Colonic Inertia-Pelvic Floor dysfunction and wanting to get pregnant-Please Help

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veronydale
New Member


Date Joined Oct 2009
Total Posts : 6
   Posted 2/1/2010 10:18 PM (GMT -6)   

Hello,

I am a 27 year old female and I have colonic inertia and pelvic floor dysfunction.  I have had problems having a bowel movement my whole life. My constipation has gotten worse each year as I have gotten older. For many years I could not find a doctor to believe I could not go to the bathroom. They acted like I was crazy when I would say I would typically go three months without having a bowel movement. I would go so long that I could not hardly get up, I could not eat because nothing else would fit into my body, and finally I would either throw it all up or my bowel would just burst out. When I was 22 I finally found a doctor that was willing to listen and try to help me. After being under his treatment for two years and trying every medicine out there, he sent me out of state for some test since there was no place in Arkansas that could do them. I went to Mississippi to have a defogram and an anorectal manometry test done. At this point I was diagnosed with colonic inertia and pelvic floor. After this they only thing my doctors would tell me is that I need surgery and they want to take out part of my large intestine.  They said it may help or may not and I could end up wearing a colostomy bag for the rest of my life. I have decided not to have the surgery just yet because I am not ready to take the chance of wearing the bag. My new concern is my husband and I would like to have a child. Originally we decided to adopt and we have been trying for almost two years now but no luck yet. We still want to adopt, but we would like to have one of our own as well. I have tried to talk to many doctors but they all tell me to talk to someone else. I have seen several gastro doctors who say talk to an obgyn, and several obgyns who tell me to talk to a gastro doctor. Today I seen another obgyn, but he was a high risk pregnancy doctor. He said he did not know much about colonic inertia so he could not tell me what my options were. I would like to know if anyone out there has my same condition and has gotten pregnant and what they did to make it through their pregnancy? I know you cannot take laxatives, so what do women do in this case. I have heard something like being on a liquid diet-by having a feeding tube in place for 9 months and not eating any solid food. Has anyone out there had this done and what are the risk? What is a way to remove the waste while pregnant? Any advice would be wonderful. I feel like giving up because no doctor can help me (or at least the ones in Arkansas). We do not have many specialists here that know anything about colonic inertia, so I don’t know what to do. I know everything is going to have a risk, but I would like to know what the different options are. Please help.


answers4me2
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Date Joined Dec 2008
Total Posts : 1321
   Posted 2/2/2010 10:10 AM (GMT -6)   
Can't you take miralax while pregnant? I have colonic inertia and pelvic floor dysfunction too. I have 4 children. I used suppositories with all 4 pregnancies and took MOM. What do you use now? How do you have a bm? I now take miralax, use suppositories, and manually disimpact. It is horrible and consumes all of my "free" time.

veronydale
New Member


Date Joined Oct 2009
Total Posts : 6
   Posted 2/2/2010 6:03 PM (GMT -6)   
I have tried it many times at high dosages, but no bowel movement. I stay back up so much that suppositories, enimas, or even trying to manually disimpact does not work because it too far up. I have tried every drug out there that now my doctors have run out of things for me to try. When I went to the doctor to ask about getting pregnant he said that my body would shut down if I did. The only way I can even have a small BM is by taking at least 10-12 laxitives at once. I don't do this often b/c I work and don't always have time to on the weekend. When I take them they make me so sick b/c off how many I have to take. I vomit until there is nothing left, and then finally around 10 hours later I have a BM. The rest of the day I feel so sick and can't do anything. Taking this many also make my body hurt and I get sharp pains in my stomach. I have not had a BM in 2 months now b/c my job has me on the road right now. I just don't know what to do anymore. Eventually I know I will have to have surgery, but my husband really does not want me to right now and nor do I.

Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 2/2/2010 6:26 PM (GMT -6)   
Hi,
 
If you truly can't have a BM for 2 months, I wouldn't delay having surgery any longer.  I had colon inertia and pelvic floor dysfunction most of my life.  At 53 (a year ago) I finally had my colon removed.  It hasn't always been great, but much much better than before.  I wish I had had surgery when I was in my 20's because over the years it got harder and harder to have a BM.
 
