Massive Output

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TheFunk
New Member


Date Joined Feb 2010
Total Posts : 1
   Posted 2/8/2010 7:19 PM (GMT -6)   
Hey everyone, im new to this, but i really need to get some sound advice and talk to some people with ostomies. As i learnt in hospital - it seems the majority of the ostomy folk have them as a result of chrohn's, wereas i have one as a result of a schemia (not sure the proper name for it as i've only heard the doc talk to me about it).
I had surgery at the end of september and spent about 2 months there (NASTY) - I dont know exactly how much of my small intestine im working with atm, but what i do know is that my output has been REALLY high ever since i got out of hospital. In hospital i was putting out about 5-6 litres a day, but now i guess i measure it in empties, which id say is a minimum of 8 times a day.

However, recently it has been much worse and i seem to be emptying every half an hour (every ten minutes when i eat). Consequently i have to eat and drink all day long just to stay hydrated and stuff, but obviously that just sends me off again. I had managed to start exercising (had to start from scratch like, which is LOL worthy), but that has gone completely out the window now as just the trip to the bathroom every half an hour completely knackers me out. I take loperamide all day long, codeine and omeprazole a once a day, and i have tried to follow allllll the foods and stuff that the dietician suggested, but nothing seems to really make a difference at the moment. Usually i can manage but im really struggling with the ridiculous output i have at the moment.

Any advice would be greatly, GREATTTLY appreciated! As would the chance to talk to somebody going through something similar to me and ask a few more questions. I have had a really bad time, the worst time of my life with this, and i feel i've lost a lot more than just some bowel and a bit of dignity. I understand with chrones the surgery usually seen as relief, but i dont believe that, i cant see how this could ever been seen that way.

Cheers
Ben

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 2/9/2010 8:34 AM (GMT -6)   
Hi Ben,
Sure sounds like ur doing it tough, I have an ileostomy due to crohns and yes it has been a relief because the pain associated with crohns was ridiculous plus I would constantly lose control of my bowel pretty much every time I left the house, so for me its given me back some life. Something I didnt have for many years. I am now 47 years old and have had crohns for 22 years. I have only had the ileostomy for just under 12 months and I must admitt I felt like this pouch was a curse too for a while but now I realise its not and its for the best as Im sure in time you will too. Of course u need to keep up your fluids and eating but try to stick to your normal meals and not eat too much between meals my stoma always becomes active very soon after eating too but I have also noticed the longer I have the stoma for the less output it has, so perhaps its just that it needs to settle. As I too am newish to this Im sure someone else will be along soon to help out as well. So sorry I cant be of more help but wanted to let u know your not alone and anytime u feel like u want to vent or just chat with us we are here to listen and offer the best advice we can. I would also suggest u talk to your stoma nurse as she may be able to offer some more solutions. I know its not easy living with this but it does improve with time. Take care and keep us posted on how your going
Doreen

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/9/2010 9:54 AM (GMT -6)   
what foods are you eating?
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/9/2010 5:49 PM (GMT -6)   
I think you need to ask your doc where in your small intestine your stoma is...if it is higher up your output will be more liquid than if it is farther down...the high output makes me think it might be higher up. Give your doc a call and mention the high output again and that the meds aren't helping.
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