help me please this amount of output is slowly making me depressed

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tomtab
New Member


Date Joined Feb 2010
Total Posts : 1
   Posted 2/13/2010 8:36 PM (GMT -6)   
Ok hi to all, i have an ileostamy bag that i had re-reversed last December i have had 2 previous as the reversal operations did not work and they have told me i would have a better quality of life with the ileostamy, but so far............. all i seem to be doing is the same as before with out the stoma and that is spending most of the day and all of the night stood at the loo emptying the darned thing and to be honest i thought the output should of slowed down by now i have tried numerous things, such as lopermide tablet and liquid form witch do not take any affect and i have also tried codeine phosphate and this powder thing that turns in to a thick sludge like thing when mixed with water and that is disgusting but the doctors and surgeon say their is nothing else they can proscribe apart from over night bags and to be honest at the age of 19 nearly 20 its not my ideal thing, i mean sleeping with the girlfriend and staying away from home would also complicate things, i haven't been able to stay away from home since the operation and its starting well it has for a while really annoying me as i cant sleep at all so im constantly tired and im constantly dehydrated and hungry but the more i drink/eat the more im at the loo and that is not what i need so i was wondering if any one could suggest a few things i could inform my doc to prescribe as its driving me crazy and i feel like ripping the thing out, thanks to all that have taken the time to help skull smhair confused shakehead shocked mad cry Tom x

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5691
   Posted 2/13/2010 8:54 PM (GMT -6)   

is your ostomy a loop, or temp osotmy?  What is your diet?

 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 2/14/2010 8:34 AM (GMT -6)   
Have you tried thickening foods like bread, toast, bananas, rice, applesauce?? I heard some ostomates have good luck thickening output with eating marshmallows. Have you tried taking immodium in large doses? Surely somebody will come along to offer you more advice. I hope this gets better for you. How long have you had the ileostomy? I read it can take up to a year for your body to adjust.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/14/2010 8:52 AM (GMT -6)   
What section of your small intestine is your ostomy from?

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 2/14/2010 10:18 AM (GMT -6)   
Hi, the way I cope is to eat little and often rather than big meals,also I don't eat after 6pm so I don't have to get up in the night to empty. I use moreform sachets which you put in the bag which soaks up the liquid and forms into a gel so the liquid is not sloshing around I only empty twice a day then, you can get them from your supplier. If the output gets really watery i eat foods as suggested by answers4meTDR hope this had helped good luck and hope you get it sorted soon Bev x wink
Diagnosed with crohns at 13 now 43
Reversal of temp stoma Postponed till ???????
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)


" I may not be there yet, but I'm closer than I was yesterday."

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