I only have one child (29) but while pregnant with him I took large doses of senokot 1 to 2 times a week.  He was born completely healthy (all 10 lb 3 oz of him, which caused the pelvic floor dysfunction, but that's another story!).  However, I would seriously think about having the surgery as soon as you can.  I wouldn't try to have a baby if you can't go for 2 months at a time.
 
I had my colon removed and my small intestine attached to my rectum.  March will be one year since surgery.  I've still had issues with constipation but with trial and error over the last several months, things are very much improved.  It's a rough surgery, but physically I felt well after 6 weeks or so, but trying to figure out what to eat, what not to eat, etc has been the most difficult.  Now I eat most anything, but I do take miralax and metamucil 2 x a day. 
 
Good luck in whatever you do, but I would seriously consider having this problem taken care of before having a baby.  It will be much more difficult to recover with a little one running around!
 
Janie

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 2/3/2010 7:19 AM (GMT -6)   
Hiya
 
all i can say is if you are in constant pain then surgery is a Godsend..there is absolutely no more to say!! i dont frequent this site much now as i am free from my hell of colonic inertia...if you were that bad then you would not care about having a bag - i had several months to get my head around having a bag but it is better than a life of hell with no bowel movement - how can you go 2 months without a bowel movement!!!shocked the pain must be unbearable.  i was on 30 lax a day.  No one has the right to tell you whether to or not to have surgery - its your body - is the best way forward. 
 
 
Karen - 48 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
March 2009: Loop Ileostomy - awaiting reversal
 
 


veronydale
New Member


Date Joined Oct 2009
Total Posts : 6
   Posted 2/3/2010 1:30 PM (GMT -6)   
I have dealt with constipation since I was little so over the years I have grown to handle it better than most. I am not able to eat a whole lot, but I still eat pretty good considering there is not much room left. I know that I am going to have to have surgery at one point in time, but I would rather not right now. That is why I am on here to see if anyone has any advice other than surgery. My doctors said that becuase of have severe my condition is the surgery might not even work. That is why I am waiting until I absolutely have to. Most doctors would say chances are good, but mine don't. I want to try anything and everything before I have surgery. I am not ready to give up hope and give into a surgery that my doctors feel might not help me, but it is the only thing they can think of. I know this might sound like I am being crazy, but I believe that someone out there someone has been in my situation and has found something to help besides the surgery. I know two people who have had surgery and now they are worse off. I know that is not the case for everyone, but I am too scared to do it right now.

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1321
   Posted 2/3/2010 8:04 PM (GMT -6)   
I feel for you...I also am terrified to have surgery for my condition, but I am coming to the end of my rope. My life revolves around having bm's. But, I never let myself go without taking laxatives or else I end up like you, no bm for weeks and this can be very dangerous and can cause an obstruction. You are fine, until one day, you are not fine. What happened to the 2 people that you know that have had the surgery? I am going to do biofeedback for 5 sessions for the pelvic floor dysfunction, but if this does not work, then I am going to get the bcir surgery, which is an internal pouch....my colonic inertia is controlled with the daily use of mega doses of miralax. My outlet problem is my main complaint because it will not allow me to push down to defecate. I have to spend hours on the toilet and usually only manage to get a teaspoon or two of poop out. I LIVE in the bathroom because no consistency of poop will come out. It is not a fun way to live.

I also get very ill if I take too many stimulant laxatives.

veronydale
New Member


Date Joined Oct 2009
Total Posts : 6
   Posted 2/3/2010 8:25 PM (GMT -6)   
One of the people I know ended up worse than before and now has a bag. The other is a co-worker of mine. Once she had her surgery she ended up having to be off work for over a year. She is back at work, but is sick a lot and misses at least 4-5 days each month. She had her surgery over 5 years ago and she still has to be very careful about what she eats. She cannot even eat a salad. She had many infections after the surgery, and from time to time they come back.
Does anyone know much about the different kind of surgery options and what is the recovery time? I know I will have to have it done, but I am going to try and find other options first. My doctors tell me biofeedback might work, but I live in Arkansas and I cannot seem to find anyone in the state that does it. Are there any kind of other therapies that has helped anyone out there?

