Wow...your poor baby...and poor Mommy! I really don't know what to tell you about the stoma size changing. Mine is actually over an inch from my tummy and it's gets uglier by the day...bumps, ripples...gag. I'm glad he seems to be doing better now, since he was playing and being active!
It is with my experience that if there is pain my tummy sometimes seems a little bloated, and there is a change with the output.
I think it's wonderful that you're here asking questions so you can be the best Mommy to your son...if there was a heart icon I'd use that
That's even more amazing! I have a cousin that survived those same odds and she is such an inspiration to our family! I love it when children grow up and show the medical field just what a detemined little soul can do!