biscuits & cake and all the good food in life! I'm really getting sick of hospital food!
    Male, 22, diagnosed with Crohn's at 13.
    Medication: Salofalk, Infliximab infusions, Humira injections.
    On and off Prednisone for years.
    I pop Loperamide (aka Gastro-Stop) like candy!
    Have had one, two, three, four colonoscopies.
    Getting a (permanent) bag in February!
    Favourite Quote:  Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


    damagedgoods41
    Regular Member


    Date Joined Sep 2009
    Total Posts : 377
       Posted 2/16/2010 8:07 PM (GMT -6)   
    hello Ozchronie how are ya my friend???? Ive just read ur latest post and you seem to be coping so very well,but im sorry ur going to have another operation regarding being blocked or other??? Thats one big issue when you have any kind of stoma as you can very easily become blocked thats why you have to be very careful about what you eat and when you do eat anything solid you need to chew,chew and chew and that makes it easier to work properley.No doubt ur stoma nurse has discussed these issues with you in regard's to foods you can eat and foods that you need to stay away from. I now know myself what i can eat and what i cant and it's not very much but better than nothing i suppose!!!! Anyway i hope ur next op goes really well for you and hope they can do it through keyhol because if they do a full laparotomy it will take you so much longer to recover,so fingers crossed they can do it the easy way. Keep up the great positive attitude and you will be home before you know it then you can start your new life as an ostomate.
    So welcome to the club and believe me there are plenty of us out there and if you ever need to ask a question wether it be something silly ect!!!! please dont hesitate to contact me as u will find my email address in the forum ok. Im so glad its all working out for you and give it a couple of weeks and you will feel so much better. Ur in my thoughts and take good care of yourself.



    sincerley,



    beverley...... shocked shocked shocked shocked


    Sorry matie - can you please edit your signature down to 10 lines or less (blank lines count as one line) as per the forum rules. Thanks :)... Shaz

    Post Edited By Moderator (Shaz032) : 2/17/2010 4:02:54 AM (GMT-7)


    summerstorm
    Veteran Member


    Date Joined Aug 2006
    Total Posts : 6571
       Posted 2/17/2010 10:04 AM (GMT -6)   
    that sucks! you have had a lot of stuff happen! im sorry, hopefully you will get straightend out right away!
    about your back, if it hurts really low, like where it feels like it might be the top of your tail bone, your tail bone may be broken. (and i did not know they spready you up on a machine like that, i am totally creeped out now!)
    When i had my son i broke mine, which is normal, but then after surgery it started hurting it again really bad, and was told that i probably reinjured it its aparetnly fairly common for that to happen also.
    If thats the case, then there is not a thing you can do for it. It just has to go away on its own.
    UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
    -I have gone to find myself, if i get back before i return, keep me here-


    vette guy
    Veteran Member


    Date Joined Nov 2006
    Total Posts : 650
       Posted 2/19/2010 3:13 AM (GMT -6)   
    Belly shots....good thing!!!!  Can I get a what, what?????
     
    That's all!!!

    Post Edited (vette guy) : 2/19/2010 2:45:52 AM (GMT-7)


    OzCrohnie
    Regular Member


    Date Joined Jan 2010
    Total Posts : 61
       Posted 5/31/2010 11:12 PM (GMT -6)   
    Haha "belly shots" :p

    So, I'm going out Friday night into town. I have not drank anything since the weekend before my surgery (4 months ago). So I know that I'm probably going to be even more of a cheap drunk as I haven't had anything for aaages (which is good, because booze is sooo expensive in clubs!).

    Anyway,

    I'm trying to think of a drink that wont give me gas AND wont make my output watery... ???????????????

    I used to drink Jim Beam, Vodka with coke, malbiu with coke... basically "something with coke". But I stopped drinking that years ago as the gas made me always have to go to the toilet.

    Then I moved on to pineapple juice:

    My trademark drink is nicknamed "puss". Because thats what it looks like. Pineapple juice, Vodka, Malibu and Midori all mixed together (can only have it at parties though as they wont make it at a normal bar). Although when I'm at a club/pub I usually have pineapple juice with one of those 3 spirits. I prefer pineapple over orange juice as I can't stand pulp (yuck).


    So,
    Coke is fizzy and causes gas
    Pineapple juice results in watery output.


    I don't have any of those gas-x things, but I am planning on taking a few Loperamide (gastro-stop) things. Will that be enough to stop the watery output from the pineapple juice?


    Can you think of any drinks that wont cause gas or watery output?

    What about alcohol itself? It'd be alright if I was at a party instead, I'd just drink water and do a lot of shots. NOne of this juice or fizzy drinks to mess up my system! :p (Unless alcohol by itself also gives wind/watery output)
    Male, 22, diagnosed with Crohn's at 13.
    Permanent ileostomy in February 2010.

    Medication: Salofalk, Infliximab infusions, Humira injections .
    On and off Prednisone for years. Currently only at 5mg
    Loperamide (aka Gastro-stop) when needed.


    Favourite Quote: Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.

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