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 2/4/2010 4:19 AM (GMT -6)   
Well i wish you all the luck in the world - get as many tests as possible  but it seems you have had all the GI tests... yes i know people with pelvic floor disfunction have difficulties anyway even affter the colectomy... i do hope you get some relief and then get on with your life and have children...you have lots of time being only 27....but get your bowel sorted as you cant spend hours in the loo when you have a cryin baby!! 
 
I have researched colonic inertia until my head exploded and there really is no option but surgery - the bowel just isnt working and nothing will change that - i spent 10 years trying to work out what was wrong with me and no one knew till a few years ago...it is a odd condition...
 
It is scary but even if you end up with an ileostomy (becasue of pelvic floor disfunction) then it is not the end of hte world and you can get on with your life.turn   I do hope you find a really good surgeon who specialises in colonic inertia if you havent done so already....All the best xx


Karen - 48 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
March 2009: Loop Ileostomy - awaiting reversal
 
 


anangell
New Member


Date Joined Feb 2010
Total Posts : 2
   Posted 2/10/2010 5:13 PM (GMT -6)   
HELP! I'm new to this site, and really need some help. I found out today I have colonic inertia. I need some help with what I can do to make it easier to live with. I'm 20 years old and want to live a normal life. I work 2 jobs and attend college full time. What can I do/take to make it easier to live with? I'm in constant pain, nausea, sometimes vomiting, i'm unable to eat full meals, i'm unable to eat very much throughout the day in general, i'm tired all the time, i'm depressed, i feel shaky and my sugar gets low. I don't know what to do! My doctor said miralax but I need to know what else to do! Will it affect me ever having children? Will I be able to live a normal life? Ever? Please, someone help. :( I can't take much more of this. It's ruining everything!

veronydale
New Member


Date Joined Oct 2009
Total Posts : 6
   Posted 2/10/2010 7:46 PM (GMT -6)   
Sorry to hear what you are going through. I have the same problem. The only thing my doctors will tell me is to have surgery, but I am not ready for that. Especailly since they are not that sure if it will help me. Can you have any bowel movement at all on your own? If you want to have children I would go ahead and go see a high risk OBGYN and talk to them now. I wish I would have when I was twenty. I am 27 now, and they told me since I cannot have a BM at all I should not get pregnant because it would cuase my body to shut down and kill me or the baby. So don't wait. See what your options are now. I wish I could offer you more advice, but I am still trying to find something that works for me without having to have surgery.
 

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 2/11/2010 4:34 AM (GMT -6)   
Hey there
 
so sorry you have this condition at such a  young age but at least you now know what is wrong...the only way forward is to have surgery as colonic inertia does not get better and usually gets worse...no one knows what causes it...it is a mystery...it is an elective surgery but life is great after surgery with no more pain etc ...you are in a bad way what with vomiting and all.. that is serious...i hope you find a good surgeon who specialises in CI and get on with your life...please ensure you have a full GI study done to make sure no other probs - all good surgeons will make sure you have all the tests before anything major is undertaken.
 
i had bad health for 10 years..no one knew what it was...it has taken its toll on me in mind body and spirit and i wished i knew what was wrong sooner..so have this sorted asap.
 
good luck
 
 
Karen - 48 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
March 2009: Loop Ileostomy - awaiting reversal
 
 


wanna get out of colonic
New Member


Date Joined Jul 2011
Total Posts : 1
   Posted 7/14/2011 4:17 AM (GMT -6)   
Hello veronydale

I just found your story by searching for "colonic*pregnant" on Google.

The reason I searched for these words is because I have colonic inertia and really want to get pregnant and have a baby.

Your story is almost 100% like what I'm going to tell about my conditions and feelings.

It's like you were me!!! It's like you were expressing my misery I've been going through.

What a pity life we both have!!!

I cannot have a bm on my own. I have to use 17 laxatives and 10-12 hours later, I will have a bm but it's still not easy because I will have sharp pain for at least an hour before the poop comes out and while I am waiting that moment I have to press and massage so so hard on my belly to stimulate the movement of the colon otherwise I will feel the only pain but no poop comes out at all.

