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Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 2/8/2010 9:00 PM (GMT -6)   
So in April it'll be a year since my reversal and I've been really fortunate not to have had any major problems besides dehydration (but thats my fault) I went out of town this weekend and I was really stressing about me going to the bathroom all the time and whether or not it would make my roomates mad or grossed out. I mean, I knew all of them but only one really knew what was going on with me and the bathroom thing. So in return of me stressing about it, I thought about it more and went more..and now that Im home Im not worried anymore but my bumhole is RIDICULOUSLY sore..Ive been using medicine everytime I go but it seriously feels like my bumhole is gonna fall off next time I potty..and Immodium seems like it makes things worse for some reason..Anyone get like this?
Im 18, freshman at college :) I was diagnosed with Ulcerative Colitis on March 18,2008...had a total colectomy November 19,2008 with a temporary ileostomy for 6 months..Reversed it April 29,2009 and my life is AMAZING living UC free :D


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 2/9/2010 7:21 AM (GMT -6)   
Oh yeah. I can relate. I go all the time too. I attend a fall shopping trip with my four sisters-in-law in Chicago. I usually stress out about it too. But I've learned to eat and drink extremely light the entire trip - except for water and my trusty bananas, club crackers, etc. I order very small entrees or once just an appetizer from the menu. Another time an english muffin and a sliced banana, meanwhile my SIL's were eating these huge breakfast casseroles (sausage, eggs, peppers, onions). They said how delicious these entrees were while I nibbled on my english muffin and banana. BUT I felt so well after I had eaten light. Now they know I have to eat this way when I am traveling, out of town sharing a room with others, etc.

Before I ate this way with them, I had indulged at dinner and got into those awful rectal spasms. I had such pain and was quite emotional. Just wanted to be home in my own house with my family and dog. I just kept sipping tea I made in the hotel room and running to the bathroom. In time the pains subsided, the bms slowed down but my SIL's didn't understand why I was so stressed out.

The trouble with people with normal colons is they think we can stay in the bathroom longer and finish, having just one big bm. I will never, ever be that way again. I need to pace, massage my stomach, sip water or the hot tea and ride it out. That is one time I wished I had had my own hotel room but they did leave the bathroom wide open for me for when I needed it. That was kind.

But yes I can relate. One of my tricks now is to pretend I am home, I sit on the toilet, close my eyes and force my gut to calm down. Does it work? Over 50% of the time it does work.

The stress is hard to deal with. Wish I had an easy answer for you, other than to eat light, keep your fluids up and try to relax.
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening

Post Edited (Marsky) : 2/9/2010 6:24:04 AM (GMT-7)

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