You can talk with BCIR folks at www.bcirostomy.org I believe they have an active discussion board. The 2 hospitals that perform the BCIR are also good at getting prospective patients hooked up with current patients so you can talk to them; at least they were when I was considering that surgery. In the 9 years or so of being on ostomy boards I have only run across 2 BCIR patients; their numbers are small as compared to j and k pouchers.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free