My colonic comes from "Detox", using coffee enema for 2-3 years, once a week.
For the first period of time doing detox, it worked great.
After that, coffee that was released into my colon wouldn't come out.

I had colonoscopy and Dr said that my colon was too long and swollen, it was extened from the normal size caused by the coffee enema I used for a long time.

I'm 30. I've been on this condition since I was 23-24.
After I was born and until I was 23, my bm was great. I just had rope jump not more that 30 mins, I would go to the toilet as fast as I could. Now even though I have rope jump more than 30 mins, I will hardly fart at all.

Now I'm married and my friends at my ages have their own babies.
I really want to have one but thinking about my body I'm so scared and worried.
It makes me so stressful.

The Dr suggests I should try and not to have surgery at this age because as you said it may or may not help.

I still live my life with this miserable feeling and find no way out at all.

How are you now? I really really want to catch up with your conditions.
Have you undergone the operation yet?
Have you successfully had a baby on your own?


Please let me know.
With care and deep understanding.
Jary

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/15/2011 7:22 AM (GMT -6)   
hi Jary and welcome!

you can learn a lot about the surgery for colonic inertia if you google "total colectomy part 3" (part 1 and 2 are hard to find), then part 4, 5.... it goes up to part 30 something. you'll find dozens of women there who underwent the surgery for CI and learn a lot about it. GOOD LUCK with everything and best wishes!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Tired of being in pain
New Member


Date Joined Jul 2011
Total Posts : 1
   Posted 7/21/2011 7:03 PM (GMT -6)   
Hi I am a 34yr old colonic inertia sufferer for the past 5 yrs. They are currently checking for pelvic floor dysfunction. I have recently had a baby about 14mths ago while dealing with all of this. My obgyn told me to take colace once a day and I was allowed to take miralax a cap full 2 times a day. I couldn't take the prenatal vitamins cause it made the constipation way worst. A flintstone chewable has enough vitamins that you will need for the pregnancy. When things got rough I would drink a cup of hot senna tea sweetened with honey. That would eventually allow me to go. I did all of this throughout my 2nd and 3rd trimester, to be on the safe side I could only take colace my first trimester. I was still horribly constipated but I was able to go more than normal. My obgyn thinks its because your hormone changes so much during pregnancy that it worked in my favor. Anyway I had my baby 3 weeks early and she weighed 7lbs 4ozs so imagine if she stayed in longer. I am currently still in pain so I am thinking about scheduling surgery. My obgyn also told me that it would be ok to have a baby without my large intestine I would just have to keep to a strict diet during the pregnancy and take extra vitamins. I hope this info helps some and good luck

2Snowbell
New Member


Date Joined Jul 2011
Total Posts : 2
   Posted 7/28/2011 10:41 PM (GMT -6)   
I have been constipated for 15 years or more. It has been so long I don't remember when it started. I know it had gotten real bad during and after I had my son in 1998. I have been suffering with this for a long time. I have been to several Hospitals at the ER. I use to take Zelnorm and now Amitiza for years. I am only 33 and have been living with constipation way too long. Now I'm down to one meal a day. There is no where for my food to go. I'm very sick now. I'm so bloated and I stay exhausted from all of this. IT has gotten so bad I shake all day and night inside my body.  I  have had a colonoscopy to years ago.  Before I could go to my doctors appointment to a second Gastro doctor. He had looked at all of my records from several ER visits and my last colonoscopy. He had the nurse call my house and tell me he made an appointment with a Colon Rectal Surgeon for surgery. I could not believe what I was hearing. I did not even kno why surgery.
I finally found the answer after 15 years or longer. I was diagnoised today with Colonic Inertia from the Colon doctor. I'm scared to death about the surgery. I'm in so much pain right now from being constipated and bloated. I have lived my entire life sick from constipation and hospital visits.  I know I need the surgery but I'm shaking. If anyone has had this surgery please help! I need information and Advice please!!

