Has anyone ever had a fistulagram?

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lasbutterfly
Regular Member


Date Joined Nov 2007
Total Posts : 281
   Posted 1/28/2010 7:22 PM (GMT -6)   
I have to have a fistulagram at the hospital on Monday morning.  I have to be at central registration at 6am and have the test at 8:30am.  With all of that time in between, it scares me.  Is there a big prep at the hospital?  Can anyone tell me what to expect?confused
 
butterfly
-------------------------------------------------------------------------------------------------------------
Rectocele/cystocele surgery 8/06
Chronic Constipation 11/06-7/07
Diagnosed Colonic Inertia 05/07
Total Colectomy with ileorectal anastamosis at Cleveland Clinic Florida 8/07
Constipation again 3/09
Ileostomy with obstruction 5/09
Emergency surgery 6/09 ended with 3 fistulas , a feeding tube, 3 jp drains, and a leg bag with tube attahed to small intestine (52 hospital days)
3 blood transfusions 6/09
Drains removed 7/09 and 9/09
Possible surgery for Brooke ileostomy at Cleveland Clinic Florida 6/10

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 1/29/2010 1:36 AM (GMT -6)   
G-d knows I've had my share of fistulas....but a fistulagram?  'Don't know what that is, but I'm sure there's a joke in there somewhere, sorry!

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 1/29/2010 1:20 PM (GMT -6)   
A fistulagram is basically an angiogram of your fistula(s) and associated blood vessels. A contrast dye is injected into these structures to enhance the X-ray images, and then X-rays are taken. (This injection shouldn't hurt any more than the usual cannulation.) The whole thing takes a couple hours. You will probably be sedated, so you need to have someone take you home.

The reason you have to go earlier is because the dr will go through the paperwork, and explain the procedure with you, set up the IV, your bloods will probably be taken as well good luck i'm sure you will be fine Bev x smilewinkgrin
Diagnosed with crohns at 13 now 43
Reversal of temp stoma Postponed till ???????
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)


" I may not be there yet, but I'm closer than I was yesterday."


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 3/3/2010 8:34 AM (GMT -6)   
Yes, but I had a rectal/vaginal fistula, so the fistulagram was the same as a pouchogram for me. They just inserted a catheter in the anus and filled up the pouch with liquid to see where it was leaking. I've had that done 3 times now.
26 year old female
Diagnosed with unspecified UC 11/08
Asacol, Prednisone, 3 infusions of Remicade with no success
8/09 colonoscopy shows that the whole colon is affected
12/18/09 First part of J-Pouch surgery; recessed stoma
12/30/09 Second part of J-Pouch surgery too soon; fistula
1/9/10 Second Ileostomy Surgery with sparing of the J-Pouch
1/25/10 Stoma Revision Surgery and Fistula Repair
Now just trying to hold out as long as possible until we can try the next surgery
Imodium (4/day), Questran (3/day)


ALT2012
New Member


Date Joined Sep 2012
Total Posts : 2
   Posted 9/5/2012 6:17 PM (GMT -6)   
Had procedure done today. It is not a big deal at all, frankly the worst part the procedure was displaying one self to a young,cordial, professional Radiologist. There was no IV in my case, there were no drugs or sedatives administered. The process in my case was painless as iodine solution is injected into catheter, the solution travels internally revealing a tract. Pertinent images are captured and recorded to provide surgeon exact location of Fistula and trace. Don't be fooled or scared, they will find it. Unfortunately this is not a common, well studied illness at least in my experience so it took 8 mo. to get here. I'm now back to square one with root cause in view. Cleveland Clinic found it but not so happy with administrative staff. Dr.s are the best!!! Unfortunate indeed.

sweetpeasmom
Regular Member


Date Joined May 2010
Total Posts : 62
   Posted 9/5/2012 8:08 PM (GMT -6)   
Can I ask, what does the doctor do to treat it once they find it? Can it be repaired?

ALT2012
New Member


Date Joined Sep 2012
Total Posts : 2
   Posted 9/6/2012 9:32 AM (GMT -6)   
i have not had the actual fistula treated, although is nice to know the found it. My intentions are to post the process being i want to enlighten others facing same issue. I need to meet with my Dr. and will report next steps accordingly.
thanks
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