I am Scheduled

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fish1
Regular Member


Date Joined Jan 2010
Total Posts : 106
   Posted 2/5/2010 6:39 PM (GMT -6)   
I am scheduled for illistomy on March 3...can't get here soon enough. I am a bit suprised that more people who have UC do not get this done sooner. I have posted on the UC forum and read a lot! There are a lot of people who are dealing with the steroid  side effects and I am one of them..I can not wait to get off that stuff. skull
 
I want my active life back!...oh yea and some sleeptongue
50 yr old man, Colon Cancer survivor 2005
90 % of colon removed 2005
 In a Major flare since Dec 09
Illistomy scheduled for March-3-10
Predisone 30 mg
Canasa 1000mg
Vicodin


damagedgoods41
Regular Member


Date Joined Sep 2009
Total Posts : 377
   Posted 2/5/2010 7:16 PM (GMT -6)   
Hello Fish1 Hope you are well or as well as can be???? I would just like to wish you the very best for ur up and coming surgery for an ileostomt.
You wont know urself after you have this done and then you can go back to ur active lifestyle.Again i wish you all the luck in the world. You are in my thought's. Also dont overdo it after ur op as it takes a long time to completely get over it all.
 
sincerley,
 
beverley......yeah yeah smurf smurf
 
(((((((((((((((((((((((((lots of hugs)))))))))))))))))))))))))))))))))))))))))))
Permanent ileostomy,radical hysterectomy & bi-lateral ophrectomy,bi-lateral mastectomy,atonic bladder.
DX chronic depression,bi-polarr11,panic disorder & o.c.d.!!!
Currently taking Avanza 30mg,Abilify 20mg,Seroquel 200mgs,Asprin,Valium 5mgs & Sandrena HRT gel 1.0mgs
Strive to be a success but rather to be of value!!!!!!!
 
Dont count the day's,make the day's count!!!!!!
 
No more revenge now;I will think upon revenge!!!!
  • I dont knowthe key to success,but the key to failure

    is trying to please everybody!!!!!!!!!!!

    Life becomes harder for us, when we live life for others!!!

    Without music, life would be a mistake!!!!!!!!!

    Im not young enough to know everything!!!!!!!!

     

     
     
     
     
     
     
     


    summerstorm
    Veteran Member


    Date Joined Aug 2006
    Total Posts : 6571
       Posted 2/5/2010 7:27 PM (GMT -6)   
    woo hoo for being healthy!
    and yes you will have your life back, it will be great!
    i cant promise any sleep for a while though, lol. took me forever to figure out how to sleep without hurting my stomach at first. Now im back to sleeping on my tummy like i used to though!
    if you have any questions, ask!
    UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
    -I have gone to find myself, if i get back before i return, keep me here-


    Chasblah
    Veteran Member


    Date Joined Feb 2007
    Total Posts : 788
       Posted 2/6/2010 4:15 AM (GMT -6)   
    EXACTLY!

    Although, i can see why people don't want to do it right away. It's scary on the 'no pouch' side to look at the unknown. I think it can be a difficult decision because it's so misunderstood. and so many bad stigmas attached to the idea. esp. for single people. i'm sure it adds to the insecurity that chronically ill people have. imho.
    BUT
    I'm so glad i have mine. You can't imagine how much better you'll feel.
    Like Summer said about sleeping, it took me a good 6 months-ish to be able to sleep in my stomach again. (maybe longer) but I can now!
    Good Luck! and we're here for any ?'s you may have. I'm sure you'll have them wink
    Chassity
    28 yrs. old. married with one beautiful daughter (born 11/20/07)
    -diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
    i only take vitamins now, when I WANT to. :)
    (temporary ileostomy....maybe)

    "Things turn out the best for those who make the best of the way things turn out."


    fish1
    Regular Member


    Date Joined Jan 2010
    Total Posts : 106
       Posted 2/6/2010 9:00 AM (GMT -6)   
    I did have a temp illistomy in 2005.  My doc is recomending the stoma basicly in the same spot. I have read some about placement but I would like advise on how low your stoma is placed. It seemed to me the first one was a bit to high on my belt line. Better to be to low? or to High?
    50 yr old man, Colon Cancer survivor 2005
    90 % of colon removed 2005
     In a Major flare since Dec 09
    Illistomy scheduled for March-3-10
    Predisone 30 mg
    Canasa 1000mg
    Vicodin


    fish1
    Regular Member


    Date Joined Jan 2010
    Total Posts : 106
       Posted 2/8/2010 5:25 PM (GMT -6)   
    Happy to report that my surgery date has been moved up to Feb 23..Thanks for all the comments I am sooooo ready.