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/29/2011 1:41 AM (GMT -6)   
hello 2snowbell and welcome :)

i'm so sorry for all you had to go through. CI is a terrible condition and impossible to live with. i had the surgery for CI. i suffered with it for 16 yrs till i had surgery. i'm very glad i had the surgery and even though things are not perfect, i still will never ever go back to the way things were before surgery, even if given all the fortune in the whole world. i can so understand your fear. i felt the very same way when first told i need a colectomy - my body was shacking all over all day. it is a major surgery. but if your conditione has gotten to a level that it affects your life to the point it controles it, it requires a more drastic action like surgery.

have your dr performed all the necessary tests? you havn't mentioned any tests besides colonoscopy. before deciding on a colectomy for CI you must go through all the necessary tests (besides colonoscopy), which are: defecography, anal manometry, barium enema and most important a colonic transit time test.

also, before surgery it is important to make sure you don't have motility problems in your upper GI tract, like the stomach and small intestine, so it's necessary to have a gastric emptying test and i don't know the name for motility testing of the small bowel, whether it's small bowel follow through or something else, but just ask your dr to check motility of your small bowel as well as the large and stomach.

in any case, if your colon is not functioning and it's something that's not going to change or improve, then there's no point whatsoever to keep it. all it does now is being a storage place for stools that can't come out.

i highly recommend you google "total colectomy part 3", then 4, 5 etc. you'll find dozens of women who had the surgery for CI and it will help you learn a lot about the surgery, it's outcome, prepare you to possible complications etc.

i'd also be happy to help you with any questions you have before and after surgery, so feel free to ask away :)
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

journey back
New Member


Date Joined Sep 2014
Total Posts : 2
   Posted 9/18/2014 6:48 PM (GMT -6)   
Am sitting here reading all these posts and can completely relate. While my condition has not deteriorated to the point some of these posts indicate, I am getting there. I believe my colon problems are being caused by the many Anti-Cholinergic medications I have been taking the past 3-4 years. While I have started tapering from one of the bigger offenders, it is going to take time. I, like some of you have never been so miserable. I have constant pain around my rectal/Anal area - I think it is due to irritation from using glycerin suppositories that really do not even work anymore. I have been to a Urogynecologist as I feared I had pelvic dysfunction. She prescribed Physical Therapy, and 2 caps of Miralax/day. I felt so sick after a couple days of the Miralax I stopped. I know that some of the rectal/anal discomfort is due to the stool just sitting there in my colon not going anywhere. I am quite fatigued, and this is truly ruining my quality of life. You've given me some ideas and food for thought. Thank you all for listening. No one has even suggested a GI Doc yet, so I guess I will need to take matters into my own hands. I am a retired R.N., so can digest most of the material. But my area of expertise was Psychiatry so I am in uncharted waters here. Though it is a cruel joke that I feel so depressed and ready to loose my mind. Again, thank you for listening to me. Will return when I feel need and/or I get some answers to my particular situation.

LollyLouise
Regular Member


Date Joined Jan 2012
Total Posts : 87
   Posted 9/19/2014 12:35 AM (GMT -6)   
Hi Veronydale, Anangell, Jary and 2Snowbell

Reading all your stories, so reminds me of my own, pre Total colectomy! There are many success stories post colectomy, however, I would like to share some of my experiences, as I believe one needs to make an informed decision to have the surgery and therefore you need to know the negative experiences too.

I too had colonic inertia for years and had the Total Colectomy at the age of 32. I had always suffered from constipation, which worsened every year and especially after the birth of my children. My 2nd born was a healthy 4 kg baby girl who was born after a normal delivery. After my constipation deteriorated to the extend that after taking bowel prep to empty my colon, I ended up with a severe rectal prolapse. Not long after the surgery I started with constipation again. Within a year I had a bowel obstruction and needed an emergency laparotomy. By 4 months post laparotomy I had had another 3 obstructions. I flew back to my specialist, who only then diagnosed rectal dysfunction and inserted a neurotransmitter (sacral nerve stimulator). This didn't help at all and I was forced to eat a fluid diet, laxatives daily and enemas daily. Despite this I continued to get bowel obstructions regularly. After a few years of this, I was told my only hope was an ileostomy which I wasn't emotionally ready for. I searched for another specialist who diagnosed pelvic floor dysfunction. He prescribed biofeedback for 1 year which I vigorously did and eventually had to give up work for a year so I could spend up to 5 hours a day doing pelvic floor exercises, relaxation exercises, psychotherapy, biofeedback etc. Despite this I had an average of 2 -3 hospital admissions per annum. I returned to my specialist a year later to be told that I had brilliant pelvic floor muscles (so all the hard work had paid off to have a tight vagina and rectum) but alas, I still couldn't pass a stool unaided. By this time (7 years after colectomy), I was still on a fluid diet, doing bowel washouts up to 3 times per day and living in constant pain which affected every part of my life.

I went to yet another specialist (all in a different country as there are no specialists in our country) who also said my only hope was an ileostomy. I eventually succumbed and had the loop ileostomy and removal of sacral nerve stimulator in 2012 .

Despite having a few kinks now and then (which I believe can be resolved), this was the best decision of my life. I fought it for so many years, and now wish I could take back the 7 years of suffering and have the ileostomy earlier. My quality of life has improved so much. I can eat almost anything (except the usual seeds, nuts, popcorn, skins of fruit etc.) never have to worry about bowel washouts, enemas, laxatives etc and am never in pain (except with the kinks).

To answer your question about fluid diets and ways to pass stools in pregnancy: I survived 7 years on a fluid diet and was otherwise so healthy during this time. I never got a cold, flu etc. I liquidized all my own home cooked food, had very nutritious soups, meal replacement shakes etc. One doesn't need tube feeding to survive on a liquid diet. From a nutritional point, I didn't miss out on anything, I only missed chewing and eating pizzas, cakes etc!! I survived on enemas and bowel washouts too. I believe pregnancy shouldn't change any of this. I would advise, however, that you opt for a caesarian section, as years later, they realised that the biggest contributing factor to my pelvic floor dysfunction and worsening of my symptoms was the delivery of my second baby. Due to her enormous size, her shoulders got stuck (shoulder dystocia) and it was in this process that my nerve and muscles were damaged, even though I didn't tear.

The total colectomy made my situation worse but only because I wasn't correctly diagnosed before hand. I wonder whether I would have required the same surgery if they realised at that stage that my rectal dysfunction was the problem all along?. Perhaps my colon wouldn't have been so slow if my rectum worked properly. I think the back up started at the rectum and the colon was then forced to slow down as a result??? Either way I would have needed surgery, as I think you do. I probably would have ended up with an ileostomy anyway regardless of whether I was initially correctly diagnosed or not.

You all certainly sound like surgery would be your answer as living with colonic inertia is no fun to put it mildly. Just make an informed decision and realise that a total colectomy may not work 100% and that you may have to have an ileostomy, especially if you have pelvic floor dysfunction.

Having said this you may have read my other post about just being discharged from hospital with a bowel obstruction. My small bowel has kinked 3 times this year, but I am booked for surgery next week to correct this. Despite this, my quality of life is a million times better than pre ileostomy.

Lastly, A positive mindset and exercise are vital and one needs to come to terms with all the options before jumping into any decisions. I play tennis 3 times per week, dance 3 times per week and lead a healthy and productive live. Exercise is great for the mind, body and soul. Pre colectomy there were times I just couldn't dance or play tennis due to the pain but now since my ileostomy I have far more energy to do the things I love.

I put it off having an ileostomy for 7 years because my mind wasn't ready to accept the bag, now I wish I had done it from the beginning........

Good luck to all of you

Lollylouise
:-)
40 yr old mother of 2
Registered Nurse
2004 Cholecystectomy
2005 Total Colectomy (colonic inertia)
2006 Laparotomy for small bowel obstruction
2007 Sacral Nerve Stimulator
2009 Pelvic Floor Dysfunction / Obstructive Defaecation / Irritable Bowel (biofeedback 2 years)
2012 Aug 21 loop ileostomy and adhesionlysis
2012 Sept 19 Ileostomy Revision

ave 2 hosp admissions /year for obstructions
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