    50 yr old man, Colon Cancer survivor 2005
    90 % of colon removed 2005
     In a Major flare since Dec 09
    Illistomy scheduled for March-3-10
    Predisone 30 mg
    Canasa 1000mg
    Vicodin


    fish1
    Regular Member


    Date Joined Jan 2010
    Total Posts : 106
       Posted 2/16/2010 7:34 PM (GMT -6)   

    Did all my prep work today and surgery in one week.yeah

    Thanks to all of the great advice here I made sure the mark for the stoma was low enough to keep me off the belt line. I think the temp I had before was too high. I will keep you posted when I get home. Got my ipod loaded with books and music. walk ,walk ,walk,


    50 yr old man, Colon Cancer survivor 2005
    90 % of colon removed 2005
     In a Major flare since Dec 09
    Illistomy scheduled for March-3-10
    Predisone 30 mg
    Canasa 1000mg
    Vicodin


    flchurchlady
    Veteran Member


    Date Joined Jul 2007
    Total Posts : 2765
       Posted 2/16/2010 7:49 PM (GMT -6)   
    I'm glad to hear that you're surgery got moved up, especially since you're ready to have it done. :-)

    I recommend that you bring some chewable Gas-X with you to the hospital. It can take a couple of days for your intestines to wake up, and the trapped gas can be painful. That way, you won't have to wait hours for the nurse to call the doctor to call the script into the pharmacy, etc. etc. I also recommend bringing eye shades and slippers.
    Good luck with the surgery. Soon you will be UC and Steroid-FREE!! yeah
    Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
    Disease-free and medicine-free since surgery and very thankful to be healthy again.


    suebear
    Forum Moderator


    Date Joined Feb 2006
    Total Posts : 5691
       Posted 2/16/2010 8:08 PM (GMT -6)   

    Get out of bed and walk walk walk after surgery!  Walking is key for waking the intestine up.  Good luck with surgery; life will be so....much better!

     

    Sue


    dx proctitis in 1987
    dx UC in 1991, was stable until 1998

    1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

    2000 lost all my B-12 stores and became anemic

    2001 opted for j-pouch surgery- now living life med-free


    Collicat
    Veteran Member


    Date Joined May 2009
    Total Posts : 827
       Posted 2/16/2010 9:21 PM (GMT -6)   
    Hey...my son had pan colitis, was becoming sicker and sicker and none of the drugs were working and we absolutely HATED the fact that prednisone was part of his life. He had his colon removed last September and we had the privilege of watching him come back to life almost overnight. You will be amazed what a difference it makes to have that diseased organ removed from your body. He is only 18 but very quickly learned to deal with his ileostomy without any problems...never a leak, or sore skin etc. He found he could go over a week without changing his flange and when he did change it, managed to do so in about 5 minutes. He found that his stoma was least active first thing in the morning before he ate and if he ate a couple of marshmellows that he could always change the flange without any poopy problems.

    Surgery is not a walk in the park but the drugs control the pain very well. He found that after a few days he really didn't need much in the way of pain control. I agree with Sue that the most important thing is WALK, WALK, WALK and then WALK some more. It makes a huge difference even though you will not feel like doing it.

    I wish you all the luck. This will be the first day in which you head back toward your health. In a couple of months you will have more energy than you can remember ever having.

    Equestrian Mom
    Veteran Member


    Date Joined Mar 2008
    Total Posts : 3115
       Posted 2/17/2010 5:20 AM (GMT -6)   
    Congratulations fish1 on your upcoming sugery:)

    I sounds like you know the drill on recovery...cheers to getting your health back smilewinkgrin
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